Originally Posted by Cinder
So yea, autism pre-dates the seizure medication... I honestly think for him it was genetic...my little brother (ok, not so little at 6'2" and 25 years old) is on the autism spectrum, and my dh has 2 cousins who are autistic...I don't really think it is a coincidence there...That's not to say I don't think it's possible for anti-seizure drugs, or vaccines, or a severe illness, or any other number of things to cause autism, I just think it's not what happened in his case.
So if you think your son’s autism is genetic, why are you are still wondering about the effects of the drugs you were given to stop pre-term labor?
I’m sure you’re aware that tebutaline can increase the risk of brain damage and cognitive deficits, and magnesium sulphate can cause neuronal injury, and you say elsewhere that your son has had sensory issues and seizures since birth, so which of your son’s symptoms of autism are you attributing to genes, and which to the effects of the drugs?
If my 2 year old son couldn't remember words from one month to the next, and was taking Trileptal and Topomax which both list "speech problems" and " memory impairment" amongst side effects *reported in adults and children*, I would question what effect the drugs might be having on my infant son's language acquisition and ability to remember words. "Taste perversion" is also a listed side effect and you describe your son as a picky eater and say that sometimes he won't eat for days. That would also concern me, Cinder.
Of course, based on our family's past experience with the medical profession, we prefer alternative medicine. I already know of kids who’ve been treated homoeopathically for epilepsy and their seizures have lessened in severity and number and, in one case, have completely disappeared. And it seems that one third of epileptic children on the ketogenic diet are completely cured and one third have fewer seizures. As far as I know, anti-seizure medication hasn’t cured one single child and yet doctors will only try the diet as a last resort. I really, really don’t understand that.
When my son was two, he also had apraxia, receptive and expressive language problems, amongst a whole raft of other disorders that he didn’t have before he was brain damaged by vaccines just after his second birthday. His inability to remember words for common objects was the first indication that something had happened to his brain after vaccination.
He has the "Autism" label because of his inability to communicate effectively, because of his unnatural eye-contact, odd mannerisms, and special interests. He talks about his interests at every available opportunity because he is familiar with those subjects and having a real to-and-fro conversation is too difficult for him. His brain can’t process language fast enough and he can’t keep up. His social difficulties are the result of his communication difficulties.
The root of his problem is not something called autism but the way he sees, hears, perceives and experiences the world, and the way he responds to it, and in order to compensate for injury, his brain has had to function in a different way.
Originally Posted by Cinder
For what it's worth my 4 year old dd started getting vaccines slowly at 1 year old and has now had her full DTaP series and MMR series (that's it...) that she should have at this point and is very much not autistic.
Yes, but just because your daughter doesn't have autism, doesn’t mean that she hasn’t been affected by vaccines. You say elsewhere that your daughter has apnoeias, ADHD, and OCD. And I’m sorry to bring it up, Cinder, but I think it should be mentioned on this particular thread. Because....
Over the past 13 years I have heard many pro-vax parents say that their children have been vaccinated and there’s nothing wrong with them. And they conclude that vaccination is safe and doesn’t cause autism. Then very often they say that their children have ADD, ADHD, OCD, ODD, CAPD, SPD, bipolar, SID, speech delay, or other medical problems. Their children might not have a condition as severe as autism but many have mental disorders that either intersect with autism, or are at the very upper end of the continuum. How do these parents know for certain that vaccines were safe for their children and that their brains weren't affected?
I have also heard a number of parents say that their children have autism and they haven’t been vaccinated. And they conclude that vaccines can't cause autism. But from my experience what these parents don’t say is far more important than what they do say. For example, they don’t mention that their child has Fetal Alcohol Syndrome, Tuberous Sclerosis.... or, as in your son's case, a rough start in life and epilepsy from birth.
Anything that can damage the brain, or affect proper brain development or function, could cause symptoms of autism, so people with the same diagnostic label shouldn’t be lumped together as if they are one homogenous group because the wrong conclusions can be drawn:
“Genes are the only cause of autism”
“Vaccines are the only cause of autism.”
“Mercury is the only cause of autism”.
(Then, to make matters worse, there are the aspergers personality types who also have the “Autism” label or identify with the symptoms. )
Autism is a description of behaviours, not an entity in itself, and I think the questions that every parent with a newly diagnosed child should ask are, “Why does my child have these behaviours?”, "What behaviours or physical symptoms does my child have? and, “What can be done about them?”http://www.epilepsyinfo.co.uk/mod.ph...u=10&page_id=5
Alternative therapies for epilepsy
Children treated with Homeopathy
side effects: loss of apetite, memory impairment, speech impairment, unable to sweat, eyes drifting up to left uncontrolled 1 hour after med given. We think the acidosis created by topamax caused his respiratory arrest events.
positive effect: none
side effects: agitation, nystagmus (eyes vibrating and drifting), imbalance, lack of focus
comments: toxic levels reached without seizure control
|Why should this diet be a last resort? I first asked about it when my son was 2 years old - it took me until he was nearly 8 to get him on it. He now has the best quality of life he has ever had. I know that he will always have special needs but the future now looks so much brighter for him, his sister and me - for us as a family.
So please remember Matthews story and the difference the Ketogenic Diet can make to a child's life and if anyone tells you that miracles never happen, please tell them from me, that they are wrong.