Its me, AmyDSigh. Good news and terrible news.
Well on the good news front, I started my older DS on reuteri for his loose poops. The results are phenomonal!! He is a normal boy after all. I plan to keep both of us on the diet for a long time, is there any problem w/that nutritionally speaking?
And the awful news.
It looks like my 21m old has a rare genetic disorder, MPS. We are very lucky though because it seems that he is on the very mild end of the spectrum. I'm thinking Schiele's or mild Hunter's. I'm going back and forth btw the two. His urine was sent out on Thursday to the U of Alabama to the top guy in the field to get more answers. We are seeing the geneticist on Wednesday, and the ENT on Thursday (to remove his adenoids and put ear tubes in). We are hoping to get this diagnosed ASAP so that he can start the enzyme therapy (once a week for life or until a cure).
On a side note, my lil' guy is much MUCH healthier than other MPS kids his age. I am attributing this 100% to his non-vax, non-crap (only SCD), and no antibiotic ever history. Because of all this, I know he is going to be okay.
Onwards to another journey.