Originally Posted by JaneS
What is she allergic to and how was she tested?
Glutamine is an amino acid... it's not a whole protein, you can get it in supplement form (in addition to making bone broths which are doubly beneficial b/c of the gelatin, but of course that is a protein... she can't be allergic to all meats can she??)
I don't know about proteins and cod liver oil. I would test natural vitamin A and D pills from Carlson's made from CLO and then do flax for omega-3 as next best thing.
Vitamin C, quercitin and pycegenol are not proteins, with the last 2 being bioflavonoids.
That's good to know about glutamine. I should have guessed by the name.
She is actually allergic to amost everything right now. It's a condition called EE
. Her esophagus is so swollen that she has a hard time swallowing. She vomits, has been on a feeding tube from 3 mos old but just dx a couple mos ago through biopsy. People should not have any eos cells in their esophagus. At 20 they consider that a dx. She had over 100 eos cells in one area and 50 in another. Very severe case. This is caused by a delayed IgG reaction to foods, and sometimes it is caused by airborne allergens as well.
We did both skin prick and skin patch tests and she is having reactions to about 80% of foods right now including very common ones like dairy, soy, corn, oats, rice, fish, and several fruits and veggies. We put her on an amino acid medical food and she was only allowed to have that from late Jan until Feb 20. Then the GI said try her on rice. She showed some symptoms so I took her off rice, patch tested her and sure enough she's allergic. We are trying her on white potato b/c that test came up - and she seems to do well on it. But yeah pretty much she's allergic or irritated by everything. In late April she will have another scope, hopefully it will be clear of eos cells, and we can trial her with three more foods. She's only allowed to have potatos and a couple of oils that are considered safe. I'm hoping if she's on this medical food and has a gentle and slow introduction to foods she's not reacting to so much, she will be able to tolerate more foods eventually. Most kids with EE end up being on the elemental formula for years because they can't eat enough safe foods to get full nutrition. It sucks. If we play by the rules and don't allow much to enter her diet until we are sure she can tolerate it, she can heal and perhaps her body won't react to those foods anymore, or as much.
We are vegetarian and she has not been tested for meats for that reason. If it turns out that we can get her off the tube in the distant future by allowing her to eat meats we will probably allow her to have them. But we will try all other avenues first.
I would love to give her more Vit C but I am confused about what kind to give her. I tried to give her some once but she vomited it immediately in a very violent way. I know it was not citris based but not sure what else it had in it. I need to find a pure form that does not have any fillers of corn or rice or other things she can't have. Her formula has extra vitamins for kids who can't absorb nutrients as well, so she is probably getting a balanced diet. It would be nice to give her some extra C though.
She has tested + for fish and seafood so no CLO ever. Same with peanut and corn oil. Even though they are supposed to be free of proteins I don't want to take a chance after we've come this far getting her feeling better. She has improved so much on the amino acid medical food.