Ultrasound Results (FINALLY) - Yet another update in message #23

[Mama_Bear]

Background: I've had a LOT of spotting, so my midwife sent me for an u/s at 11w. My family doc's (who I am NOT seeing for the pregnancy) office called Friday, saying I needed to come in to discuss the u/s results, but wouldn't give me any info over the phone. I asked that the doc call me. I left a message for my midwife, but her office hours are only on Tues and Thurs, so she didn't get back to me until today either.

My doctor finally called today around lunch. There was increased nucal folds at the back of the neck, which means an increased risk of Down's Syndrome. Her office is calling to make me an appointment ASAP at BC Women's Hospital to have a more in-depth u/s done, which will be reviewed by a perinatologist.

The hospital where I had the original u/s done at 11w never sent the results to my midwife. They are supposed to page her right away if there are any results to be concerned about, but they didn't. If they had, I probably would have an appointment today or tomorrow already. Needless to say, she had a bit of a "chat" with the hospital staff.

I called dh right away and when I told him it was the only time in the 7 years I've known him that he was actually speechless. I don't really know what to think right now. We've got lots to learn and to think about right now. I'll keep you all posted when I know more.

[AngelaB]

I just wanted to send you some peaceful vibes! I was hoping for an update but I was hoping somebody was just being a jerk and not making the stress worse. Whatever happens you will be just fine mama!

Did they say what the rate of incorrect scans were? Is your midwife in the loop now? Will your dh be able to go with you for the next scan,if not him a friend?

Drink a cup of tea, take a bath, get a massage, whatever but try real hard to be good to yourself. I am a worrier and I would also be ticked that the drs office messed around like that. Good for your mw for giving them an earful btw, she sounds cool.
Angela

[lilylove]

I hope this is one of the times when u/s is wrong.

[mama_y_sol]

Originally Posted by AngelaB

Did they say what the rate of incorrect scans were?

I believe there is a 5% false-positive rate with NT scans. That means that 5% are in fact not affected. The next scan will probably be able to give you more accurate information.

Mama_Bear, I hope you manage to stay strong and not worry to much about this. Think about it yes, but don't worry about it, not now.

lots of aloha,
Kristin

[lilylove]

Also, I think the false negative/positive rate varies with the tech. Those with less experience and training can have a much higher false negative/positive.

[eloise24]

I agree with the person who said to just take good care of yourself- massage, relax. I know plenty of people who have had false scans and a lot of needless worry. Hang in there mamma!

[Free Thinker]

Hugs to you

[Jillybean]

I hope everything works out I agree, try your best not to stress too much right now. Let us know how it goes.

[Mama_Bear]

Thank you so much, girls. I can't tell you how much a few positive messages from strangers really helped lift my spirit.

It's funny, I thought I would be more upset about this, but I'm not. It's not like this is a fatal diagnosis. We'd still have our baby, it would just be different.

Remind to keep that same attitude later on though.

[ollineeba]

mamabear. I've been thinking about you! Please keep us posted and know that you will be in our thoughts

[my kidlets and me]

Hugs. I hope everything turns out fine.

[AngelaB]

If you are faced with a child with special needs, let me tell you they add spice to life!!!!
My son has autism and is non verbal. Its hard some days and it was the hardest at first but he is delightful all the same! As i have had some time to look back on his life so far and I realised that he was meant to be my child as with all my children!
Take care and keep us posted and keep reminding yourself that everything will turn out just fine!
Angela

[tyisrrs]

mamabear, I just wanted to send you some positive vibes. I think Down's children are very special little people, and even if it is a disability I know you can handle it if it is to be for you. God bless and take care.

[Mama_Bear]

I still don't have an appointment at the Women's hospital. I called my doctor's office yesterday and today. My doctor's office didn't know why they hadn't heard back, so I called my midwife and she called the hospital. The hospital needs to see the original u/s, and doesn't think that this is necessarily a "true finding". My midwife arranged for the original hospital to send the u/s results this afternoon and the Women's hospital will review it and decide if I even need to come in. I may not hear until Monday, though.

I'm loving my midwife more and more this week. First she called the original hospital to give them "a stern talking to" about not paging her with the results or even sending her the results, and now she actually gets answers from BC Women's hospital when my doctor's receptionist seemed unwilling and unable to do.

Thanks again for all the positive thoughts, well wishes, and prayers.

[ollineeba]

Mamabear, it must be frustrating that it's taking this long to get any answers
Your midwife sounds like a very competent, get-things-done sort of person, though, so hopefully you'll get somewhere soon. Good luck

[eloise24]

I'm so glad you have a great midwife! Hope things work out mama!

[Surfacing]

Hang in there until Monday. Glad to hear your midwife is on this now.

[zenma]

sending good thoughts your way! i'm glad you have a good midwife, as well.

[GinaRae]

While it could possibly be true, most likely it's a false sign of DS. That's becoming more and more likely these days on u/s. "They" think perhaps it's because u/s is better than ever and therefore catching things that they used to feel weren't as common.

I hope everything settles and turns out okay but I can tell you a lot of MDC mamas will say they'd had the same thing and it all turned out okay! Seems like the trend is the u/s NOT catching things and instead giving false positives.

[tyisrrs]

Yuck, I'm sorry your on this emotional roller coaster. I really hope you can get some definitive answers soon, if only to get a little peace. (((Hugs)))