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We have found most of the problems with Sierra updated post 57  

post #1 of 62
3/26/07 at 5:08pm
Thread Starter 
We did an echo today to check on her heart because that could be what is causing alot of the problems. What we found was shocking news. She blew her PDA open. She had surgery to close it when she was 2 and a half weeks old. With it open she has poor oxygenation and constant desats. We have to wait for her to be stable to go in and fix it.
post #2 of 62
3/26/07 at 5:21pm
oh, wow, so sorry to hear that. I guess it is good that they know it is a problem. when do they expect to be able to fix it?
post #3 of 62
3/26/07 at 5:24pm
Oh My! It's very good that this was found.
Just how stable does she need to be?
post #4 of 62
3/26/07 at 5:29pm
Thread Starter 
Quote:
Originally Posted by crunchy_mama View Post
oh, wow, so sorry to hear that. I guess it is good that they know it is a problem. when do they expect to be able to fix it?
When she stops being a drama queen and relaxes and quits coding and desatting
Quote:
Originally Posted by hanno View Post
Oh My! It's very good that this was found.
Just how stable does she need to be?
She has to be alot more stable than she is. Right now she desats, gets bagged and within minutes of getting back up she desats again. We need her to be able to hold her saturations up long enough to get in and do the surgery. Right now she will die in surgery
post #5 of 62
3/26/07 at 6:58pm
: I was a baby with heart problems! Hang in there!
post #6 of 62
3/26/07 at 8:24pm
Poor baby girl Praying real hard for your princess
post #7 of 62
3/26/07 at 9:32pm
How will they fix it this time? Poor baby!
post #8 of 62
3/26/07 at 9:39pm
I thought I would update you all....this is from her journal


Sierra is going into surgery in a little bit to close her PDA. They had to paralyze her because anytime anyone touched her she would desat. We have spent the majority of the day desatting coming back up desatting again and repeat. She coded once today and that was the scariest thing ever. She is finally stable enough to go in and do the PDA Ligation. I am more terrified for this one because it is really high risk but has to be done to save her life. I will update later tonight





Keep this little one in your prayers!!

Bobbi
post #9 of 62
3/26/07 at 9:58pm
I'm praying for you guys
post #10 of 62
3/26/07 at 10:16pm
Amber thinking of you & Sierra.

Keep fighting Sierra!!!!!!!!!!!! Hold Strong Amber.
post #11 of 62
3/26/07 at 11:23pm
Thread Starter 
We made it through surgery and she is doing alot better.
post #12 of 62
3/26/07 at 11:25pm
Praise God!
post #13 of 62
3/26/07 at 11:33pm
That is so good to hear!
post #14 of 62
3/26/07 at 11:37pm
Quote:
Originally Posted by acamile14 View Post
We made it through surgery and she is doing alot better.
I am so glad to hear that, thank God!!
post #15 of 62
3/26/07 at 11:39pm
I am so glad she made it through the surgery and is doing better. I was holding my breath. I think about Sierra all the time.
post #16 of 62
3/26/07 at 11:45pm
post #17 of 62
3/26/07 at 11:46pm
post #18 of 62
3/27/07 at 12:29am
You have great strength to go through all of this, Sierra must, too. Healthy wishes to your family.
post #19 of 62
3/27/07 at 12:40am
So glad that she's made it through surgery and doing better.
post #20 of 62
3/27/07 at 1:59am
oh, so glad to hear they got this problem fixed, what great news!
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Mothering › Forums › Archives › Pregnancy Archives › April 2007 › We have found most of the problems with Sierra updated post 57