Healing the Gut Tribe-October - Page 5

[Panserbjorne]

Have you read Enzymes for Autism and Other Neurological Conditions? That may really help you.

It's hard to say without seeing the rash. My dd gets a horrid rash on her bum if she gets exposed to gluten. The two things I use are colloidal silver (anti fungal anti bacterial and anti viral-so it stops anything without identifying it-also very soothing) and then rescue remedy cream. Works wonders. I've never had to use anything else and she gets NASTY rashes.

There are GFCF options for formula if you are interested. I didn't use them (I did make my own formula, but we used raw goat milk as the base) but I think others have.

[moonshine]

crazycat, welcome. My heart goes out to you in dealing with your struggles. No advice, but stick around -- you will learn a lot.

caedymn, clicked on your links and yahoo told me "Uh-oh, something bad happened." And no pic.

[Pookietooth]

I'm going to try to post a photo link, too, also yahoo. It's from about a year ago, pre-scd. I have longer hair, and am a bit unhealthier looking now. http://pg.photos.yahoo.com/ph/jredwi...cd.jpg&.src=ph

[crazycat]

Thanks! I will check out that book for sure. Would those recipes be posted on this forum somewhere? I wonder if I just totally overwhelmed his system by switching so suddenly back to formula that was not gf/cf He never used to have rashes like this when he was on different formulas, but I would have to check how long it's been since he was on a gluten containing formula ... I'd have to recheck ingredients. He was only just determined to be autistic last November so prior to that we didn't have any concern over the gluten/casein and weren't considering that at all. I would love to see the other recipes. Other than the rash he is tolerating this formula so much better and seems much more comfortable overall. Plus it goes easily through his tubing without clogging up, which is important. Also, he is actually starting to actually EAT baby foods (he's had an entire 4-ounce jar so far today) ... which is huge since he has never taken more than a tiny taste or two more than 2-3 times in the past 2-3 years, and never prior to that ... so his interest in food is definitely a new thing and the formula is the only thing that has changed ...

Thanks again!

[Annikate]

Originally Posted by crazycat

Thanks! I will check out that book for sure. Would those recipes be posted on this forum somewhere? I wonder if I just totally overwhelmed his system by switching so suddenly back to formula that was not gf/cf He never used to have rashes like this when he was on different formulas, but I would have to check how long it's been since he was on a gluten containing formula ... I'd have to recheck ingredients. He was only just determined to be autistic last November so prior to that we didn't have any concern over the gluten/casein and weren't considering that at all. I would love to see the other recipes. Other than the rash he is tolerating this formula so much better and seems much more comfortable overall. Plus it goes easily through his tubing without clogging up, which is important. Also, he is actually starting to actually EAT baby foods (he's had an entire 4-ounce jar so far today) ... which is huge since he has never taken more than a tiny taste or two more than 2-3 times in the past 2-3 years, and never prior to that ... so his interest in food is definitely a new thing and the formula is the only thing that has changed ...

Thanks again!

Have you read Children With Starving Brains by McCandless? If not it's a must read for anyone dealing with kids w/ASD or gut problems. She lays out *exactly* what you can do righy NOW to help. If there were only one book ever written on this topic that I could recommend, that'd be it.

[Panserbjorne]

Annikate-just curious, have you read Karen DeFelice's book? I much preferred it, but I'm a whacko anyway! : I just wasn't thrilled with McCandless. Perhaps I should read it again.

[Annikate]

YK, I ordered it early on in this healing process and never really read the whole thing. I read McCandless a couple of months ago after I had learned a lot so maybe that's why hers resonated w/me more than Karen's. I should re-read it. (Or read it through that is!)

I'm not ADHD but I tend to read several books at once and if one stops being interesting to me, I rarely pick it back up.

[Pattyla]

I think we are getting die off in dd!!! : I haven't ever thought this before with her.

Of course this means she is nuts : but that is good, right????

We are just hitting her hard with probiotics right now w/o adding anything back to her diet. I'm giving her reuteri 2x a day and lots of kombucha. (not really sure how much). Her reaction is the "I got something I shouldn't" reaction but since I know she isn't getting anything new but those probiotics and they aren't new, just in greater ammounts, I think it is die off.

In general she is in good spirits, just tough at nap time/bedtime. Thankfully dh does bedtime. :

[Annikate]

I ate some bulghar wheat today without looking at the ingredients list. Only a bite but I know it'll affect dd's sleep (as if getting 2 molars at once isn't enough.)

I bought some falafels at WF and didn't look at the list 'cause the girls were fussing and *gulp* swallowed it before I could spit it out.

QUESTION:
Theoretically, when I am healed completely, will I be able to ingest wheat and it NOT pass through b'milk to dd? Not that I would, but does gut healing prevent it passing through b'milk? It doesn't does it?

[Annikate]

Originally Posted by Pattyla

I think we are getting die off in dd!!! : I haven't ever thought this before with her.

Of course this means she is nuts : but that is good, right????

We are just hitting her hard with probiotics right now w/o adding anything back to her diet. I'm giving her reuteri 2x a day and lots of kombucha. (not really sure how much). Her reaction is the "I got something I shouldn't" reaction but since I know she isn't getting anything new but those probiotics and they aren't new, just in greater ammounts, I think it is die off.

