Originally Posted by Jewelie
ok, so, God it kills me to ask this but be honest. My oldest daughter had 4 catheterizations when she was little- 1st at 3 mos when she had a high fever to dx UTI, then a few wks later when she was dx with vesicourital reflux (urine refluxing from bladder into kidney which can lead to permanent kidney damage if left untreated) through a horrible test called the VCUG, then to rule out a UTI later, then the last one at 18 mos when we did the repeat VCUG (clear finally) (this time she was sedated). Could those invasive tests have caused or made her SID worse?
As a person with a dd who has tests constantly (and are coming up on our 10th surgery, and 12th or 13th hospitalization).....
No, no and no, the tests did not cause your dd's SID.
Not gonna happen -- no way no how.
Now, having said that, it most certainly does not help the situation. (VCUG's do suck for sure)
When dd is in the hospital it really makes her sensory issues worse. We're talking IV's, blood pressure cuffs, taking temps, etc. etc. etc....and waking her up in the night to do it.
No offense, because I don't want to downplay what your dd has been through, but in order for medical stuff to be part of the cause I would have to say that it would be more likely if it were repeated tests, etc. that would cause a permanent affect. Things such as being in the NICU for a while after birth, many surgeries and tests, etc.
It is definitely a factor with dd. No one was able to hold her until she was 6 days old and even then she was propped on pillows so was only really touching me with her mouth to my breast. I would have my hand on her legs and one on her head. That was the most she got for a month. All her other experiences with sensory during that time had to do with loud alarms going off all the time, people mostly only touching her when there was pain involved (new IV every few days), tests, etc.
After all that do I think that could have been the total cause of her SID? Nope! I do think it factors in in a big way, but I think it has to do with the wiring in her brain she had to begin with and then the wiring in her brain got even more screwy with what he went through with not having the proper sensory input she was supposed to have.
The psychologist (who is considered to be THE authority on autism around here (although dd doesn't have autism)) said that it is probably at least half her original wiring and maybe half or less all the medical stuff she has been through.(this was at age 2)
I think you have to work hard at not looking for a cause. There is no purpose in it and it is just so frustrationg to you. You have to somehow find peace in the unknown. Maybe someday they will figure out the cause of all this, but until then...and even if they do....how you handle it is what matters and accepting it for what it is can relieve a lot of stress. It just is what it is. (Easier said than done I know)