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The Thyroid Thread - Page 44

post #861 of 1011
I saw the doctor today and she said my TSH is high and I am developing a goiter but she didn't give me meds. Isn't that odd? She gave me a requisition for an ultrasound on my thyroid and a requisition to do bloodwork again in July. I started on lithium in January which is known to cause hypothyroidism. In February my TSH was 2.46 and now it is 5.01 plus she felt my neck and said my thyroid is enlarged. For the last 6 weeks I have been losing handfuls of hair and having many other symptoms. Why would she make me wait until July? I don't even know if they are planning on giving me medication in July either, I sure hope so. I don't have a family doctor so I go to a walk-in clinic and I don't always see the same doctor so that complicates things. Am I crazy to think that they should be putting me on meds already? I am going to be bald before they get around to it! Her only advice was for me to cut my hair (I have hair down to the middle of my back). Help!
post #862 of 1011
If it were me - I would insist on the following tests:

* Free T4 and Free T3 (note the word “free”)
* Thyroid Antibodies (anti-TPO and TgAb. YOU NEED BOTH.)
* Ferritin (and do stress FERRITIN, not just RBC)
* Reverse T3

(IMO, It is also a good idea to test B-12, estrogen, progesterone, testosterone, DHEA and adrenal function if you suspect underactive thyroid.)


Testing for antibodies will help diagnose or rule out Hashimoto's, which is an auto-immune disorder that is a common cause of hypothyroidism.

You can read about natural ways to support thyroid function here:
http://www.naturalfamilyinfo.com/Hypothyroid.html

But again, I would want to have those tests done to see what's going on.
Also, I really like the book, Your Thyroid And How To Keep It Healthy, by Dr. Peatfield. Maybe they'll have it at your library?

I've also found a lot of useful info here:
http://www.stopthethyroidmadness.com/

Good luck - I know how frustrating this stuff can be.
post #863 of 1011
You need to go to an endocrinologist. This doctor at your walk in
clinic clearly doesn't know what she's doing. She should have given
you something.
post #864 of 1011
Maybe some of you all who have researched hyperthyroidism can help me out here. I keep trying to hunt for info, but it seems like there is a lot more focus on underactive thyroid.

Since giving birth I have had a ravenous hunger, and it has seemed to get worse over time. It would get to the point that a few hours after eating I'd feel so weak, and I'd NEED food, now. My family has been shocked at how much food, especially protein, I consumed.

I tend towards a fast heart rate and low blood pressure, have a lot of sweating as well.

I am currently pregnant and so the natural hunger that comes with pregnancy is obviously complicating the symptom picture. Also I am weaning ds now because the hunger is overwhelming me and because I tend towards excessive contractions in mid to late pregnancy. So I am not sure if my hunger issues are just due to the nursing because I am pregnant anyway!

My TSH result was 0.521. I'm thinking of doing further tests, so far I'm coming up with the T3/T4 tests.

If anyone can suggest any books or articles I should read, please do, or if there are any other tests I should do. My chiro suggested a saliva test, I have to look more into how that works.

Thanks a lot in advance
post #865 of 1011
I would really appreciate any advice.

I was diagnosed with hypothyroidism a few months ago. My tsh level was initially 31 and, about 6 weeks ago, was 1.something. Last week I discovered that I'm pregnant and had my levels checked -- 3.8. Internet info says that it should be below 2.5 during pregnancy. How important is this? My midwife doesn't handle this, and the local doctor's office that I usually go to will only now refer me to an ob/gyn. The ob/gyn, in turn, knows my current test info and won't get me in until June 23. Am I just worrying over nothing here?
post #866 of 1011
Truvie-there are links between maternal hypothyroidism and mental deficits in the baby. Since I became hypo in the middle of my last pregnancy, I freaked a bit, though my son seems fine. But it seems like the early part of pregnancy would be more important, I'd push to get in sooner.

Poetesss-I can give you a place to read about hyperthyroidism, but it's pretty alternative and may not be appropriate during pregnancy. Check out ithyroid.com. It has both hypo and hyper info, it discusses them in terms of mineral deficiencies and a bit on underlying causes (why/how minerals could get so out-of-whack). I can say that the mineral stuff was right-on for the hypo part, but being pregnant takes on a whole new set of complications.
post #867 of 1011
Hi, all. I've been lurking on this board for quite some time, but decided to join today to respond to this thread.

I'm 34 and was diagnosed with cancer last year (when my only kid turned one). I went through the typical total thyroidectomy with lymph node removal...luckily my parathyroids were in good enough shape my surgeon was able to relocate them. I had to wean and dry up (one year later, this is still the worst part of the whole experience to me) to prepare for RAI. I found out last month that there is "suspicious activity" in the thyroid bed (via ultrasound). So my old man and I are on hold until October to determine if there is another round of RAI or if we can TTC.

