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I think I'm losing my dad.  

post #1 of 12
Thread Starter 
Hello,
I am not actually a mama (though I plan to be one day). However, I have been a member of Mothering.com for a few years now, and was wondering if any of you fabulous women have any words of wisedom for me in this situation:

I am 20 years old, my father is about to turn 78 (yes, quite an age gap), and I am his power of attorney. He has been experiencing increasing health problems for years now, and had a big stroke sometime on Monday (I do not live with him, and no one found him untill Tuesday). He is in the hospital now, he can breathe on his own, move his good arm and has some control over his legs. He can not talk or move his affected arm, and he has trouble swallowing. The vast majority of the time I think he understands me when I speak to him.

The doctors say that he has a chance of recovering speech and swallowing and possibly his legs... probably not his arm... sounds like good news... here's the kicker:
My father would not like to be kept alive if he was not able to use his mind, or be useful or was a vegitable or anything like that, no being kept alive simply to be kept alive. He had a feeding tube that was inserted through his nose and into his stomach in order to give him the strength to recover. The day that it was inserted he was much more lively, awake and responsive. However, this morning he pulled it out. Dad has been seeming to have a high level of cognative function, and I find it hard to belive that he pulled the tube out because it was uncomfortable (which they are) or because he was confused about it, however both are possibilities.By the time I to got to visit him in the afternoon he was very unresponsive, staring off into space and such. By the time I got back there this evening he was looked like he was seeing things (really staring in one spot) and went through times when we could not elicit any reaction from him.

When I ask dad to squeeze my hand, he will squeeze it, however he will not answer yes or no questions by squeezing it. Instead the tries to speak, however, his speech is not understandable. I have explained to him a few times that I can not understand him, and that I need him to answer yes or no questions about his wishes, and he does not do it. Last time I asked him he gave me a strange sort of smile and left it at that. I don't know what to do. Do we put a feeding tube in (the abdominal kind... more comfortable and can be left in for more than 3 days... unlike the kind that goes through your nose) and give him a chance at recovery that he may not want? Do we leave him alone and block all chances at recovery? Matters are further complicated by the fact that people often become deeply depressed after having a stroke and if he does not want to live, how much of that is caused by post-stroke depression?

On top of all that responsibility... I am faced with losing my dad...Help, any words of wisedom?
post #2 of 12
Are you able to visit him and talk to him? Is he capable of any kind of communication so you could ask him? I don't have any expert advice, but I couldn't read and not post. I lost my Dad when I was 19 and it was a really difficult time. Hugs to you!
post #3 of 12
I am so sorry that you are going through this, I lost my dad on December 1st. He had many complications and my mom made the choice not to continue additional treatment. It was very hard because that was not what I would have done. It is so hard to know what to do, I do not have any advice but a hug and to say I am so sorry, it is so hard.
post #4 of 12
Oh honey. I am so very sorry that you are faced with these choices. My Mom had two strokes that she was able to recover from. Her first was when I was 19. We were lucky that she knew the symptoms and got to the hospital fast. My Mom also did not want to be kept alive just to be "alive". We went threw a lot of hard choices this past fall when she got very ill (well my Mom has been ill for the past 10 years, but it got worse) and we had to start really thinking about what my Mom would want. I guess we were blessed that my Mom passed the day before we planned to stop her dialysis treatments. My Mom was begging to die. It was still a really hard choice to know what was right to do.

This is where you have to trust yourself. You have to trust your intuition. When your spending time with your Dad talk with him even if his responses don't always make sense. My Mom didn't always make sense.

Talk to his Doctors and ask them their opinions. Do you have any family at all that can help you in your decisions? I'm not sure if anything I said helps. Please come and update us and maybe we can try to help more.

feel free to vent your feelings. I'm so sorry.
post #5 of 12
oh, dear Annalc,
you are so young to be losing your dad. I am an older mom, I was 43 when I had my son..so my heart breaks a bit when I read your post.

I lost my own father 18 months ago. He was 77. It was hard and painful and at the same time liberating.. it is hard to explain but I understand a lot of your situation. I also know some of the legal issues.. sigh.

I'm going to send another MDC member over here..who could possibly add some wisdom from another perspective.

HUGS!
post #6 of 12
Thread Starter 
thank you all so much for your support. Dad seemed perkier today, so we have decided to go ahead with an abdominal feeding tube and at least give him a chance to recover... even if it is just enough for him to tell us that he doesnt want it anymore .
For now we're taking it day by day... what more can ya really do?
post #7 of 12
Anna I have been thinking about you and your Father. I hope your Dad continues his upswing in health. Even though he might not always make sense right now, cherish this time. I wish I had done more of that.

My prayers are with you and your family. Plus always remember to take
care of you.
post #8 of 12
hugs and love to you dear. day by day is all we can ever do, you are right.
follow your instincts and let your connection to your dad lead you.
you are strong and supported.
post #9 of 12
Quote:
Originally Posted by janebug View Post
hugs and love to you dear. day by day is all we can ever do, you are right.
follow your instincts and let your connection to your dad lead you.
you are strong and supported.
:

Anna I wondered how you and your father are holding up.
post #10 of 12
Couldn't read and not post as you have some things in common with me. I lost my father while I was pregnant with my first born. I was 26, he was 52, but he had advanced colo-rectal cancer and we went through the back and forth on his health for a long time (11 years in fact) before he finally passed. I'm hoping your father is doing better. I'll be thinking of you... G-d Bless...
post #11 of 12
Oh, sweetie....I just lost my dad, so it's still very raw for me. I hope you're doing okay. It's so, so hard.
post #12 of 12
Thread Starter 
Hey Everyone,
I have been up at college and comming down about every other weekend, when I am not home my mom and step dad have been dealing with cleaning out my dad's apartment and visiting him at the nursing home. My step dad has also been helping me to organise the masses of paper work we have to do and hoops we have to jump through. I don't know how I'd do it without them. As for my dad, he's about the same, if not a little less responsive. It's hard to tell, some days he seems to be pretty with it, others he's just.. gone.

Today he was very tired (they drove him to a near-by town for speech therapy) and didnt seem to recognise me. Also, his pupils were very large. He'll often drift off into his own world or fall asleep when you are mid-sentence talking to him, and frequently looks like he is seeing things. Other moments he's there, looking at you, laughing at jokes, trying to talk. Has anyone else had a similar experience with a stroke stufferer? Did they ever get better from that state? It's been about a month now and he has not improved much, if at all, even with rehab and physical therapy.

Thank you all again for your support, kind words and advice, it means a lot to me.
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Mothering › Forums › Natural Family Living › Grief and Loss › I think I'm losing my dad.