I haven't been here for awhile on this thread, but Chinese Pistache pointed me this way when I asked about the blood titre allergy test (not the RAST-- the other one that naturopaths use). To make a very LONG story short, this is for my daughter Nitara. She had a feeding tube placed at 3 mos old after GERD and lack of appetite caused her to be FTT. She has spent most of her life on the feeding tube, vomiting, in a lot of discomfort, nausea, etc. Because of the tube she is a big girl, and she is showing a lot of courage about weaning off of it.
We got a new GI for her last month, one who has a better rep than her old one. Within 2 weeks of seeing her Nitara had a biopsy and endscopy to check on her GERD and other issues. She was dx with E.E.
. A couple of mos previous she had a skin test that showed some food allergies, but the GI said that E.E. cells were not the same as ones that would react on a skin test. The only way to know what is causing the EE is to
(a) put her on an elemental formula via gtube for 3 mos until it clears up, then introduce foods one at a time.
(b) start to eliminate foods and see if E.E. gets better.
Obviously, b is a better choice.
The way to know if the E.E. is better or worse is through biopsy. Obviously not ideal. Her GI said to start with dairy elimination, in addition to the 6 things she tested + for on the skin test. If it's not the dairy, next to take out is soy, and so on.
In addition to the GERD and GI issues, she has raspy breathing, nodules on her vocal cords, lack of a true appetite, and occasional skin rashes. She has a history of double ear infections and has ear tubes. She also has tested negative for Celiacs (twice) by biopsy. The EE points strictly to food allergies.
I really want to know more about this allergy blood test. Why won't my allergist recommend it? Why doesn't the GI know about it? It seems like many people have had great success with it, so why is it not being used by medical doctors?
We can save money to get this test for our daughter but I want to make sure it's truly accurate and will be worth the money. We are currently paying off medical-related debt and not in a hurry to spend more unless it's worth it.