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Fluff Factory auctions to support 'Autism Speaks.' Meh.

post #1 of 54
Thread Starter 
I'm not an Autism Speaks fan. Specifically, I don't care for their video, Autism Every Day.

Fluff Factory

Don't Speak For Me explains why Autism Every Day is controversial and disliked by many.
post #2 of 54
Controversial or not, I am glad that money is being raised for autism research. God knows we need it.
post #3 of 54
Thread Starter 
I dunno. I think it's like a group that is funding HIV research... while also funding homosexual 'deprogramming' research.
post #4 of 54
Quote:
Originally Posted by pb_and_j View Post
Controversial or not, I am glad that money is being raised for autism research. God knows we need it.

Have you watched the video? It's a bunch of mothers complaining about how hard their life is and how awful autism is. It shows nothing positive or hopeful at all. One mother actually says she would've killed herself and her daughter with autism if she didn't have a "normal" child who needed her.
post #5 of 54
Well, I hardly say that a mom who says she contemplated driving off a bridge is saying that

Quote:
the notion of murder being an acceptable response to disability
More that the mom probably needs more help and support. Geez, Brooke Sheilds said that in reference to her PPD and no one is saying that she advocates it as a standard rite of passage in bringing home a new baby. :

Yeah, that video was probably staged some, but I get so tired of people thinking that having Aspergers means my son is just a little quirky and will grow up to be Bill Gates. (and all those bad behaviors they see are merely due to a lack of discipline...) Only those really close to us (and his teachers) understand the daily struggles of dealing with the tantrums, rages, fights and feeling of fristration and desparation. The media sure does not do a good job of showing the real sides of ASD either. So this video just went too far in the other direction.

But everyone is entitled to their opinion. And more money for research is probably a good thing.
post #6 of 54
I have to say that I wholeheartedly support Autism Speaks (despite a video that some may disagree with).

My sister's school receives funding from Austism Speaks. It is the only public school in NYC devoted to teaching children with autism.

I hope, too, that my DH may benefit from Autism Speaks' scientific funding. He is applying for a grant from them to do translational research.

As soon as I figure out how the flufffactory auction works, I will be supporting this charity. (even more so if my pg sticks -- I'll be able to buy dipes!)
post #7 of 54
That video is very misleading..I saw it when my son was newly diagnosed and it scared the piss out of me for days. I was truly freaked out that I was going to turn into a horrible mother and not love and adore my boy because he is "harder" to raise than other children.

I support anything that helps fund more research and awareness about ASD, we need more of that than anything, but I really don't support scaring the living piss out of parents of autistic kids. Elijah is a delightful little boy, as as we learn more about him and what he goes through, we're able to cope a little better with things every day. I don't think he's had a meltdown in weeks thanks to better awareness and therapies, and biomedical stuff. but when he does, it's not a hardship to deal with it.

All I'm sayin' is..that video truly freaked me out..and I did not need that..I needed support..I needed to hear that all ASD kids are like all NT kids in that they are individuals.

That is all.
post #8 of 54
Quote:
Originally Posted by mimim View Post
Have you watched the video? It's a bunch of mothers complaining about how hard their life is and how awful autism is. It shows nothing positive or hopeful at all. One mother actually says she would've killed herself and her daughter with autism if she didn't have a "normal" child who needed her.
I watched part of it. I'm not saying one thing or another about the video specifically, I am saying that I am glad that more money is going to an organization that supports finding the cause of autism and helping ppl w/ autism to have better lives.

We've all been to places w/ autism that we are ashamed of and do not want to go back to. I'm sure we've all been in tears on many occassions w/ our kids. I'm sure we have all wanted to just run away or give up. I think taking away support from an organization that is trying to HELP our kids is not really going to help anyone.

I have to admit to being a little annoyed that this is coming to light a week before the auctions too. I pushed hard for an autism charity this time... mamas we could raise thousands of dollars for autism research!!! Let's look at the good in this charity rather than one controversial video that was trying to help our kids.
post #9 of 54
Thread Starter 
Quote:
Originally Posted by pb_and_j
I have to admit to being a little annoyed that this is coming to light a week before the auctions too. I pushed hard for an autism charity this time... mamas we could raise thousands of dollars for autism research!!! Let's look at the good in this charity rather than one controversial video that was trying to help our kids.
I still can't get behind it. Their 'one controversial video' is how they want to be perceived and how they perceive autism. I don't trust how they will use those thousands of dollars. Maybe to make more skewed and dishonest videos? Who knows?



I usually promote Fluff Factory things. I can't this time.



