Celiac - infant question

[dakotamidnight]

I saw somewhere around here a reference to Celiac Poo's in an infant - can someone describe this?

DD has had the horriblest stinky poos since birth - and almost never are they the typical BF poo's you read about - more like thick PB and never seedy. She actually cries a lot of the time when passing gas and pooing, and she passes stinky gas constantly.

I think DD might have celiac - we already know she is intolerant of oats thru EBF since brith with horrible reactions to the oats in the slightest amounts eaten by me. We have a few family members {nothing super close} that do have celiac.

She has a host of other things we've isolated - potato {even just potato starch}, coconut, nuts, soy, and oats. I have pretty bad allergies to peanuts, peaches, and some cleaners and medications myself.

[WC_hapamama]

Oats themselves do not contain gluten. They are considered off limits for Celiacs in the US because of how they are grown and transported.

I know that some celiacs consume oats grown outside the US (McCann's Irish Oats) with no problems.

Does she react to wheat or barley at all? Those would be a better indicator of gluten intolerance than a reaction to oats.

She might just be allergic to oats.

[AllyRae]

It does sound like an oat allergy. Of all the things she would react to as a Celiac, the oats would be the smallest reaction, since the gluten in oats is actually just a result of cross-contamination. Does she react to anything else you eat? Brandon was diagnosed with Celiac at 6 months old, and he reacted any time I ate wheat, barley, or rye...

How have you determined she reacted to nuts if you were allergic to them (meaning she wasn't getting them through the breastmilk)? If she's actually eating a lot of those foods, she may be reacting because babies her age are not capable of digesting those types of food.

Since Celiac runs in your family, I'd be a bit cautious about what you feed her...teething biscuits, even the wheat free ones, can cause a pretty big reaction in a Celiac child--that's how we were able to determine that Brandon didn't have a wheat allergy--it was Celiac because he reacted to both regular teething biscuits and wheat free ones (that still had barley in them).

[dakotamidnight]

Originally Posted by WC_hapamama

Oats themselves do not contain gluten. They are considered off limits for Celiacs in the US because of how they are grown and transported.

I know that some celiacs consume oats grown outside the US (McCann's Irish Oats) with no problems.

Does she react to wheat or barley at all? Those would be a better indicator of gluten intolerance than a reaction to oats.

She might just be allergic to oats.

We haven't tried wheat or barely - her pedi recommended waiting for all other grains until she is one. So far she's only had fruits, a bit of chicken, and rice cereal.

It's possible it might just be an oat allergy - my mother is also allergic to oats but did gluten free for a while while on atkins, and thrived on it. SO we're really going pretty carefully with the whole solids bit and what we give her.

[dakotamidnight]

Originally Posted by AllyRae

It does sound like an oat allergy. Of all the things she would react to as a Celiac, the oats would be the smallest reaction, since the gluten in oats is actually just a result of cross-contamination. Does she react to anything else you eat? Brandon was diagnosed with Celiac at 6 months old, and he reacted any time I ate wheat, barley, or rye...

How have you determined she reacted to nuts if you were allergic to them (meaning she wasn't getting them through the breastmilk)? If she's actually eating a lot of those foods, she may be reacting because babies her age are not capable of digesting those types of food.

Since Celiac runs in your family, I'd be a bit cautious about what you feed her...teething biscuits, even the wheat free ones, can cause a pretty big reaction in a Celiac child--that's how we were able to determine that Brandon didn't have a wheat allergy--it was Celiac because he reacted to both regular teething biscuits and wheat free ones (that still had barley in them).

Everything I listed for her allergies is all thru breastmilk - she hasn't eaten any of those things. I myself normally can eat nuts but not peanuts, and when I eat regular nuts {pecans, walnuts, etc} she gets excema. The only foods she has eaten are rice cereal, applesauce, pears, carrots, and a little bit of chicken.

She does have some reactions to other foods - but we haven't been able to isolate what is causing it yet.

It's possible it might just be an oat allergy - my mother is also allergic to oats but did gluten free for a while while on atkins, and thrived on it. So we're really going pretty carefully with the whole solids bit and what we give her.

So basically the only real way to find out is to give her a gluten grain and watch what happens?