DS's allergies worse with nursing? updated w/pics - Page 3

[Punchy Kaby]

We had our initial visit today and the Dr. does BioSET, which is a little different than NAET. I tested positive for protein, phenols, most grains, beef, histamine, Vit c, vit b, it was such a long list for me I cant remember everything! We are going tomorrow for our first treatment.

I feel good about the dr. DS was the happiest he's been in awhile while we were in her office. We discussed diet, she is active in the local WAPF chapter, she knew about phenols, histamines/amines, salicylates in food (we have been following a diet low in all these). It is such a relief to go to a dr. and not have them think I'm crazy.

Over the past week we have noticed that DS scratches when he gets mad, or stressed. So, he may be going along just fine (no scratching, rash starting to heal)but then he throws a fit for something he can't reach/have or doesn't get his way and he starts scratching like mad. This morning he wanted me to hold and nurse him and I needed to take a shower, he screamed and scratched at his face for 10 minutes while DH tried to sooth him. This is a tough time in a child's life when they can't communicate well and they are realizing the world does not revolve around them.

[caedmyn]

So can your doctor clear/treat phenols, amines, and that sort of thing? We just did an amine challenge and I didn't think DD reacted to amines, but I was wrong. They didn't affect her eczema but made her somewhat hyper and she apparently only "needs" 8 hrs of sleep at night when she's on amines! I could only take 3 days of it before deciding she was reacting and it was enough of that challenge. I'm seriously considering NAET or similar for her, especially if it would help with food chemical sensitivities. I'm considering weaning as well as I don't know how much more of these food restrictions I can take

Sorry to hijack your thread...let us know how your treatments work!

[Punchy Kaby]

Originally Posted by caedmyn

So can your doctor clear/treat phenols, amines, and that sort of thing? We just did an amine challenge and I didn't think DD reacted to amines, but I was wrong. They didn't affect her eczema but made her somewhat hyper and she apparently only "needs" 8 hrs of sleep at night when she's on amines! I could only take 3 days of it before deciding she was reacting and it was enough of that challenge. I'm seriously considering NAET or similar for her, especially if it would help with food chemical sensitivities. I'm considering weaning as well as I don't know how much more of these food restrictions I can take

Sorry to hijack your thread...let us know how your treatments work!

Yes they can treat for natural food chemicals. In fact I came up sensitive to phenols, histamines. There is a pretty long list of allergies for me and a short list for DS. And our lists are different, He is allergic to rice and I am not. I am sick of the food restrictions too, and the more I restrict, the worse he gets. I hope through this treatment we both find relief.

As for nursing, we are having a lot of issues. Last week we weened down to 2 nursings a day, am and pm. We had a horrendous day with lots of crying and tantrums. The second day got better and better. Then the stomach virus hit and of course I BF him. Now he is having separation anxiety from me. He wants me to hold and nurse him all the time. When I was in the shower yesterday he screamed and scratched his face till it was all bloody. DH was with him and could not calm him down. Now anytime he doesn't get his way he throws a tantrum and starts scratching his face. He is definitely manipulating me. When I have to leave for work he throws a fit and 10 seconds after I leave he is fine, chipper and smiley. I am not happy with the situation and on top of the food allergy issues I feel ready to give up. I have not eaten a meal with my husband in over 4 months! It is stressing our relationship.

[caedmyn]

Originally Posted by Nolansmum

Yes they can treat for natural food chemicals. In fact I came up sensitive to phenols, histamines. There is a pretty long list of allergies for me and a short list for DS. And our lists are different, He is allergic to rice and I am not. I am sick of the food restrictions too, and the more I restrict, the worse he gets. I hope through this treatment we both find relief.

As for nursing, we are having a lot of issues. Last week we weened down to 2 nursings a day, am and pm. We had a horrendous day with lots of crying and tantrums. The second day got better and better. Then the stomach virus hit and of course I BF him. Now he is having separation anxiety from me. He wants me to hold and nurse him all the time. When I was in the shower yesterday he screamed and scratched his face till it was all bloody. DH was with him and could not calm him down. Now anytime he doesn't get his way he throws a tantrum and starts scratching his face. He is definitely manipulating me. When I have to leave for work he throws a fit and 10 seconds after I leave he is fine, chipper and smiley. I am not happy with the situation and on top of the food allergy issues I feel ready to give up. I have not eaten a meal with my husband in over 4 months! It is stressing our relationship.

Amazing what good little manipulators they can be at this age, isn't it! My DD has decided she MUST nurse until she is soundly asleep and if I try to pop her off one second before then she throws a fit. I am so over nursing to sleep. I can sympathize on the food & relationship issues, too...I have 1.5 months to get both DD and I fixed as I promised DH I'd be done with the special diets when he gets back from his deployment. I haven't even told him about Failsafe and I can only imagine what his reaction will be if we're still on it when he gets back. It won't be a nice homecoming, that's all I can say. Oh well...DD & I are going to do the salicylate challenge starting Saturday or Sunday...I figure 2 or 3 days for that (I'm not hopeful on the no-reactions), then a few more days to clear up the reaction from that, and then I'm going to try the salicylate desensitization. I just hope it works!

I hope the NAET works quickly for you, and your DS stops being a little stinker!

[SAmama]

We had our initial visit today and the Dr. does BioSET, which is a little different than NAET. I tested positive for protein, phenols, most grains, beef, histamine, Vit c, vit b, it was such a long list for me I cant remember everything!

