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How do I live without my sister? - Page 3

post #41 of 83
i am so sorry. my mother lost her sister a few years back...(irish twins, 10 months apart) and i know that she doesn't go a single day without missing her. i can't imagine what i would do, my little sis is my best friend.
my thoughts and prayers are with you and yoru families.
post #42 of 83
You go on because that's what she would want you to do. You live for her as well as for yourself. She would want you to be happy and enjoy life, so that's what you'll do...maybe not today or tomorrow, but eventually, that's what you'll do. :

Jenn
post #43 of 83
Peace and healing to you and your family. I've spent just a short time on these boards, but it is so evident how much Amy touched the lives of so many people here.
post #44 of 83
I am so so sorry. I haven't been on MDC at all lately and missed the announcement about Amy. I followed her story, though it has been a few months since I check her site for her son. She is an amazing spirit and she is not gone from you, or her boys and dh.
post #45 of 83
Can I recommend the book, True Love, by Thicht Nahkt Hahn? (I think I spelled that right.) It helps me be present in the moment, but also helps me feel comforted about larger issues, too.



~Bean
post #46 of 83
I am so sorry for your loss. I know right now it feels as if you can barely breathe but take it one moment at a time. Last year (April, 2006) I was as happy as ever...I was 7 months pregnant with my second daughter. That night my entire family showed up at my door to tell me that my big sister (who was 20 months older than me) was found dead at her house. She was my best friend from day 1 and we spoke 4 and 5 times almost every day. It was unexpected and a complete shock.

As you know how it feels, I do not need to try to put it into words what it feels like. All I can say is cry when you need to cry and talk about her when you want to talk about her. That is all I did for a long time. Even a year later, I sit here and cry...I cry for my loss and for yours because I know the pain. Just wake up each morning and pull yourself out of bed...because you have to. I thought that I would die myself because the pain was so unbelievable and I thought the baby inside of me would die too of my pain. Yet, each day I got up and one day I realized that I did not cry all day that day. Yes, you will always miss her but the pain changes. You will make it through this....she would have wanted you to

PLEASE PLEASE PLEASE contact me to talk anytime you want. I really do understand what you are going through and talking about it will help.

Just know lots of people's thoughts are with you during this time. Even though you feel all alone, you are not.
post #47 of 83
I'm so sorry for your loss.
post #48 of 83
I'm so incredibly sorry for you loss. It sounds like you are in the right direction in your healing process. I also believe in signs and that are love ones come back to us.
post #49 of 83
I am so very sorry for your loss.
post #50 of 83
Thread Starter 
Thank you mama's.. I have so much love and support from you.. Thank you jdmcgee. We too share a bond. One that is to similiar. I was too 7mth pregnant, pregnant w/ my second "boy". My sister was 23 mths older than me, we were the best of friends. We would usually talk about 4-5 times each day. Usually so much, our dh's would yell at us, for the long distance phone bill.

I just have a barage of emotions. I'm filled with the "what if's" and the "why's".

What if she wasn't so darn stubborn, and had the tumor removed. What if she choose chemo. What if she wasn't so hard-nosed, to tell your opinion too. Why did she get cancer, why did I live and she didn't. Why is our mother here, alive drinking herself into a stuppor, every night. Why did someone who loved their children so much.. die...

For me "cancer" has changed my life, in so many directions. For now and hopefully forever, I survived. The day I found my tumor I told Amy, and like me we thought it was mastisits (nursing at the time).. It wasn't until I had a test that determined it was cancer. Amy told me, she never cried so much in her life, that she was devastated for me, all along she had a tumor, unknowingly growing in her. My first surgery was on Jan 18, 2006, Amy and the boys actually came down to help take care of my ds.. I actually joked with her and told her she shouldn't come, as "I was going to give her cancer since it was day 10". Now I said this, as I had a friend who was diagnosed w/ colon cancer 10 days before I found my lump, and she was diagnosed 10 days after her other friend was diagnosed w/ a rare nasal cancer.

