Healing the Gut -- March thread - Page 7

[mum2be]

Originally Posted by caedmyn

Have you actually been helped by any of the stuff she's recommended? She sounds like she does the same type of kinesiology as the person DD saw yesterday.

Well, it's hard to tell. She recommended some homeopathic remedies and one that I took I saw improvement with my eczema, but it didn't last long. The others didn't help at all, or at least I couldn't tell that they helped. She does other things with supplements, but those are harder to tell if they are helping (like CLO, EFAs and such).

The foods she tested that we pulled out of my diet helped dd tremendously. That's how I got down to my 7 food diet that I was on for 4 months.

I haven't seen her in a while though. She used to come to our house for consults and would go through our fridge and cupboards and tell me what dd would react to. She is super nice...

I

[mum2be]

Okay, I've got a problem....I ran out of my EFA pills about a month ago and keep forgetting to tell the secretary at my ND's office to order more for me. So while I have been off of them, my acne has been improving. I didn't make the connection until I looked up the pills to see if I could order them online from somewhere. The ND that gave me these pills is not my usual one, but she stepped in because my ND was on vacation. She knew the history of food allergies and such, so I assumed these pills were okay...

Well, THEY CONTAIN SOY AND WHEAT OILS! Aaahhhh!! So I've been taking those for about 2.5 months and didn't know. Grrr...but they definitely helped my eczema, just made my acne worse. Since I have been off of them, my eczema is getting out of control...all over my eyes (my eyelids are splitting open and cracking ), my hands, my boobs...nasty stuff!

So, here is what she recommended. Is there anything that anyone takes that is similar and allergen free?

[Chinese Pistache]

Originally Posted by USAmma

In my dd's case it is due to faulty genetics-- but we are trying to heal her by taking away the foods she is reacting too, healing her, and then doing very slow and careful food trials. I guess dd's GI is on board with not just giving pills but actually finding out what the cause is.

As a lifetime allergy sufferer it's been very frustrating to go into a doctor's office in the past, tell them I'm having bad allergy symptoms,and then have them give me a pill instead of trying to figure out exactly what allergy it might be or how best to change my lifestyle to make things more comfortable. I was the one who did the research on removing carpets, covering the mattresses, etc. I did sublingual immonotherapy with an NP and maybe it's just coincidence, maybe not, but I'm off all asthma meds now except if I get a bad UPI.

Coming from a genetic standpoint-- not sure about celiac's and chrones, but there have been some genes located that have to do with sinintis, asthma, and my dd's condition eosinophilic esophagitis (and also eosinophils in the lower gut known as EG and EC, basically white blood cells that cause inflammation, diarrhea, etc). They are all closely related. You can do a search on the genes: eotaxin-1, eotaxin-2, and eotaxin-3. There are some repeated gene sequences that make the genes overreactive. The more repeats, the more reactive they are and the worse the person is affected. It's very facinating stuff. They hope to oneday make a protein blocker for eo-3 that will help with my dd's condition. With eo-2 I think Singulair is that blocker. If they do come up with a med that doesn't mean I'll just let her eat anything, KWIM?

I'm sorry if it sounded like I was rejecting genetics as a cause of allergies. I definitely believe that, in many cases, there is a strong genetic component to health problems. I just reject it as a cause in *my* family's case of FAs. Sorry I worded that so poorly! And I totally understand what you mean about not just popping a pill, but getting to the bottom of the problem. I think allopathic medicine has a place and I wouldn't reject a treatment that could seriously improve my quality of life or that of my children. But, like you, I'd be doing the work on my end, too (nutrition, vitamins, exercise, etc.).

[USAmma]

Originally Posted by Chinese Pistache

I'm sorry if it sounded like I was rejecting genetics as a cause of allergies. I definitely believe that, in many cases, there is a strong genetic component to health problems. I just reject it as a cause in *my* family's case of FAs. Sorry I worded that so poorly! And I totally understand what you mean about not just popping a pill, but getting to the bottom of the problem. I think allopathic medicine has a place and I wouldn't reject a treatment that could seriously improve my quality of life or that of my children. But, like you, I'd be doing the work on my end, too (nutrition, vitamins, exercise, etc.).

((HUGS)) I didn't take it that way at all, I knew what you were saying. I was just researching this last night as part of a bio paper and was so excited to see the actual gene mutations. I had to share. You have been so helpful in past posts that I have made. I hope that soon we can get Nitara to a state where we can try some of these alternative treatments.

[JaneS]

Originally Posted by USAmma

I just saw this link on another list I'm on. I know it's mainstream medicine but wanted to pass it on anyway. I would still try to take care of gut problems at their source to cure it in the long-run.