You are intolerant of protein, vit c and vit b? How does that work? I mean, we are hugely made up of protein? And vit c and vit b are vital nutrients?
Can someone explain this to me, because naet sounds great, but I am confused to say the least.

[Punchy Kaby]

I am not going back to the BioSET Dr, she wanted all the money up front for 34 appt.s and it made me feel like I was being taken advantage of. She was also charging $75 per clearing session for DS and me, so each visit would be $150 for about 45 minutes worth of treatment. I am going to call two other BioSET practitioners and see what they are all about.

I am also investigating DS being sensitive to sulfur, sulphites, suphates. The first antibiotic shot he received had a sulpha component, he also seems to get itchy in epsom salt baths as well as after eating high sulfur foods. I have been supplementing with Molybdenum the past two days and his rash is greatly improved. People with a sulfur sensitivity are likely to be low in Molybdenum. I keep hoping that we are on the right track.

[caedmyn]

Wow, that does sound like she's trying to scam you. I'm sorry it isn't going to work out for you--it's so frustrating to feel like you've found the answer and then it doesn't pan out.

FYI...Emma is back on the FailsafeNT group (if you haven't been following it) so she might have some suggestions for you if you post there.

[Punchy Kaby]

Originally Posted by caedmyn

Wow, that does sound like she's trying to scam you. I'm sorry it isn't going to work out for you--it's so frustrating to feel like you've found the answer and then it doesn't pan out.

FYI...Emma is back on the FailsafeNT group (if you haven't been following it) so she might have some suggestions for you if you post there.

I found a new BioSET DR. who specializes in chinese medicine and acupuncture. She said she treats the whole body systems and she detoxes before she even does the food allergy testing because many of the sensitivities take care of themselves when the body heals. She said most of her clients come for 3-5 appointments. Big change from the 28 she quoted for me. Only thing is she doesn't want to treat me until I stop breastfeeding because the toxins will go through the breastmilk. I respect being careful like that. I will talk to her about it though and see what kind of toxins I might be dealing with, maybe we could go really slow with me.

Failsafe...I suspect that DS has issues with sulfur/sulphites/sulphates, so I am trying a low sulfur diet. I cannot do that plus low salicylates so I just did 3 days of desensitizations for sals and I was a little bothered by them (I got a bit of a tight tingly head, some minor itching) and DS has a bit of diaper rash but other than that not too bad with the sals. HIs rash is still all over his body and we are trying the steroid creams with the dr. seeing him every 2-3 days to make sure it is going how it should. I hate doing this but I cannot have him scratching and being miserable. We had a couple of really bad days over the weekend where we had to hold him/restrain him from scratching himself. He is better now.

People who have trouble processing sulfur can be low on molybdenum, b-12, and zinc (plus you have to take copper when supplementing with molybdenum). I have been supplementing with molybdenum water and have seen almost instant results on the rash. I ordered the other stuff and am waiting eagerly to try it. I also ordered pascalite clay.

One interesting improvement in myself since going low sulfur and taking molybdenum-I had a stiff neck from the time I was pregnant and it never went away. It is now back to normal and my spine feels looser, I have full motion back in my neck. It is a huge relief because I am a violist and it is very important to have neck mobility, I thought it might be a touch of arthritis starting.

[caedmyn]

I'm glad you're starting to see some improvements again. Hopefully this new doctor will be able to help you out, even if you have to wait for a while to use her. So you think the desensitization worked for you and now you guys can tolerate more sals?

Have you tried baking soda baths for Nolan? I read on the Failsafe website that they're supposed to be good for eczema.

We just finished day 4 of the salicylate challenge. So far I don't think there's been any reaction although I can't tell for sure. DD's skin is still clear...sometimes I think some of her skin is starting to feel a bit bumpy again, but I don't know if it really is or if I'm just totally paranoid. Her skin is still soft. I've been having some blood sugar issues again but I'm eating a lot more carbs than I was before and I think they're probably related to the carbs and not to salicylates.

[Punchy Kaby]

Originally Posted by caedmyn

I'm glad you're starting to see some improvements again. Hopefully this new doctor will be able to help you out, even if you have to wait for a while to use her. So you think the desensitization worked for you and now you guys can tolerate more sals?

Have you tried baking soda baths for Nolan? I read on the Failsafe website that they're supposed to be good for eczema.

We just finished day 4 of the salicylate challenge. So far I don't think there's been any reaction although I can't tell for sure. DD's skin is still clear...sometimes I think some of her skin is starting to feel a bit bumpy again, but I don't know if it really is or if I'm just totally paranoid. Her skin is still soft. I've been having some blood sugar issues again but I'm eating a lot more carbs than I was before and I think they're probably related to the carbs and not to salicylates.

Sounds promising on the sals for you both. Are you getting enough fat with your carbs? I know what you mean about paranoid. I want to be able to eat a moderate amount of sals and I think it is possible.

I have tried BS baths, right now we are doing plain water because I cannot tell anymore what helps or not. I know that epsom salt baths make him itchy which is partly why I am looking into the whole sulpha issue. I think we have a PST enzyme deficiency, I know that Emma has talked about it on the FailsafeNT. I hope our new supplements help us out.

[organics&more]

skin conditions

I just learned from our holistic doc that my psoriasis is caused not from an allergy that I have but from the inability for my body to metabilize walnuts. I don't show an allergy to them but when he tested metabloically that showed WAY big. He stated that because the body can't metabilize them they are secreeted through the skin, causing a rash and inching. Could this be the problem? Good Luck, poor little guy.