We both did a ton of research, and she even told me, " just take it out".. But when she found her's she didn't do the same. She listened to a few mama's here, who suggested to leave it in. I remember a conversation we had back in April 2006. She told me she went to a surgeon who said it was probably breast cancer, although it was an "off-shoot" and started in her lymph nodes. Anyone with a basic knowledge of cancer knows that is not good. My jaw dropped when she was delaying treatment. She refused scans. She didn't want the scan "dye" in her. I told her she could do some without, but she didn't want to know. I was in such disbelief with every choice she made, at first I didn't know if she was ignorant about cancer. I asked her "did the surgeon tell you about the outcome was with cancer in your lymph nodes". Amy told me "well it's probably everywhere, and I'm terminal". And like anyone who really knows my sister, you could never give her your opinion. That day in April she told me "I wasn't supportive, and she didn't want to talk about cancer to me".. From this, she didn't talk to me for a few mths. And when we talked again, we didn't talk about cancer.

And sadly, every choice she made, I knew in my heart it would kill her. And I wish I was wrong. I'd rather sit here and look like the biggest fool in the world. From day 1, our family was always devastated, and although every decision was her choice, everyone felt helpless. There were countless times I told family. "you can't force her". But we all thought that maybe there would be a time, when she'd change her mind.

But it was too late. For the past 16 mths, I've heard every story, I've seen how positive she was, and how she truly believed that positive thinking would cure her, and I commend her, I commend her for having that much passion in something. But on the flip side, I saw her going down hill, I read her posts, just shaking my head crying, for months. I saw things she'd tell someone, but then hear the truth. I saw her blast me on her son's webpage. I saw the cancer taking over her body. And my sister was a very persuasive person, my uncle says "she could sell you the car".. We all hoped that what she was telling us was true, and was the cancer being destroyed, but it wasn't.

But on the flip side, I feel like us, her family has so many unanswered questions, questions that will keep with us forever.. All the "why's" on why she did each thing. But then, I think, maybe she knew the answers. There is some closure in talking to family, as Amy has choosen to tell each of us something different. And now with her passing, the puzzle is starting to come together. I think she knew this would kill her, all the little comments she made, that at the time, I couldn't figure out, now they make sense. The day I came up to there house, which was less than 48hrs before her death. I found two letter than she had written to our "step" grandmother, and our aunt. Both had the same tone. Both said that "her cancer journey would be ending soon". Now my sister was a clutter-bug, but both these letters were sitting on her dining room table, untouched and in plain view. Her dh and I would talk about how she didn't know she was dying, but I believe she did.

She died on a Friday, the Wednesday before she decided she wanted to accompany her dh and ds2 for his infusion. Now she was bed-ritten at this point, it took my BIL, 2hrs to get her ready. She made the 1 1/2 hr drive to the hospital, and nursed her son, as she said "he needed the immune boost". As soon as they got back home, she asked her dh to drive her to the local hospital as she needed to get "rehydrated". I was on my way up and meet them there. I think she went to her ds2 infusion, as she wanted to make sure her dh knew what he was doing, I think this was one of the parts of closure for her.

She knew I was coming up, and before I drove up there, I told my dh, that " she's waiting for me to say goodbye". And that's what she did.

But at times it doesn't seem real to me. It's hard to realize she's gone.
post #51 of 83
As sad as it is to read your words, I know deep in my heart that you did everything you needed to do for your sister and she made choices for her family and her body that felt right for her.

13 years ago my aunt was diagnosed with breast cancer. She decided it was just a little tumor and she could fight it. In her 2 year fight she tried natural treatments, traveled the US to see specialists in natural medicine, went to Coners Georgia to see a spiritual site and held EVERY faith that she would cure her body. I have to admit I was angry at her for leaving us - leaving her 5 grown children, 4 grandchildren and another on the way and a husband she loved dearly even after 40+ years of marriage. I thought it was selfish and self indulgent to not seek medical treatment.