I'm on Levoxyl right now and am so disgustingly hyper (.05 TSH last month) that my mind and body are just not in a good place. I've had many, many reductions in doseage, but we're not able to get my meds where they need to be. It's all a work in progress.

Anywho, good luck to all. I've had some friends that push their docs for meds the second they hit 3.0 TSH. I guess it's interesting to me because I felt a million times better then this when I was hypo. Ugh. Both ends of the spectrum blow!
post #868 of 1011
Quote:
Originally Posted by poetesss View Post
Maybe some of you all who have researched hyperthyroidism can help me out here. I keep trying to hunt for info, but it seems like there is a lot more focus on underactive thyroid.

Since giving birth I have had a ravenous hunger, and it has seemed to get worse over time. It would get to the point that a few hours after eating I'd feel so weak, and I'd NEED food, now. My family has been shocked at how much food, especially protein, I consumed.

I tend towards a fast heart rate and low blood pressure, have a lot of sweating as well.

I am currently pregnant and so the natural hunger that comes with pregnancy is obviously complicating the symptom picture. Also I am weaning ds now because the hunger is overwhelming me and because I tend towards excessive contractions in mid to late pregnancy. So I am not sure if my hunger issues are just due to the nursing because I am pregnant anyway!

My TSH result was 0.521. I'm thinking of doing further tests, so far I'm coming up with the T3/T4 tests.

If anyone can suggest any books or articles I should read, please do, or if there are any other tests I should do. My chiro suggested a saliva test, I have to look more into how that works.

Thanks a lot in advance
I have hyperthyroidism as well. My TSH last time they checked was around .09 or something, but my t4 and t3 were in the normal range. So no hormones for me right now, but I am taking a beta blocker to manage symptoms.

I know you said you are pregnant, but I think the only clear cut way to diagnose it is with a thyroid scan. That's what I did after about a year of trying to figure out what the hell was wrong with me! I also had the hunger issues, and when it was at it's worst lots of weird low blood sugar issues. Like no matter how much I ate my blood sugar would crash.

Anyway, the tests you'll need are Free T4, Free T3, thyroid stimulating antibodies (this checks for grave's), 2 other antibody tests I can't remember the names of offhand, and most likely a scan - but we don't know if you can have that because you are pregnant - I doubt it. You may just have thyroiditis which is easily treatable, but it's best to make sure you don't have Grave's. Both are treatable during pregnancy and actually if you do have Grave's it's ESSENTIAL that you are treated. Your midwife or OB should know what to do.

I go back in a week for more blood tests. I am curious to see what is going on as I randomly gained 6 pounds last month, after steadily dropping weight for a year. I'm hoping that means I'm getting better and can stay of medications. I have a feeling I may have swung a little hypo - or towards the mid range, but we'll see what happens when I go in.

AfricanQueen - So sorry to hear about the cancer. I know what you mean about being really hyper - it's by far the worst feeling in the world that I've experienced. I was in the ER three times in April because of heart arrythmias. It's pretty unsettling and uncomfortable to say the least.
post #869 of 1011
NAK
I was dx'd in December (I think) w/hypo. TSH was 100. I can't remember ft3 or ft4 atm.
I was wondering how to find out the *cause* of the thyroid problem, but haven't had a chance to read through everyone's posts. My ND figures it's adrenal fatigue since I have had a pretty stressful life. How do I rule out autoimmune disorders, ie Hashimoto's, Celiac, etc, as a cause?
post #870 of 1011
Quote:
I was wondering how to find out the *cause* of the thyroid problem, but haven't had a chance to read through everyone's posts. My ND figures it's adrenal fatigue since I have had a pretty stressful life. How do I rule out autoimmune disorders, ie Hashimoto's, Celiac, etc, as a cause?
For me it was the mercury in my fillings. Read this:
http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

on how/why a hair test can be a good tool to see if mercury toxicity is your issue. If you need help interpreting the test, the folks on the autism-mercury yahoo group are very helpful (and if you order the hair test by phone, you can mention the group and they'll give you a discount).
post #871 of 1011
They say I have a nodule on my thyroid (diagnosed by u/s). Now they want me to get a radioactive isotope uptake test. I looked into it and I would have to wean my 2.5 year old to get the test done. No way am I willing to do that! She is not ready to wean and neither am I (she is my last baby). I am afraid if I tell the doctor I am refusing the test that they won't help me anymore. What should I do???
post #872 of 1011
Quote:
Originally Posted by Heavenly View Post
They say I have a nodule on my thyroid (diagnosed by u/s). Now they want me to get a radioactive isotope uptake test. I looked into it and I would have to wean my 2.5 year old to get the test done. No way am I willing to do that! She is not ready to wean and neither am I (she is my last baby). I am afraid if I tell the doctor I am refusing the test that they won't help me anymore. What should I do???
I was in a similar situation 6 years ago. My doctor knew how much my breastfeeding relationship meant so instead of the radioactive isotope test he sent me to a surgeon that could do a needle biopsy. Not a whole lot of fun but not too bad. Do you know if you have multiple nodules or just one? Are they interfering w/ your ability to swallow? Are they causing issues w/ your levels? Why is your doctor concerned about it?

