Originally Posted by fruitful womb
About the last two pictures, it doesn't look like he is buried. Is that the real color when it balloons? Does he act like he is uncomfortable when he pees?
The second picture, what happened? Is that him retracted? Was that picture taken at a Doctors office?
I'm not sure which pictures you're referring to now...LOL. Are you talking abou the pictures from the 12th? First picture is me applying pressure around the base of the penis to show typically buried penile shaft (still under foreskin)...the second is a picture from a medical journal article regarding "megaprepuce" showing another patient...but that's what he looks like when fully retracted so I included it as reference.
Fig 1 http://img.photobucket.com/albums/v302/Bevie01/Fig1.jpg
Fig 2 http://img.photobucket.com/albums/v3.../retracted.jpg
MED. JOURNAL FULLY RETRACTED
The other pics are from the earlier post (6th)...not of my actual son...but shows how his buried condition looks and ballooning with urine. I think I actually posted other pictures of my actual son but now I can't find that post...
These are actual son..."at rest" showing buried condition and when really ballooned up (not all the time)....and yes, when it's REALLY ballooned the veins are quite pronounced and it looks bluish...he doesn't seem to be in pain or anything but I can imagine it's uncomfortable to some degree and I try to change him more often when it's like that.http://img.photobucket.com/albums/v3...Picture067.jpg
BURIED - ACTUALhttp://img.photobucket.com/albums/v3...ie01/007_7.jpg
REALLY BALLOONINGAnyways I also wanted to say that I'm so sorry to hear about what happened to his twin brother That must have been so hard for you. My heart just ached when I read that.
Have you been able to get a hold of NOCIRC or that Dr. that A&A mentioned Dr. Fleiss or maybe the D.O.C. I've read a lot of things here on the board. I can't seem to stop thinking about this thread. I sure hope he gets better. Poor little guy.
Thank you re: his lost twin brother. It was devastating and it is still painful for us to see him without his brother and watch him grow and change and wonder what they would have been like together. Some people say that time heals but not really...you just live with it and it becomes a part of you...like a hole in your heart..it never goes away...sometimes it feels even worse because at every milestone/birthday/Xmas we grieve over and over again.
I have gotten replies from Marilyn Milos who instructed me to contact a Dr Robert Van Howe (which hasn't replied yet) and replies from DOC John D. Geisheker who agreed NOT to retract and that he had never heard of megaprepuce and thinks it's probably just an exaggeration by doctors as another excuse to circumcize. Marilyn Milos had never heard of it either...apparently it was only first documented in 1994. I do not even know if this is a condition that he has...I just thought because he has such extensive ballooning that might apply but I don't really know.
Thanks for your concern...I really hope it resolves itself sometime soon. We have been dealing with this for a while and so far he has had no ill effects. I would like to have another pelvic ultrasound to make sure there is no urinary reflux but otherwise there's not much I can do except redo the steroid treatment or keep retracting like I've been told (which I won't). Other Moms I've talked to on this board who's son has the same buried condition all said that it resolved on it's own around 2/3 years of age. The sooner, the better!!