3 days before she died I went to see her and we talked. I'm embarrassed to admit, but it was hard to walk in the room and see her like that and wonder "would she be ok if she had have removed the tumor"?

So we talked and she took my hand, she told me to that the last two years of her life were lived exactly how she chose, she traveled, she learned, she loved and she lived. It took me time to fully understand what she was saying to me and come to terms with it, but now I know that Aunt Connie did what was best for her and I feel honored and blessed to have had her in my life.

A little over a year ago my friend was diagnosed with cancer. It was a very rare form of uterine cancer and she was advised not to have treatment and told she had about a year or two.

My friend was in her early 40's and had an 11 year old son she had so much to live for. She went into survivor mode, she flew to New York to see a specialist in the rare form of cancer. They did offer her some treatment with radiation and Chemo. The year that followed she slept 20 hours a day and lived her life in treatment and researching her cancer.

She did have some bright points and much love in her life, but the day before Thanksgiving this year, she lost her fight.

Were either of these women right or wrong? I don't know, but I do know that they lived their lives as they chose and made decisions for their bodies that felt right for them. I can look back and analyze it, but I'm learning (not easily mind you) that these women in my life made choices for their bodies that were right for them.

I know this is painful for you now and it's normal and natural for you to question the what ifs, it's how our bodies process the pain .

I wish you much love and gentleness as you travel through your grief.

My point here is that your sister chose to live with her cancer in a way that felt right for her. It's natural you have anger. I'm angry too.
post #52 of 83
Thread Starter 
Thank you, Jacque.

For me every day I understand a little more about the situation. She was an extrememly holistic person. And for her and I we actually watched our step-bro and step-sister's mother die from breast cancer at 32. For her, she was diagnosed at stage 4, and tried her best, but died 10mths later. She tried chemo. This was such a devastating event for us at 11 & 13 yrs old, and we always held that loss for this women and our step-siblings.

But I think Amy always knew this would take her life. Apparently, she had always told her husband that she was here for a limited time. And for Amy, and I'm sure many could agree with me here, I think she held on to make sure I was okay, and to make sure her youngest, Owen was okay. I've noticed a lot of correlation with her deterioration and an event in her life. There was a time around Thanksgiving that she had to go to Duke University to look into treatment for her son. They were there for weeks, I believe it wasn't until after she got home, that her tumor actually broke thru the skin, and her pain intensified. Another trivial point was March. She was very excited for her trip back to Duke University and UNC for an eval for Owen and to attend the MPS convention in DC. On there trip back to Vermont, all of us siblings got together one night, while they were passing thru NJ. We saw her, and thought she looked a little thinner, but was still appearing okay. Less than two weeks later her behavior became extrememle erratic, and we wonder if the cancer really started affecting her brain at this point.

On another hand, there is a mama here who did both tarot card readings for us. For me, I was told I'd survive and recognize the gifts in my life. Amy told me, she would know two people w/ cancer and one would die. I believed her, but I've had conversations with this mama, and in fact that was never said. So I really think she knew she had a limited time here and she wanted to have a bascially fullfilling enjoyable life until the end, which she did. And she wanted me to have peace, knowing I would survive. I think this is also why she shut me out the last two months of her life. She knew I'd be unbelieveably devastated, and she shut me out to protect me.

It's very easy for me and my family to say, chemo wouldn't saved her, but honestly I don't think it would. By the time she found her cancer we really think it was everywhere. I've been really struggling with her cancer treatment from the onset. And it wasn't until I knew she had days left, that I finally had a deeper understanding. A few days before she died, I met with one of my oncology social workers. This women had leukemia as a young adult, and had a very similair medicinal treatment as myself. She really made sense when she told me. "just because she didn't do what we did, it doesn't mean she didn't fight".. And for the first time I really understood that.. And I think for me to realize this, accept this, was really the only way I could find some sort of peace in letting her go.
post #53 of 83
I completely agree with you, your sister did fight and I see that in reading her last posts here and reading about her fight for her dear son. The most important part of any fight is the internal, spiritual one.

