Thanks to all for the well wishes. I really appreciate it!
We had an appointment today with a new pediatrician. I got some answers, but mostly more questions.
The Dr. feels that the very low bicarbonate level she had in the ER (it was 9) along with her low blood sugar was out of whack- even taking into consideration the severe dehydration. That and the loss of muscle tone (she still doesn't have head control). It seems as though my sweet baby has an acidotic metabolic disorder. That is not a disease in itself- just a sign of something else. I am concentrating on not becomnig obsessed with the possibilties since there's nothing I can do right now. She is having more testing done on Thursday which should give us more answers.
The one very positive note is that she began breast feeding again last night
Its only for short periods, but we'll take what we can get!