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hyperspadia penis "looks" circumsised" - Page 2

post #21 of 30
OT - Frank - So glad to see you back! We have sorely missed your expertise!
post #22 of 30
Quote:
Originally Posted by Fyrestorm View Post
OT - Frank - So glad to see you back! We have sorely missed your expertise!
::
post #23 of 30
Thank you ladies!


Frank
post #24 of 30
Frank! So good to see you again!

Thought I would throw a quick update about my son in here as well. He will be 3 at the end of the month, and it has now been over a year since his last surgery. Unfortunately his second surgery (which was to correct his hypospadias -- first surgery addressed the chordee only) was unsuccessful, and he did require a third surgery. That one was successful, and so far, so good! There are of course complications that could arise down the road, but we will take it as it comes, and not dwell on it in the meantime.

Ds does look circ'ed, unfortunately foreskin restoration wasn't an option in his case. Our urologist did suggest removing the excess skin (it is kind of bulky on the underside), however we told him that we felt that would be a cosmetic decision best left up to ds, when he is old enough to decide for himself. Our uro completely supported that decision, and I have to admit it was nice to be able to leave something for ds to decide for himself.

In retrospect, knowing what I know now -- we originally though ds's hypo repair was cosmetic only, but dh and I had decided to go ahead with it. However, if I had to make the decision again, if ds's hypo repair was actually cosmetic, no way would I do it. Carla, that's not directed at you -- I just wanted to throw that in there.
post #25 of 30
Quote:
Originally Posted by mommyswenn View Post
In retrospect, knowing what I know now -- we originally though ds's hypo repair was cosmetic only, but dh and I had decided to go ahead with it. However, if I had to make the decision again, if ds's hypo repair was actually cosmetic, no way would I do it. Carla, that's not directed at you -- I just wanted to throw that in there.
I'm confused. Would you do it or not, with the case as it is? Was it really cosmetic? This is something I will have to face eventually. My latest son has rather severe hypospadias, down at the base of his penis. In fact, it was announced at birth that he was a girl, since he was premature, and girls are sometimes quite enlarged at that age. But he's definitely a boy. So I'm gathering all the info I can.
post #26 of 30
quarteralien I think she ment that they did it knowing it was cosmetic but now she wouldnt do it for that reason.

Since your ds's is at the base of the penis that is more than cosmetic it will effect how he uses the bathroom and later on will make it next to impossible for him to father children naturaly since the sperm will mostly fall outside the vagina.

There are ways to preserve as much of the foreskin as possible so be sure and work with a Dr on that to save as much as you can.

Here are some links on hypo that have a lot of information one of them you have to join to see but it is free and has some good information:
Hypospadious: http://www.cirp.org/library/restoration/gray1/

Hypospadious: http://images.google.com/imgres?imgu...l%3Den%26lr%3D

Hypospadious: http://www.emedicine.com/PED/topic1136.htm

Hypospadious: http://www.medscape.com/content/2004...89956.fig4.jpg

Hypospadious: http://www.medscape.com/viewarticle/489956_8

Hypospadious graph: http://www.hypospadias-emotions.com/images2/hyposp6.jpg
post #27 of 30
Thread Starter 
thisis an old thread I started it when my son was only weeks old. HE is now 20 months. We did the hypo rpair and the foreskin reconstrution. He only had half of a foreskin called a dorsal hood. The hypo repai was not as much of an issue as the dorsal hood. After talking to teenage boys and grown men with "untouched" dorsal hood they all wish they had had it fixed...many were celebet because of it. My son now has an intact funtioning foreskin that he would not have had before. He has had his follow up and as too date we have had no issues. I know that this is not the case for all and I also know it is early yet. UI found the yahoo group moms with boys with hypospadias extemely helpful. More than not are for circs but if you can get past that they have a wealth of knowledge. Also lots of moms that are for reconstructing....mod is pro "keep the foreskin" and very helpfull
post #28 of 30
Quote:
Originally Posted by carla72 View Post
thisis an old thread I started it when my son was only weeks old. HE is now 20 months. We did the hypo rpair and the foreskin reconstrution. He only had half of a foreskin called a dorsal hood. The hypo repai was not as much of an issue as the dorsal hood. After talking to teenage boys and grown men with "untouched" dorsal hood they all wish they had had it fixed...many were celebet because of it. My son now has an intact funtioning foreskin that he would not have had before. He has had his follow up and as too date we have had no issues. I know that this is not the case for all and I also know it is early yet. UI found the yahoo group moms with boys with hypospadias extemely helpful. More than not are for circs but if you can get past that they have a wealth of knowledge. Also lots of moms that are for reconstructing....mod is pro "keep the foreskin" and very helpfull
thats great! deciding on what to do with a boy born with hypo is a rocky journey, and it often takes parents and children in directions they are not always sure of. Its a hard process to go through, and its nice to see things have turned out well, and on top of that, no complications either!
post #29 of 30

My son suffer from severe hyperspadia and i realised that is penis is not growing could you be kind enough and tell me after your son did the surgery how soon after his penis start to grow.  I am worried and concern he is almost 4 years old and cannot stand to urinate

post #30 of 30
Quote:
Originally Posted by Nordiabent View Post

My son suffer from severe hyperspadia and i realised that is penis is not growing could you be kind enough and tell me after your son did the surgery how soon after his penis start to grow.  I am worried and concern he is almost 4 years old and cannot stand to urinate

Welcome to MDC!

 

You said your son's penis isn't growing.  Do you think that only because he can't pee standing up?  There are some men that just don't pee standing up.  Do you have an intact friendly doctor, either a primary care doctor or a specialist?  I'm sensing that you may not be in the US?

 

If you could/would give more info, we may have ideas for you.  

 

Best wishes,

Sus

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