In brief, the drug blocks the increase in the spaces between cells in the
small intestine ~ i.e., the drug tightens up a "leaky" gut. If I
understand the webpage correctly, this drug decreases inflammation (from
Food Allergies, Crohn's Disease, Celiac Disease, etc.) by blocking the
mast cells in the small intestine from recruiting white blood cells into
the gut. This drug looks really promising as a new treatment for EGE and
other small bowel inflammatory diseases.


http://www.freshpatents.com/Agonist-...pe=description

My biggest concern would be the same issue that the new non steriodal eczema drugs have: blocking the immune system cannot be done. The irritation will just come out in other ways... hence that using things like Elidel has more incidences of developing asthma (progressing further down the "Allergy March").

Too bad they are not studying natural sources of decreasing inflammation: vitamin C, pycegenol, quercitin, cod liver oil, and glutamine and gelatin.

[USAmma]

Originally Posted by JaneS

My biggest concern would be the same issue that the new non steriodal eczema drugs have: blocking the immune system cannot be done. The irritation will just come out in other ways... hence that using things like Elidel has more incidences of developing asthma (progressing further down the "Allergy March").

Too bad they are not studying natural sources of decreasing inflammation: vitamin C, pycegenol, quercitin, cod liver oil, and glutamine and gelatin.

Yeah, we stayed away from elidel after the cancer reports. If they could make a protein-less version of those things you listed so she wouldn't be allergic (or is it the proteins that make them work?), I would love to give them to Nitara. It would be so good for her.

[caedmyn]

Originally Posted by mum2be

Okay, I've got a problem....I ran out of my EFA pills about a month ago and keep forgetting to tell the secretary at my ND's office to order more for me. So while I have been off of them, my acne has been improving. I didn't make the connection until I looked up the pills to see if I could order them online from somewhere. The ND that gave me these pills is not my usual one, but she stepped in because my ND was on vacation. She knew the history of food allergies and such, so I assumed these pills were okay...

Well, THEY CONTAIN SOY AND WHEAT OILS! Aaahhhh!! So I've been taking those for about 2.5 months and didn't know. Grrr...but they definitely helped my eczema, just made my acne worse. Since I have been off of them, my eczema is getting out of control...all over my eyes (my eyelids are splitting open and cracking ), my hands, my boobs...nasty stuff!

So, here is what she recommended. Is there anything that anyone takes that is similar and allergen free?

I think you could get the same benefits from cod liver oil and evening primrose oil (if tolerated), and possibly a vitamin E supplement--the dry or clear base ones are usually soy free although I don't know what else they contain.

[bluets]

Originally Posted by JaneS

Too bad they are not studying natural sources of decreasing inflammation: vitamin C, pycegenol, quercitin, cod liver oil, and glutamine and gelatin.

they will likely never do serious studies of these because there isn't profit or patents for big pharma OR for big nutraceuticals, the likely funders of such studies. (just wait until the US patent office stops approving patents on genes ... )

NIH is putting out calls for proposals for studies with probiotics but i'd be willing to bet that these will not be as thorough as we all would like.

btw, NIH has moved more away from basic research into "translational" research (i.e., things that make money) because of pressure from the (Bush) administration and the various political appointees. many many basic research grant budgets have been slashed this year, even those that are only being renewed on a noncompeting cycle. basic biomedical research (funded by the government, not subject to politics and economics) is moving into the realm of dire straits these days because of "direction" from non-scientist administrators.

[bluets]

Originally Posted by Rachel J.

If you really want to be annoyed check out quackwatch.com. This MD pretty much bashes everything that isn't straight forward allopathy. He ridiculed NAET b/c the creator said she was allergic to sugar and you "can't" be allergic to sugar, your body needs it : If you can't be allergic then why eczema (symptoms) go away when it was avoided like it did in my sister's friend? He doesn't even consider that a person could react to the chemical alteration of processed sugar or the actual chemicals used in processing or something else entirely. He's sooo simplistic and arrogant and it ticks me off that lots of people searching for information about alternative medicine options will find his misleading information.

what i find harder to believe is that the U of Louisville faculty member actually used quackwatch as a citation and reliable source.

[bluets]

Originally Posted by mum2be

Okay, I've got a problem....I ran out of my EFA pills about a month ago and keep forgetting to tell the secretary at my ND's office to order more for me. So while I have been off of them, my acne has been improving. I didn't make the connection until I looked up the pills to see if I could order them online from somewhere. The ND that gave me these pills is not my usual one, but she stepped in because my ND was on vacation. She knew the history of food allergies and such, so I assumed these pills were okay...

