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My son...  

post #1 of 12
Thread Starter 
I had an Asperger's thread on here a while back...and now im back looking for more good info on what i feel like doing vs. what is best.

I am flip flopping. I wanted to have my son tested to see if he had "something". Then I didnt. I stll dont. It would be nice to know if he has Asperger's or whatever it is he may have....but what will I do with that information? I refuse to medicate. I am using homeopathy and herbal remedies when he isnt feeling good, like for the terrible anger and tantrums, but I do not agree with giving a pharmaceutical remedy for many reasons. Number one, side effects. Number two, children should not be on meds IMO, unless it is a condition that is really debilitating that child, or he clearly cannot function. I dont want a perfectly good child ruined on meds. I know way too many kids who are pumped full of medications that I dont believe they need. What they need is support, effort, patience, time, understanding and a parent, teacher, caregiver etc who has the willingness to try to understand their needs and will do anything to work with them. I am a mom of 4, so I know all about not having the time to do alot. But I have to, and I do. I was a homeschooling mamma until last year my children expressed interest at going to school. Since I am all about child led learning to a degree, I decided they could go since it is a small school and very much unlike the other schools around here. Anyway....

In school, my son is doing excellent. He is scoring (and i LOATHE standardized testing, but its what we have to endure if he wants to go to school)above and beyond what his classmates are....except in one little area. He is not very verbal. He does not like to talk much, except to friends. When he retells a story, he cannot tell all the details and prove to them that he knows it. And I know for a fact he knows the material...he has come home and told me all about it. Maybe i can somehow get a little tape recorder and record it for them. But i get the feeling the school wont think its good enough. So his teacher, who is absolutely wonderful, loves my son. She knows how smart he is and makes sure she calls on him frequently because she knows he will not raise his hand and offer an answer. She takes special time with him to go over stories they read so that she knows he's retained the information. This takes a great deal of time, but she does it. However, she said when it comes to the testing, she wont be there to help him through. She wont be there to ask him questions from the chapters...he will be expected to write a book report on his own. This i know he cannot do.

She suggested we get him tested so they know how to better work with him. At first i agreed. Now that I am thinking and thinking about it...why cant they just accept my son the way he is and work better with him based on his nature? Dont get me wrong, the teacher thinks hes absolutely wonderful. But i think shes looking for a diagnosis so she knows for sure. Of course if he is tested, they will find something to label him as. It will be something lol. Then eventually they will suggest medicating him because they dont have the time to educate him according to his needs, and theres not enough money in the budget for special needs blah blah blah. Then I pull him out of school and continue on where I left off with homeschooling.

My homeopath says he will treat my son according to his symptoms and body make up and energies...all that stuff, which i totally agree with. I want my son to not be so angry and not fly off the handle when he is home. Usually it is at home---almost never anywhere else. He never has had a problem in school with other kids or anger...he's just really really shy. He does have facial tics, or movements that he doesnt seem to notice, and he does them every 5-18 seconds. His legs are tired, he says, or sometimes they hurt him. He is not really bothered by them though.

Do I get him tested? What would I do with that info if I did? What good would it do? I dont want the school to label my child. i want him accept and educated as he is. Maybe i should pull him out and homeschool, which i know he would be sad/glad about. He would be sad because he would miss all of his friends. and socialization is important with a kid like my son. I want to let him be...but i know the teacher said she didnt want this little thing to hold him back....i dont want him to repeat 3rd grade if his other grades are off the charts...it doesnt make sense, but she said in the end it could happen. Anyone else going through similar? anywhere else I could bump this thread that may be more appropriate? Thanks!
post #2 of 12
Yes, I would get him tested. I work in a progressive PS program for children with Asperger's. We would not be able to do what we do WITHOUT the label for funding reasons. We are ale to do integrated OT/PT/speech, formal and informal social skills training, etc. Teachers do not go to school to learn how to DX children; they learn how to work with a child when they know the child's needs. Yes, a label can help tremendously with this. It instantly gives you and the school access to resources and things to try with the child.

Labeling and medication are two separate issues entirely. The school cannot make you medicate your child. If they ask you to, all you need to say is that is a private conversation between you and your doctor. That's your legal right.

When a child is your son's age and is on the spectrum, it is SO Important that people know this and know how to work with it. Every adult that comes into contact with him should know this and research it. It makes and unbelieavable difference in the life of the child.
post #3 of 12
I would absolutely have him tested. The testing could lead to more effective ways for him to learn, point the way to additional supports he could not otherwise get, and possibly increase the overall quality of his life and his confidence as he learns ways to deal with situations that he is having trouble with. The testing might show his teacher other ways for him to demonstrate his knowledge other than verbally, or ways to word questions to better help him express himself verbally.

