Anyone's baby need open heart surgery?

[cancat]

(Xpost to Life with a Babe)

I'm not sure exactly where to post this, or whether there's a tribe out there in finding your tribe...but I don't have a ton of time to search, so maybe you guys could help me out?

dd2 was born with a hole in her heart that will require surgery to close sometime in the next few months. In addition to this, she will probably need to be put on a fortified breastmilk sometime before that, and maybe a G-tube before the surgery - dd1 was (is!) exclusively breastfeed, so as you can expect, I'm having a really hard time with this aspect of the whole thing, since I'd like this not to prematurely end our BF relationship.

So, is there anywhere on MDC (or in the "outside world") where I can find other mamas in the same boat?

[RootSnort]

There's another mom I work with whose baby had two have two heart surgeries for hypoplastic left heart, one at a few days of life, and again at about 6 months. She pumped and fed via an NG tube, I think she added something the milk, but I think it was always her milk. Te baby has done very well. I wish you great success, you can do it!