Best of luck.
post #873 of 1011
Heavenly, ditto on what Sandi suggested. Ask for a fine needle aspirate instead. Tell him you aren't ready to wean or leave your family for 1-2 weeks so you don't flow anymore. I blew it off. I don't want to do the radioactive thing unless my nodule is casuing me more trouble or is cancerous.
Good luck!
post #874 of 1011
I haven't been around for awhile...

Just wanted to urge many of you to check out www.stopthethyroidmadness.com

The last I knew, it was the MOST informative site for all things thyroid and adrenal.

Ditto on the Mercury Poisoning.

Ditto on an alternative to the radioactive test. I had to take radioactive dye for other health problems, and was bfing my then 3.5 yo DD-I weaned her for 3 weeks-and pumped and dumped-didn't think I had any milk left-and after FIVE weeks of no bfing, I was able to bf again. If I had to do it again....I would never have agreed to the dye. Never. I am now wondering if some of my DD's problems could be due to some exposure-if maybe me resuming bfing was the right thing to do. I was working with a Lactation Consultant/Nurse practioner-and she kept saying I would be fine.

Oh! One more thing---endocrinologists are NOT always the right doc to see. The above website will explain why.

Hang in there mamas!!!!!

mp
post #875 of 1011
Quote:
Originally Posted by Heavenly View Post
They say I have a nodule on my thyroid (diagnosed by u/s). Now they want me to get a radioactive isotope uptake test. I looked into it and I would have to wean my 2.5 year old to get the test done. No way am I willing to do that! She is not ready to wean and neither am I (she is my last baby). I am afraid if I tell the doctor I am refusing the test that they won't help me anymore. What should I do???
NO doc worth their salt would recommend RAI *before* going through the proper channels. I would run. Fast.

I had to wean because mine is cancer, but there is no way that you jump to step 5 before going through steps 1-4, YK?
post #876 of 1011
They aren't recommending the treatment, just the test. But you still can't breastfeed with the test. Did you have a radioactive test or was yours diagnosed through a fine needle biopsy? I am very conflicted as to what I should do. Everything says only 5% chance of cancer but obviously someone has to be that 5% as you obviously know.
post #877 of 1011
I had a biopsy first and was lucky that they found the cancer at that point...MANY MANY peoeple get inconclusive FNA biopsies and have to have surgery to determine if they actually have cancerous cells.

Why does your doctor want to skip the biopsy? How big is the nodule in question?

Getting the test is more than just weaning - you will also be isolated from your kids. It seriously sounds like your doctor is jumping ahead before necessary...and that would make me get a second opinion.
post #878 of 1011
Correct me if I am wrong, but, from what I understand about the uptake test is that it is testing for thyroid function not necessarily cancer.
By the way, my history is nodule detected in 8th month of second pregnancy. Thyroiditis post-partum. Declining TSH ever since, T3 and T4 normal. HUGE emotional rollercoaster sent me back to endocrinologist earlier this year. Nodule growth, US guided FNA came back benign. Yes, FNAs can be inconclusive, however, I feel that the docs can recognize abnormalities in the US and if FNA comes out benign and they are still suspicious they will further diagnostics.
Educate yourself and ask tons of questions. Have you had a full blood work up?
post #879 of 1011
Quote:
Originally Posted by AfricanQueen99 View Post
I had a biopsy first and was lucky that they found the cancer at that point...MANY MANY peoeple get inconclusive FNA biopsies and have to have surgery to determine if they actually have cancerous cells.

Why does your doctor want to skip the biopsy? How big is the nodule in question?

Getting the test is more than just weaning - you will also be isolated from your kids. It seriously sounds like your doctor is jumping ahead before necessary...and that would make me get a second opinion.
They don't want to skip the biopsy, they wanted to do the radioactive test first to see if they even needed to do a biopsy. The nodule is only 1/2 cm so it is not very big yet but they said it could grow. There is a small one starting to form on the right side of my thyroid as well. I was under the impression that you didn't need to be isolated unless you were having the radioactive isotope treatment not the test. Is that different than what you were told.\
Thanks so much for your help!
post #880 of 1011
This test will have you ingest radioactive iodine to test the thyroid function, right? If yes, then, YES, you will have to be isolated from your children for a brief time.

I am not a physician, but I would get the biopsy first, but that's just me.
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