or Connect
Mothering › Mothering Forums › Baby › Life With a Baby › NICU & Preemie Parenting › My son is dying.
New Posts  All Forums:Forum Nav:

My son is dying.

post #1 of 57
Thread Starter 
He was just diagnosed with Hypoplastic Left Heart Syndrome. He is one week old today and was born at twenty seven weeks. The left ventricle is completely missing, but he isn't a good candidate for a transplant (which would be the best option) because of his other health problems. Since his heart keeps stopping, they want to keep him on life support (so his heart is forced to beat) until he's either well enough to undergo the surgery or until his brain ceases to function. Please keep Simon in your thoughts and really push for his surgery to be performed!

Noel, to his credit, is doing wonderfully. He's gained to two pounds and is 14 inches and a little bit. He's opened his eyes once, and he's on 55% oxygen usually. It went up to 70 yesterday when he was in distress, but he's down to 60 again today. They predict that he will be out of the hospital by his due date (March 16) if not sooner.
post #2 of 57
I am so, so, sorry! May you find all the strength you need.

Be strong Simon and Noel. Miracles really do happen.
post #3 of 57
I am so sorry for what you're going through.

Our firstborn, Austin, was born at 29wks and w/a heart defect. He lived 5 days. I know how difficult this time is. Feel free to pm me if you'd like to talk. Again I am so sorry.
post #4 of 57
I am keeping you and your little guy in my thoughts!
Take care of yourself, too.
post #5 of 57
I'll be keeping your boys in my thoughts.
post #6 of 57
I am so sorry.
post #7 of 57
Keeping him in our thoughts and prayers. Hang in there, Simon.
post #8 of 57


and a prayer for Simon
post #9 of 57
Oh, momma... won't cut it...but I offer them anyway along with all the prayers I can give.
post #10 of 57
:

I'm so sorry. I'm praying for your family. Be strong baby.
post #11 of 57
:

Hang in there mama! Try to stay positive and take good care of yourself during this hard, hard time. You will be in my prayers!
post #12 of 57


Wishing you strength and peace during this difficult time...
post #13 of 57
I'm so sorry. That is a really tough diagnosis, even in a FT baby. I wish I could take some of your pain for you, mama. I will pray extra hard for baby Simon.
post #14 of 57
You are all in my thoughts.
post #15 of 57
I am so, so very sorry.
post #16 of 57
I am so sorry. Sending vibes your/his way for a miraculous recovery.
post #17 of 57


You are all in my prayers!
post #18 of 57
Thinking of you and sending your family peaceful wishes.
post #19 of 57
I am so sorry that your son is so sick. I pray for wisdom for both you and your partner and his doctors and that he remains to be stable.

Kim
post #20 of 57
I'm thinking of you, mama.
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: NICU & Preemie Parenting
Mothering › Mothering Forums › Baby › Life With a Baby › NICU & Preemie Parenting › My son is dying.