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World's youngest preemie is going home!!! - Page 3

post #41 of 47
I checked out the tiniestbabies web site that Sarah972 posted. It's too bad they don't have more follow up info on those babies. Some of them would be 6 or 7 by now and the last info is from when they were discharged or 1 or 2 years old.

I looked at the baby born in Miami and it says she is the "product" of in-vitro fertilization. So I guess the dates are right but I wouldn't want someone calling my daughter a product. : Couldn't they say "conceived by IVF" instead?

The article on the baby bugged me too. I wish they would have put more info in about how rare this was, how hard it was for the parents to have her there, etc. Now everyone is going to think you can just pop out a baby at 21 weeks and it's no big deal. And it's certainly no big deal if your baby makes it all the way to 32 weeks or 35 weeks or whatever.
post #42 of 47
I wished that Tiny babies site had longer outcomes too.
Everyone is happy to have their baby home, but I wonder how many have long term problems and developmental delays.
post #43 of 47
Quote:
Originally Posted by alliteration View Post
I wished that Tiny babies site had longer outcomes too.
Everyone is happy to have their baby home, but I wonder how many have long term problems and developmental delays.
I myself have proof about 3 of the babies. The two that were listed as the tiniest were born at my nicu. The second smallest one is 18 now. She is slight for her age but was an honor student all thru high school. Our nicu keeps close tabs on her including a 15th birthday party and pics w our Dr.
The smallest was born 2 years ago. My home health nurse also takes care of her. She is actually doing better than her sister is. Both are doing well, as well as expected for micro twins. Neither are on O2 anymore and they are moving along and strong girls.

the one in Downers Grove IL, was delivered by my OB practice over 5 years ago. She spent 3 mos in the nicu and lives in my area as well. A friend of mine is related to her by marriage. The girl is 5 yrs old now and although healthy, about the size of a 3 yr old and slender. Her parents got pregnt a few years later and delivered a full term healthy boy.

My nicu does follow up for several years and encourages babies to come back as they grow. They had have college graduates come back to visit and usually the Drs etc remember these kids!!! I dont know how they do it, but this nicu remembers everyone and where they live, the siblings etc.
post #44 of 47
Quote:
Originally Posted by Cinder View Post
I've read 2 or 3 articles now that have stated she was conceived through IVF, so the dates can't be wrong.
They still felt it was off by a day or two for whatever reason. Who knows?

I agree with everyone about being sick of hearing about this. Everyone keeps telling me that if a 21-weeker is fine then my baby will be fine, too. It's really hard to explain that yes, in theory, my baby should be doing pretty darn well. I usually just say that they gave Emery an 88% chance of survival, so that means that 12 babies out of 100 didn't make it. The way the media portrays it makes it hard, though, to get across to people.

Oh, and Amy, my mom toured that NICU. She said that actually have a gram unit, where the micros go. Amazing what they can do for kids up in 'your' NICU!
post #45 of 47
Its funny, I thought this whole baby thing would bring back my PTSD. But it helped it because this whole thing angers me. The media painted this rosy picture of this tiny baby going home. When in reality, the parents the last week had to deal w O2 issues, monitors, taking care of a baby who could get apnea any second, hoem health care worker woes, taking this baby to the uptenth appt for "follow up" or as most preemie parents know- getting readmitted for whatever.

If I had a dollar for everytime someone said to me "did you see that baby in FL?" I could go for a nice dinner. I have been replying "YEs and I want you to remember- she is one in a few billion, most die. Also, for every Maggie who is doing really well, there are 20 babies with the exact same dates and weights as Maggie who are not, so dont assume." It has shut a few people up and others see it as educating.
post #46 of 47
"YEs and I want you to remember- she is one in a few billion, most die. Also, for every Maggie who is doing really well, there are 20 babies with the exact same dates and weights as Maggie who are not, so dont assume." It has shut a few people up and others see it as educating."

For some reason this just made me tear up. I think because we were discussing maggie and emma and just how different each case is recently. Ok, wiping the tears and putting on my viking hat!
post #47 of 47
[QUOTE=munkeesmama;7413153For some reason this just made me tear up. I think because we were discussing maggie and emma and just how different each case is recently. Ok, wiping the tears and putting on my viking hat! [/QUOTE]

sorry elaina! I didnt mean to upset you but to point iut how dismissal people are.
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