I'm so sorry. HLHS is a rough diagnosis! And he's a preemie. Where are you? We have a cardiac surgeon at our hospital that operates on preemies. He's fearless and tireless. He's been featured on CNN. PM me if you want about it.
My heart goes out to you. Take care of yourself.
Oh mama I'm so sorry to hear about you son. He will be in my thoughts and prayers. I hope he is able to hold on until his surgery. And I'm very glad to hear that your other little one is doing well. I hope they are both able to come home. Keep us updated.