And I'm also sorry Fluff Factory didn't learn this earlier. It's been a reaction since the film was released, and hardly unknown. Pity.
post #10 of 54
Wow Phoebe
post #11 of 54
Thread Starter 
It makes me feel sad too Julie
post #12 of 54
HUGS julie.

the article i read about the movie said that they told parents not to dress up, and not to do their hair and not to bring their therapists in. maybe for those parents those are REAL days when they don't have help. what might be one's reality might be "exaggerated" to another. to say that one's reality is a lie is hurtful too. maybe something was taken to the extreme, but maybe those moms felt they could be honest because it was to an audience that they share something with?? i don't know.

i do know that i'm not going to assume that it was made up and that whatever money we raise will go towards more made up movies or made up information. raising this money means a lot to a lot of people, and i really want to be able to help in any way, shape, or form.

i hope that others can see that we are trying to raise money for autism research, pure and simple.
post #13 of 54
Quote:
Originally Posted by danaalex View Post
the article i read about the movie said that they told parents not to dress up, and not to do their hair and not to bring their therapists in. maybe for those parents those are REAL days when they don't have help. .

I think they were trying to get the parents to show real life, not just some dressed up version of their day. I dont do my hair, wear makeup and who the heck are these therapists that come help out? Therapy for us was lugging 2 kids across town and trying to occupy a toddler in a waiting room for an hour. Certainly not helpful. And for those of you who have never had desolate thoughts...(and mine center more around me running away, not hurting anyone) good for you. I have been willing to sell my soul to the devil himself on many occassion if he would just take away my sons aggression. Quirky, I can handle. Socially awkward, I can work with. Pragmatic speech delays...covered. Throwing a random toddler off a moving ride at Chuck E Cheese for no reason and having to face said toddlers angry mother who followed me out to the parking lot while I am crying and yelling at my son...thats reality for me.
post #14 of 54
(((Jenn))) The aggression sucks. We also have had periods of compulsively hitting, crashing into or biting people--it's not really aggression because it's more that he gets the idea in his head and has to do it, there's no anger involved.

I'm actually not in favor of the video but wanted to offer hugs on the personal experience front!

Sherri
post #15 of 54
Quote:
I have been willing to sell my soul to the devil himself on many occassion if he would just take away my sons aggression. Quirky, I can handle. Socially awkward, I can work with. Pragmatic speech delays...covered. Throwing a random toddler off a moving ride at Chuck E Cheese for no reason and having to face said toddlers angry mother who followed me out to the parking lot while I am crying and yelling at my son...thats reality for me.
I could not agree with you more.
post #16 of 54
I have a son with Aspergers. I feel you. How old are your kids? My son is now almost 11 and with gf cf we get through the day good. There are still times when I want to pull out my hair. i homeschool now and it has taken alot of the pressure off. He feels safe with me and not at school. He still argues alot but has never been agressive. He used to be sooo scared to the point of freeking of change of routein, now hes not scared just argues about it.Used to hide under desks in closets stand up and start barking in class, Wouldnt try new clothes and was truly just strange. Now hes mostlly just strange but I wouldnt have it any other way. Like alot of kids with aspergers he is insanely smart......but I still worry about his future. He still has social issues, but gets along fabulously with older people. His obsessive behaviour worries me though........But I remember the everyday fight thing...living in survival mode!!
post #17 of 54
Quote:
Originally Posted by mimim View Post
Have you watched the video? It's a bunch of mothers complaining about how hard their life is and how awful autism is. It shows nothing positive or hopeful at all. One mother actually says she would've killed herself and her daughter with autism if she didn't have a "normal" child who needed her.
OK, that's not what she was saying *at all*--she said that she'd drive off the bridge rather than leave her in a school like the one they'd just visited.

I too thought the film was a little heavy handed--if I'd been one of those (strong, articulate, straightforward) mamas, I would have been more than a little pissed that I'd been used to emotionally manipulate rather than educate.
post #18 of 54
Yes, because a video showing kids with autism on their great days and parents looking polished and driving land rovers would garner SO MUCH money for autism research. :

You know, autism is not like children with cancer or CP or DS or some other heartbreaking issue. You can't LOOK at an autistic child and see the need for funding the way you can look at the child with cancer in a hospital bed after chemo or a DS child with their beautiful unique facial features, or a child with CP in a wheelchair. All of those images impact because the SURROUNDINGS (hospital bed, wheelchair, etc) help tell the story. Autism Speaks had to SHOW the struggles with autism, had to reach people EMOTIONALLY, since that is where people's desire to contribute comes from.
post #19 of 54
My biggest problem with the video is the emotion it seems to want to illicit the most- PITY. FWIW, I don't want or need anyone's pity. More than anything, I would most need understanding of how complex it can be having a child on the asd. There are ways to reach people on an emotional level other than pity <sigh>
post #20 of 54
Quote:
Originally Posted by iamthesmilingone View Post
My biggest problem with the video is the emotion it seems to want to illicit the most- PITY. FWIW, I don't want or need anyone's pity. More than anything, I would most need understanding of how complex it can be having a child on the asd. There are ways to reach people on an emotional level other than pity <sigh>
:

Not all attention is good attention, and all charities don't have the people they are trying to help best interests in mind.
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