You are an amazingly strong woman too. You've had your own journey though cancer and now this journey of grief. Please be gentle with yourself you may take all the time you need to get through this in the way it feels best for you. There are no rules in grief.

Make sure your getting rest when you can, drinking enough water, eating healthy. These are simple things, but in grief we often forget to care for ourselves. You will be stronger emotionally if you care for yourself.

Much love to you mama
post #54 of 83
I just wanted to stop in again and say if there's anything I can do, please let me know. Every time I open my wallet the gas card Amy sent me for Christmas so we could get together falls out.. then I go into my contacts in my cell phone and her number is right there. I can't imagine what you are going through.
post #55 of 83
I'm so sorry for your loss.

I lost my sister in 95, she was only 5 1/2. Some days are harder than others. For a while those days will be the majority. Over time the good days will slowly become the majority again.

It is very hard to lose someone you are so close to. I keep thinking about getting a small tattoo to commemorate her. I just haven't decided where I would want it. I'm thinking about doing it on her birthday this year, she would have been 18.

I hope you get to the more good days than bad soon.
post #56 of 83
I just wanted to check in with you today. The nights were often the hardest for me because of the quiet. How Weird...another similarity...we also lived apart from one another. I live in Massachusetts and she lived in California.

Thanks for sharing all of that info. about yourself and your sister. As I said earlier, it is really important to talk about her alot. For many months, as soon as my husband would come home, all we would talk about is her for hours.

My girls are what have gotten me through to this point. Focus on your children.
post #57 of 83
Thread Starter 
Quote:
Originally Posted by jdmcgee View Post
I just wanted to check in with you today. The nights were often the hardest for me because of the quiet. How Weird...another similarity...we also lived apart from one another. I live in Massachusetts and she lived in California.

Thanks for sharing all of that info. about yourself and your sister. As I said earlier, it is really important to talk about her alot. For many months, as soon as my husband would come home, all we would talk about is her for hours.

My girls are what have gotten me through to this point. Focus on your children.
Thank you, You know I am focusing on them. And oddly enough the other day , I said my new baby will look like her, dh for the 1st time agreed with me. Minutes later someone told they they felt like someone told them they would be a baby, and they knew it was Amy. This person who is a mama here, saw my sig and realized I was pg. I've had mama's here who've come to me at my lowest and have told me they've felt that Amy was sending me my baby to ease my shatterred heart. I've gotten messages like this, and no one has known what other's have said.. So this really keeps me going, and trying to smile.
post #58 of 83
Thread Starter 
Quote:
Originally Posted by Haydee View Post
I just wanted to stop in again and say if there's anything I can do, please let me know. Every time I open my wallet the gas card Amy sent me for Christmas so we could get together falls out.. then I go into my contacts in my cell phone and her number is right there. I can't imagine what you are going through.
I actually still have her listened in my cell phone, and she always had her own ringtone. So when my BIL calls, I know it's him, but I know I still have that connection with the house. I've even saved emails she has sent me and put them in a folder, as I want to see her name. Even though the name on her email isn't her last name. She thought it was funny to use someone else's.
post #59 of 83
I am so sorry.
post #60 of 83
It is a great way to think. People also told me the same thing...that my sister would be part of my daughter. At the time, I thought I would die of the grief as would my baby. Then I was convinced that my baby would be an unhappy baby having to live inside a body in so much pain. People kept telling me that she would be my greatest joy.....Oh my god, she is!!!!!! She is the happiest, cuddliest, smiliest (is that a word???) baby ever. I thank my sister for having something to do with that. No joke...at three weeks old, she smiled at me. Your baby will get you through this. My older daughter did as well but the baby was somehow connected to my sister differently.

By the way, where are you from?

I still have my sister listed on my cell and my home phone...I even programmed her number in to new phones we got.
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