Copy posted from DH's update for his friends....
The doctors did the Amnio this morning at 8:30, but the results they got back on the lung maturity are "borderline" In otherwords they have to send the results to a differant facility to get better information as to whether or not to proceed with the surgery. We wont have those results until 5 PM at the earliest, so we cant have the c section today.
They do not know if we will be able to have the c section tomorrow until we get the results back but if they come back ok, they will tentatively schedule a c section for noon tomorrow.
We'll keep you posted as they keep us posted.
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The doctors are now playing games with us. The Amnio results came back ok with no problem, The doctor says that we are ready for the C section surgery, however while they were waiting for the results All of the NICU beds filled and there is no spot for our son. The doctor said to go home and they will call us when a bed opens, This is not possible as we live 2 hours away from this hospital and we had such a difficult time finding child care for our daughter. We have this hotel for another night so we are hoping a bed will open by tomorrow.
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From me: I dunno wtf to think. The doctor who was to do the section today apparently just doesnt agree with the other doctors that he's got such severe problems and just kept telling us to go home go home. I found out they denied FOUR mothers today inductions/sections because of lack of beds in the NICU. One mom is in critical care because the poor baby isnt doing well in utero but since there are no beds for him they cannot take him out yet. So she obviously will get the first available bed. They are anticipating 2 possibly 3 opening up in the AM. I'm supposed to find out more then. I could scream. At least there is a different doctor doing the surgeries tommarrow and maybe he'll see the need for Las to come out. If the hydrocephalus pressure keeps growing and the cyst keeps getting bigger more and more of his brain will atrophy away. It NEEDS to be taken care of. I fear for his condition once he gets out if he stay in any longer. He may be doing relatively "ok" inside me right now, but it's because he doesn't have to breath on his own, he has me supporting him. He doesn't NEED the brain to talk to his lungs right now. What if the brain is already too damaged to talk to the lungs when he's out?!?! What if it GETS damaged between now and when they have an available room for him?!?!
Not to mention these nights spent at a hotel are not covered under insurance as I'm not an admitted patient to the hospital yet. I'm freaking out about what will happen come 2 months from now, depending on how long we are *stuck* here and how much money we had to pay out of pocket with no hopes for reimbursement from the ins because of this bs....
ARRRRGGG!!!!!!!! Someone please tell me that my son will not have such severe brain damage. Even though 1/2 the corpus collosum, 1/2 the brain stem, the back left portion of his brain and his cerebellum are GONE.... please tell me he may still have the chance to breathe on his own when he comes out. Please please please.... this whole thing is traumatic enough I cant stand these games they're playing with me....