Well, THEY CONTAIN SOY AND WHEAT OILS! Aaahhhh!! So I've been taking those for about 2.5 months and didn't know. Grrr...but they definitely helped my eczema, just made my acne worse. Since I have been off of them, my eczema is getting out of control...all over my eyes (my eyelids are splitting open and cracking ), my hands, my boobs...nasty stuff!

So, here is what she recommended. Is there anything that anyone takes that is similar and allergen free?

i liked http://www.nutraceutical.com/search/..._index=6593008
along with evening primrose oil (i just bought a brand formulated for our HFS), but our ND swears by Nutraceutical and its sub-brands because they do pretty rigorous quality control and testing. They're big enough that they'll be around for a while and they take responsibility for their products. Plus, he isn't feeding the pockets of Dr. Weil when he recommends the Nutraceutical line (ND doesn't have a favorable opinion of Weil). You'd probably have to call to see if they contain wheat/soy.

[mum2be]

Originally Posted by caedmyn

I think you could get the same benefits from cod liver oil and evening primrose oil (if tolerated), and possibly a vitamin E supplement--the dry or clear base ones are usually soy free although I don't know what else they contain.

Thanks I have been taking Nordic Naturals CLO (2 tbls. a day!) for 3 months now. I just purchased the high vitamin Blue Ice one yesterday. Any brand recs for Vit. E and primrose oil? Both are safe for bf'ing, right?

My ND has gotten all of my other blood tests back as well as the follow up stool sample results after my leaky gut test. I am so anxious, but she said she won't tell me any of them over the phone (as she has done before...) and she wants to see me in person. I hope I'm not dying She said earlier that she wonders if I have an autoimmune disease. I hope I'm okay...

[caedmyn]

Originally Posted by mum2be

Thanks I have been taking Nordic Naturals CLO (2 tbls. a day!) for 3 months now. I just purchased the high vitamin Blue Ice one yesterday. Any brand recs for Vit. E and primrose oil? Both are safe for bf'ing, right?

My ND has gotten all of my other blood tests back as well as the follow up stool sample results after my leaky gut test. I am so anxious, but she said she won't tell me any of them over the phone (as she has done before...) and she wants to see me in person. I hope I'm not dying She said earlier that she wonders if I have an autoimmune disease. I hope I'm okay...

As far as I know they're both fine for BF'ing. www.iherb.com has a bunch of clear base and dry vitamin E...they show the labels so you can check to find a hypoallergenic one. I bought liquid EPO from www.mountainroseherbs.com for DD. I've been taking Natural Factors EPO capsules myself...the label says it contains no dairy, wheat, yeast, or corn, but says nothing about soy, so it probably does contain some soy. You probably don't want to take 2 Tbsp. a day of high vitamin CLO for more than a month or so, so you may want to take a combinatin of high and low vitamin CLO if you want a lot of EFA's from CLO.

[mum2be]

The CLO I am taking now isn't high vitamin, so I think it's okay to take as much as I do, but with the Blue Ice, I only plan on taking what they recommend.

I'm going to wait for my appt. with my ND on Tuesday before I buy anything else. I'm afraid that my lab results will give us some answers that will require a lot of supplements, etc. so I want to be sure to get the right stuff

Can I just say how much I LOVE all the resources that MDC has??!! Seriously...I would have NEVER figured out what my problems were if it weren't for everyone on MDC. I would have been suffering for a long time. It amazes me how much the mamas on here know

[JaneS]

Originally Posted by USAmma

Yeah, we stayed away from elidel after the cancer reports. If they could make a protein-less version of those things you listed so she wouldn't be allergic (or is it the proteins that make them work?), I would love to give them to Nitara. It would be so good for her.

What is she allergic to and how was she tested?

Glutamine is an amino acid... it's not a whole protein, you can get it in supplement form (in addition to making bone broths which are doubly beneficial b/c of the gelatin, but of course that is a protein... she can't be allergic to all meats can she??)

I don't know about proteins and cod liver oil. I would test natural vitamin A and D pills from Carlson's made from CLO and then do flax for omega-3 as next best thing.

Vitamin C, quercitin and pycegenol are not proteins, with the last 2 being bioflavonoids.

[JaneS]

Originally Posted by mum2be

Thanks I have been taking Nordic Naturals CLO (2 tbls. a day!) for 3 months now. I just purchased the high vitamin Blue Ice one yesterday. Any brand recs for Vit. E and primrose oil? Both are safe for bf'ing, right?

My ND has gotten all of my other blood tests back as well as the follow up stool sample results after my leaky gut test. I am so anxious, but she said she won't tell me any of them over the phone (as she has done before...) and she wants to see me in person. I hope I'm not dying She said earlier that she wonders if I have an autoimmune disease. I hope I'm okay...

