Madrone, thanks for the thorough reply! Yes, I have been in touch with the NMSS chapter in Albuquerque. They will be sending the course you talked about. I think I'll ask them about the information for grade-schoolers. Ds understands a whole lot, if it's delivered properly. And he *loves* books, especially if they have good pictures and lots of words. And books are a good way to repeat things, which he thrives on (I think all kids his age do). Dr. Sears' potty book is so good, maybe he could write a book for kids whose parents are sick.
Things are getting better for him. It's just slow, and being a Mama, I want things to be better for him *now*. I've been cuddling and reading to him a lot lately, which does help things. And dh returned to work this week, so ds feels a little more like things are back to normal. A neighbor girl is coming in every day to help me with him and with cooking. That isn't exactly normal around here, but he just adores her, so it's OK with him. We're trying to restore normalcy as much as possible for him.
I don't know if we'll participate much in the MSS activities. We live 2 hrs. from Albuquerque. But it is nice to have them as a source of info. We'll keep in mind the house cleaning service. I didn't see anything in their literature about that, but who knows. I would be very surprised if they would provide that for us out here, though. And right now it's not an issue. Like I said, we've got a girl coming in every day. And our house is pretty small for now, so there isn't much cleaning, and dh can keep up with what cleaning there is. (I'm soooo glad we hadn't started the addition before now!! Here we thought we were moving too slow. But we'd just be going crazy if there were construction to keep up with, too.)
the Sunshine, as you know, I don't have much experience w/ MS dx, but I have way too much experience with drs.
: , so I'd like to respond to your post. First of all, find another dr. Any dr. who ignores real symptoms and suggests antidepressants when you are not depressed isn't going to be able to help you, and almost surely will blow you off if you ask for an MRI (besides, my limited understanding is that it needs to be a neurologist who orders an MRI, but I could be wrong). Or, better yet, find a good homeopath and a good accupuncurist. Or check out Dr. Huggins's website
about amalgam removal. Also, he has a book called Solving the MS Mystery. I'm reading it now.
|What I'm curious about is, a couple of posters here said their dh got diagnosed immediately after having symptoms, and the women say they were diagnosed after years of symptoms. So what does this say about our medical establishment?
I know of men who are treated as if their crazy (with a different dx, but still, something very real). I also know of women who were dx with MS very early on. I'm sure that more women than men are either misdiagnosed or treated as crazy than are men, but that treatment isn't reserved for women. And some women recieve prompt treatment. I think it partly depends on the exact symptoms. For example, one woman I heard of had tingling around her mouth, which, as I understand it, is a classic MS symptom. Some other, more vague symptoms may take awhile.
|And does this harm the women who are not given any treatment for years?
Well, when I asked the neurologist this question, as it related to me, he said no. He said that the drugs that they are using now are relatively new, and if I'd been dx properly all those yrs. ago, all they would have been able to do for me is to pat me on the hand and say how sorry they were. Also, from my point of view, it matters even less, because I think that alternative medicine is much better at treating this kind of thing, and it rarely matters what the dx is in alternative medicine. I truly believe that it's because of my homeopath, accupuncturist, the amalgam removal, and my diet and lifestyle that I was doing so well (and my health was really improving before this). The neurologist said that the past was the best indicator for the future, and because I was doing so well all these yrs., he feels that the future bodes well for me. My response to that is that I'd better keep doing all those things or the future won't bode so well for me. But that's my own take on things.
Hope some of this helps. I'm sure others will have their own take things.