I've pm'd both JaneS and firefaery about this. JaneS suggested I post here
I don't know if you've stumbled upon threads explaining our situation, but we are at the point where we're not sure what to do anymore. Dh desperately wants to put dd on a hypoallergenic formula so that I can eat again. I am going to include as much information as possible in my explanation about what's been going on. I'm wondering about Leaky Gut issues in myself, but don't know how to find out if that's exactly what's going on. There is so much information out there that it's overwhelming, and with a high-needs baby who can never be put down (I can't even sit down with her...she needs to be walked around CONSTANTLY!) I can't do too much researching at once. Basically, if you could let me know your opinions on all of this, that would be helpful. I'm going to include as much information about myself as I can, incase it makes a difference:
Let's start back to when I was a teenager...I had moderate acne and was put on antibiotics for about 2 years. They didn't help. Then I developed depression and an eating disorder and was hospitalized for anorexia for a year. I'm since fully recovered, but pretty much starved myself and ate crap (all fat free, low cal food) for about 5 years. After that, I started eating a vegetarian (mostly vegan) diet. Dairy began bothering me, so I didn't eat it anymore, was never a fan of meat, didn't eat eggs, so I was pretty much vegan for a couple of years. After starting to eat healthy foods and really loving the whole food diet I was on, my body seemed to thrive. I also started acupuncture to treat my depression and insomnia. I rarely got sick, looked great, felt good and had lots of energy, but had horrible migraines. During this time I was on birth control for a year before TTC dd. Then I get pregnant (was off the pill for 4 months) and my health deteriorates. After I stopped the pill, I started getting acne again, but it was mild. Once pregnant, the acne was HORRIBLE. Big welts all over my face, back, chest, upper arms...it was insane! It is still bad, although gone from my upper arms and chest. Around the 5th month, the eczema started on my hands and progressively got worse. My midwife (also a ND) suggested I be tested for allergies. (IgG) A bunch of things came back as positive, although cow's milk was the only really bad one. I was supposed to do a rotation diet, but didn't get any explanation or help with that and didn't know anything about it, so I just eliminated everything it said to: wheat/gluten/soy/dairy/yeast and certain fruits and spices. It was hard. I wasn't eating much and was probably lacking nutrients in many areas. This was most likely a big mistake while pregnant...I now realize that. Well, the acne got slightly better, but the eczema continued getting worse and worse. It eventually got to the point where I would wake up at night itching and have it bleeding by morning. I wouldn't be able to sleep because the itching was so intense, so I would lay awake and cry
So dd was born in September. She is high-needs and very fussy, but she would also have these bouts of screaming like she was in incredible pain. She has had horrible mucousy poops/runny/STINKY, etc. No visible skin rashes except the cradle cap. She has horrible gas, especially at night which keeps us up for about 4-5 hours at a time. She doesn't nap (20 minutes about 3 times a day...that is it!) Wakes up every 45 minutes to an hour to eat at night. We met with a kinesiologist who said dd was extremely sensitive and couldn't tolerate many things in my diet (keep in mind I was still on the restricted diet!). So I was down to organic chicken, carrots, kale, sunflower seed butter, basmati rice, yukon gold potatoes and peas. That's it. For 4 months I have been eating that. She is getting worse too. I stopped eating the chicken that was okay with her, and she slept great two nights in a row. I am so limited on protein options right now. I had salmon the past two nights and she was okay with that, but I don't want to eat salmon every night as she will grow intolerant to that too.
I had some blood tests done to see how my body was coping and turns out my liver is actually starting to produce fat for my body. My cholesterol was way too low as well. Surprisingly, my iron was okay.
My eczema is getting worse and worse and spreading down my hands. They have me on cod liver oil, a digestive enzyme, EPA and DHA and probiotics. I have been on probiotics for about 3 years now, BTW. Dd is now taking a neonate probiotic too.
So, seeing as how I have not slept more than 4 hours a night total since her birth, the days are horrible, and she is steadily getting worse and growing intolerant to the little variety in my diet, I have no clue what to do. I don't want to go to formula...I feel that will be bad for us both. But my hair is falling out in clumps, I am weak, tired and hungry. I don't know what else to do. I am starving and losing weight rapidly. I get barely 1,000 calories a day. FYI: CO gives her reflux. My only fat is olive oil, but I over do that everyday so I wonder if she's now reacting to that too
I've read about the SCD and such, but how can I eat foods she reacts to? I don't know what to do!
If any of you have suggestions or advice, please share! We are at the end of our ropes and I fear that either dd or I will suffer greatly from what we are doing now.
I've looked at the cheat sheat, but there is just so much information and our situation seems to be kind of unqiue (can't do a rotation diet, etc.) that I don't know what to do or where to start.