You don't have to medicate. Anyways, since behavioral issues aren't problematic at school, there would be no sense in them suggesting medication. Its completely up to you.
post #4 of 12
Thread Starter 
Thanks! I always know where to come for great info! I would like to have him tested....i just feel so funny about it. I know it would help a great deal if i did...then at least we would know how to deal with his problems. I just wonder why we cant accept him without the diagnosis? Then i guess it would mean that he has a learning disability rather than behavioral? hmmm. I have alot of thinking to do! Thanks so much!
post #5 of 12
I do not think that you should have him tested. Labels are not good for children. His learning is advanced and he is just being himself. Keep in mind that he is a young boy and boys tend to go over line a bit more than girls. I believe that you should continue on with the naturopath and keep giving lots of love and in time he will find himself. He would of been showing signs of asburgers for allot longer if there was an issue, Especiallly in the early learning years. You are a MAGNIFICENT mamma abd you are doing all og the "right" things. testing may also give him a complex.
keep on doing what you are doingf mamma
post #6 of 12
I think you should definitely have him tested. Without a label, he will not get the services he may need. Especially if he has Asperger's Syndrome he may need OT, PT, etc. The labelling is not something he even needs to know about, it's just for funding reasons to get him the help he needs.
post #7 of 12
Thread Starter 
But why cant we just accept my son as is and work with him based on his nature? Maybe ill pull him out of PS to homeschool again....this has seriously been an option, that way i can educate him better because ill just educate him according to HIS needs, not the needs of the school or state.
post #8 of 12
Thread Starter 
He does do OT btw, without a diagnosis. They even told me that if they did get a Dx they cant guarantee they will be able to do special needs with him...which isnt what he needs anyway. But the teacher said it will give her a better idea of how to teach him...but i think shes doing fine already without a Dx. I just dont know....i dont want to have him endure another test. And im not the type of mom who doesnt tell her children why they are being tested and the results. I dont hide anything from my kids....thats why i dont know if i want to test because i will tell them why, and he will ask.
post #9 of 12
Quote:
Originally Posted by doulajewla View Post
But why cant we just accept my son as is and work with him based on his nature? Maybe ill pull him out of PS to homeschool again....this has seriously been an option, that way i can educate him better because ill just educate him according to HIS needs, not the needs of the school or state.
i don't understand why getting him tested and learning more about how he operates is failing to accept him for who he is and work with him based on his nature????

i find it's the opposite-- the more I know from diagnostic tests, the more I find out about how the child thinks and how I can help. For example, just from looking at a child... I don't know the balance between his expressive and receptive language. I don't know his processing speed, I don't know his exact best learning styles, I don't know whether he needs me to speed up or break down instruction. I don't know the exact number of multi-step directions he can handle best. Tests can give us REALLY useful information.

there is nothing to fear from a test. the school cannot force you into anything. you are the boss. you can get him re-tested privately if you disagree. all it does is give you better info to understand how to educate him academically and socially. you can't know for sure otherwise how much is behavioral, how much is social, how much is academic.

if you find out more, you can research what options are in your area. I really don't understand the fear of labels. it really frustrates me when i NEED this information and can't get it for this reason. the child falls farther behind while we're all working our butts off trying to figure out how best to help. It's so much easier when we have a starting point and can plan some strategies.

For example, from your above posts I would guess some extra OT would help, possibly speech for social communication, and informal and formal social skills work. (like RDI, see www.rdiconnect.com). When a parent or teacher notices a child needs help, it's our duty to get that help. :
post #10 of 12
Thread Starter 
well, i honestly believe that while its good to sometimes get a diagnoses to help professionals use language and labels to describe a child, my son's counselor and I spoke today and he agrees with me. He doesnt see a huge need to get a Dx. We are just going to work with the school and offer suggestions to the teacher about what my son's needs are...not because something is "wrong" with him...but because he is Jared. I dont believe there is anything wrong with my son...i believe this is who he is...he isnt Asperger's...he's Jared. He may have a tiny tiny trait of Asperger's, but he is not it.

I dont fear labels or testing. I despise them. But i came here to find out other opinions trying to see what other info is out there, and come to conclusions on my own....im still not done researching, and I will check out that website, btw His teacher, as of today feels he is progressing well. So i dont feel a need to rush into a Dx right now. But if anyone has anymore good references or websites, please send them my way! I love information and will welcome any and all knowledge, even if I dont agree. Its good to do that so I can see other points of view...Im not the only one living on Earth lol! Thanks so much again!
post #11 of 12
I just wanted to say I agree with Altair. Having him tested to see if there is a name for his situation. a name to something everyone may be able to learn more about is not saying you dont accept him for who he is. I think it has nothing to do with accepting him. I think it has to do with accepting that he may have a difficulty, a real one. and could be helpful in his future, if the desire comes to have special help for him.

I feel it could even make it easier for him when he gets older and has to do things on his own. Rather than having to struggle with it only to have to go through some hassle to get a diagnosis later. Just my thoughts
post #12 of 12
I work with children on the autism spectrum, including Asperger's, PPD, etc. and I only know of one of them who is on medication, and that's because he has SEVERE mood swings that prevent him from functioning.

I have never heard any school personnel or agency personnel suggest that a child diagnosed as on the autism spectrum be put on medication. What I have heard is how much the various testing helps to pinpoint what a child's specific needs are, and allows him to receive an IEP (Individualized education plan), which is legal document requiring the school system to do what's best for him. It allows him to receive more help if he needs it, and less if he doesn't. And it plans for the later years in school, which will get harder. Plus, just because you have a great teacher now doesn't mean that you will in the future, and with a plan in place for his needs, newer teachers who aren't as experienced, will have guidance in helping him learn and socialize in the best way possible.

I'm not for medicating kids at all. But I don't see how having him tested would have anything to do with that. Right now, the school is not mandated to provide him with anything more than another child would. But in the future, he may need more help than a regular teacher is capable or willing to do. And with an IEP in place, the school must make sure that it happens anyway.
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