In general she is in good spirits, just tough at nap time/bedtime. Thankfully dh does bedtime. :

Do you think it's the kombucha killing the yeast? Or do you think it's the retueri? I haven't tried kombucha at all yet for any of us.

[bluets]

Originally Posted by Annikate

QUESTION:
Theoretically, when I am healed completely, will I be able to ingest wheat and it NOT pass through b'milk to dd? Not that I would, but does gut healing prevent it passing through b'milk? It doesn't does it?

You would think so...

I have noticed that even though I feel leaps and bounds better, if I slip in some uncultured dairy (or the weakly cultured kind), ds gets a snotty nose too. So in my case, I'm gonna say that something is still getting through to him. However, he isn't getting the red rashy cheeks that he had before and the snotty nose clears up much faster now than it did before. I would guess that he's getting a pile of my histamines...

[bluets]

Originally Posted by Annikate

Do you think it's the kombucha killing the yeast? Or do you think it's the retueri? I haven't tried kombucha at all yet for any of us.

I bought kombucha and tried it - thinking that I would add it to my repertoire (dh loves tea, so kombucha seemed like the next step). I couldn't even finish drinking the bottle. It's still in my fridge and I keep thinking "oh, I should finish that"... It tasted very similar to apple cider vinegar. Is that what it should taste like? Vile, was the adjective that came to mind first.

[sparkletruck]

Acid/Alkaline - Which one does yeast like? I am soo frustrated at reading the opposite. I just now read that it does not like acid (good bugs produce lactic acid that keeps yeast down), but havent we all discussed taking chlorophyll to alkalinize? :

Also, to piggy-back on a comment FF made about motional readiness, it sounds like what MT said in the 101 thread (also on the subject of acid/alkaline); that your emotions can be acid, or your family, or work, or attitude, and these need to be worked out too for healing to happen. Makes sense to me.

[Annikate]

Originally Posted by saskiasmom

Acid/Alkaline - Which one does yeast like? I am soo frustrated at reading the opposite. I just now read that it does not like acid (good bugs produce lactic acid that keeps yeast down), but havent we all discussed taking chlorophyll to alkalinize? :

Also, to piggy-back on a comment FF made about motional readiness, it sounds like what MT said in the 101 thread (also on the subject of acid/alkaline); that your emotions can be acid, or your family, or work, or attitude, and these need to be worked out too for healing to happen. Makes sense to me.

Alkaline is always better.

[Annikate]

Originally Posted by bluets

You would think so...

I have noticed that even though I feel leaps and bounds better, if I slip in some uncultured dairy (or the weakly cultured kind), ds gets a snotty nose too. So in my case, I'm gonna say that something is still getting through to him. However, he isn't getting the red rashy cheeks that he had before and the snotty nose clears up much faster now than it did before. I would guess that he's getting a pile of my histamines...

So . . . does this mean (in theory) that if one's gut was not damaged at all and in perfect working order, then one could consume just about anything and not worry about it getting into b'milk?

This doesn't really make sense to me. Just *how* do things get into b'milk besides leaky gut?

[Pattyla]

Originally Posted by Annikate

Do you think it's the kombucha killing the yeast? Or do you think it's the retueri? I haven't tried kombucha at all yet for any of us.

I think it is the kombucha but it could be the reuteri. Not really sure but I increased the kombucha first.

[Annikate]

Originally Posted by bluets

I bought kombucha and tried it - thinking that I would add it to my repertoire (dh loves tea, so kombucha seemed like the next step). I couldn't even finish drinking the bottle. It's still in my fridge and I keep thinking "oh, I should finish that"... It tasted very similar to apple cider vinegar. Is that what it should taste like? Vile, was the adjective that came to mind first.

I saw a bunch of different *flavors* today at WF but didn't even look at them. I'm sure they're full of sugars.

[Pattyla]

Originally Posted by bluets

I bought kombucha and tried it - thinking that I would add it to my repertoire (dh loves tea, so kombucha seemed like the next step). I couldn't even finish drinking the bottle. It's still in my fridge and I keep thinking "oh, I should finish that"... It tasted very similar to apple cider vinegar. Is that what it should taste like? Vile, was the adjective that came to mind first.

It does have a bit of that taste but lighter and with fizz. The berry flavored ones are better. I don't mind vinegar though so perhaps I'm not the person to ask. We like it and more importantly DD loves it!

I'm getting a scoby from my neighbor as soon as I can get myself over to her house to get it so I can make my own.

[Pattyla]

Originally Posted by Annikate

I saw a bunch of different *flavors* today at WF but didn't even look at them. I'm sure they're full of sugars.

We get the citrus one and the one with green stuff in it (chlorophyl???) I'm gonna start making it myself though soon.

[moonshine]

I occassionally get this kombucha and do quite like the taste. I started with original, then tried guava and grape. All very yummy. I got an extra original last time to try and start my own, but I ended up drinking it instead. Maybe it is an acquired taste? My kids like it too. In fact, we often argue about who gets to drink it. If only they would dig the water kefir that I am making as much. My grains are just exploding.