I hope you are okay too!
Carlson's natural vitamin E is supposed to be very good but I forget contents of for allergy purposes. Best natural source is cold pressed olive oil and wheat germ oil (don't heat them) .

[JaneS]

Originally Posted by bluets

they will likely never do serious studies of these because there isn't profit or patents for big pharma OR for big nutraceuticals, the likely funders of such studies. (just wait until the US patent office stops approving patents on genes ... )

NIH is putting out calls for proposals for studies with probiotics but i'd be willing to bet that these will not be as thorough as we all would like.

btw, NIH has moved more away from basic research into "translational" research (i.e., things that make money) because of pressure from the (Bush) administration and the various political appointees. many many basic research grant budgets have been slashed this year, even those that are only being renewed on a noncompeting cycle. basic biomedical research (funded by the government, not subject to politics and economics) is moving into the realm of dire straits these days because of "direction" from non-scientist administrators.

Yeah, the whole study focus thing is such a scam.

Ooooo... can you link to call for study proposals with probiotics?? I'm trying to talk a WAPF Ped that I just met into a bifidobacteria study!

Stupid *&^%$# Shrub!

[mum2be]

Okay, this question is for my mother who just had minor surgery, but they just pumped her full of antibiotics. They gave her a whole bag through IV, then gave her 2 pills while there as well. She has a Rx that she starts tomorrow for more.

I told her to run out and get probiotics, and the only ones she could find were PB8 (these ones). There's a warning on the back and she is wondering if she can take them with what meds she is using currently (something for thryoid and vit. D). Also, when should she take these in congunction with the antibiotics, and how much? I've always seen them measured in CFU's, not MGs, so I am confused

[JaneS]

Jen (Pookietooth)

Did you see my posts re: Wilson's Temp Syndrome, I think you should check this out.

My temps are running low and erratic, I'm pretty positive I have it. Correlated with a bunch of symptoms that started all together in my 20's... it's very very interesting. I want all my family members to test their temps too!

[JaneS]

Originally Posted by milkamama

jane,
i am so curious about your ds's rotation diet. after learning what my ds's triggers are, we decided to completely eliminate them in hopes of him outgrowing them. i would love to hear more about your thinking regarding the allergens in the rotation....really some days, i would just love to pick your brain about all of the healing the gut stuff! thank you!! you have helped me a great deal on our journey toward gut healing. many of your readings and advice has lead to healing...and sanity. i don't always get the chance to post much...my boys keep me very busy...but i read a lot.

peace

Trust me, all my brain is pretty much in these over 5,000 posts! often I forget what I know. :

In our situation, a Rotation was the only way to go. He tested allergic to over 25 different foods.

There's no way he could have existed on the ones that came up okay: dairy, soy (which I'll never give him unless fermented condiments), beef, chicken, broccoli, pears, strawberries, tomatoes, arrowroot. That's it!!!
:

Doris Rapp wrote about Rotation Diets with respect to kids in "Is This Your Child?" and other books. The idea behind them is that exposure is limited and the gut can rest in days in between when the food is not given, as each allergic food produces a specific immune response. Something like that.

There are still some things that DS cannot have at all: pineapple, orange, MANGO....omg those are horrible. Rice is suspect but he is seeming to do okay on it now I've got it in an 8 day rotation as opposed to 4. Not sure about corn, watching that for now. Sometimes he has a little reaction and it's hard to pinpoint. Overall he's doing really really well, best ever so something is working! He's on enzymes too, the Houston trio. They absolutely make a HUGE difference. Which makes sense b/c if the food proteins are being broken down they are less likely to cause a reaction in the first place.

[JaneS]

Originally Posted by mum2be

Okay, this question is for my mother who just had minor surgery, but they just pumped her full of antibiotics. They gave her a whole bag through IV, then gave her 2 pills while there as well. She has a Rx that she starts tomorrow for more.

I told her to run out and get probiotics, and the only ones she could find were PB8 (these ones). There's a warning on the back and she is wondering if she can take them with what meds she is using currently (something for thryoid and vit. D). Also, when should she take these in congunction with the antibiotics, and how much? I've always seen them measured in CFU's, not MGs, so I am confused

I didn't like PB8 b/c of the FOS in them made my gut go haywire (lots of gas, FOS is an indigestible sugar).

You should take antibx 2 hours apart from probiotics.... so antibx at 8AM, probiotics at 10AM, antibx at 12PM.

Personally I'd do tons of kefir. But I'm currently on a Natren kick too, see this thread for more:

http://www.mothering.com/discussions...d.php?t=631727

I don't know any issues with probiotics and thyroid meds, wonder what it is?