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New information about infections causing ASD?  

post #1 of 5
Thread Starter 
Here is a letter writen by the co-founder of the LIA Foundation. I thought it was very interesting and thought I would pass it along. I just recently found out that I have lyme disease (no symptoms) and have passed it on to my 3 children (one who has Asperger's.)

WHY THE AUTISM EPIDEMIC WILL CONTINUE, DESPITE REFUSAL TO VACCINATE

Dear Autism Community

We have been led to believe that the sole reason for this epidemic of late, is that we are vaccinating too much, and with neurotoxic heavy metals, and adjuncts. I do not put this theory down, only add to it. May I shed light on this, as I have come upon some material that may enlighten us? This may answer questions of genetics, environmental hits, and ioatragenic causes.

In fact, I believe that the current epidemic, is because parents are harboring persistent infections and very toxic bodies which affects their ability to have normal pregnancy, delivery and outcome of developmental "rightness" in their children. But why my child? Why our family? Vaccinating a population of people with UNKNOWN HARBORED INFECTIONS/TOXINS is dangerous. The synergism between someone infected with something, and someone who has now a lowered immune response to that initial pathogen, is in fact, allowing infections to become harbored and late stage. Having toxins in our body also damages our DNA and makes them "fragile" and unable to handle pathogens in timely manner.

1-4 New Yorkers were currently tested for their levels of serum mercury levels. Out of every four, one person had extremely high levels of mercury. Mercury is known to have deleterious affects on the immune system, metabolic system, nerve endings, etc. It may persist in some tissue, however, research of late shows it as a hit and miss tornado event like quality. The leftover disaster is probably what we are dealing with. For certain people with certain haplotypes and genetics, some people can't handle this amount of toxins. Specifically we are looking at HLA-DR4. 30% of the population in the US is of this haplotype. Typically these same people have a lot of family histories of autoimmunity/blood borne diseases. This also involves other genes such as methylation genes, sulfation, APO, metallothionein, MTHFR/COMT, zinc metabolism, and even iron metabolism. Many children on the ASD spectrum are of the haplotype, HLA-DR4. They also have specific problems with their complement system, namely the C4B anulle located on chromosome 6. This protein lysis and identifies foreign bacteria, viruses and fungus. A null allele means just that, it's not working. This is crucial information as I write on here...because what I am about to say to you, is that we are experimenting on sick people.

Unfortunately, if you were to walk into your doctor and ask for a lyme test, only 5% of you, mostly in endemic areas would test positive. Let's ask ourselves why? First of all, the criteria for this testing was set due to a clinical trial for the LYMERIX vaccine. In this trial, they began to notice that "certain people", started to get arthritis from the vaccine, even neurological sequale. They wanted to avoid this. Once they figured out why, they began to suppress why even though SKB and other vaccine manufacturers were concerned. A series of products emerged to capitalize on the market for lyme disease tests and vaccines. The products are rooted in patents filed by industry, government, and academia. Many of the patents have been funded in part or almost completely by the US Government, including such agencies as NIH and CDC. When the government agencies hold rights to revenues from their inventions, they must be considered in any discussion concerning conflict of interest as well. In classified documents obtained by FOIA, many of these scientists have falsely written off adverse events or data and their conflicts of interests. By virtue of powerful conflicts of interest the motivation arguably exists that vaccine trials mean millions of dollars in funding for participating labs and are substantial sources of revenue for study sites. These laboratories are required to report to the FDA any adverse events. The FDA has authority to shut down the vaccine trial if it receives reports from the laboratories with sufficient numbers of those with serious medical consequences so as to cast the vaccines safety in question. The FDA Advisory Committee reviewed LYMERIX, and expressed concern that the vaccine could provoke arthritis and neurological sequale. With great ambivalence and with many provisos, this vaccine was passed, but passed by the very people who would benefit by introducing this vaccine into the community.

In other words, a meeting in DEARBORN, basically said in an unofficial way, that they would not know if someone had lyme or not when they got vaccinated, thusly, would worsen or waken the bacteria in them. How is this not different from a child who may be also harboring a persistent infection since conception or otherwise, and waking that virus, or bacterium in them?

When a tick bites you, it puts out a surface protein into your serum. When it gets into your blood stream it becomes another surface protein, typically OspA or the 31 kilodalton band. When they clinically trialed this, they did not ask the recipients nor tested them for whether or not they had certain bands present, were of the HLA haplotype etc. This began a long course of adverse events in the VAERS system, which included not only arthritis, but neurological motor neuron diseases. In fact, it was beginning to look like the vaccine itself, was causing the very thing they were trying to prevent, lyme disease.

If you think this does not exist within every vaccine market, think again. In fact, trials such as this, typically try to exclude people who are ill, who have underlying problems. However, in this trial, how were they to know that people being vaccinated for lyme, didn't already have lyme? Or the HLA DR4? If one accepts these possibilities, then one cannot accept that those who test NEGATIVE for lyme disease by current standards are definitely FREE OF THE DISEASE. This then puts the number of people infected at very low levels. As they like it. This means, that if you asked your doctor for a test, you will receive a test with narrow criteria for lyme based upon trying to exclude "Certain People and specie specific bands". If you tested negative on a "regular ole lyme test", please retest with IGENEX (www.igenex.com ) and look for specific specie bands. Especially parents, that ALREADY have one autistic child, have symptoms themselves (very large list), and or generally feel UNWELL or have neurological problems and arthritis symptoms themselves (symptoms too numerous to list here, but needless to say, lyme mimics 300 diseases).

That is why it is so crucial to accept that vaccinating individuals is a roulette game, and cannot EVER be said to be SAFE and EFFECTIVE. The mathematical occurrences of SIDE EFFECTS would be huge. We cannot also accept that the vaccinated will harbor late stage persistent infections-not unlike what we see with the MMR vaccine in our children. And, when they clinical trialed this vaccine, they could not accept that a vaccine made from genetically engineered parts of the pathogen (get that, engineered) is in question and is NOT BENIGN. This then lays to rest any idea that the most rigorously designed study can prove the vaccine safe or unsafe. The variables of our haplotypes are the constant. Constants express when variables are placed on them. They knew this vaccine was not 100% effective, and that for theoretical interest, vaccinating a million people would have untold consequences.

What happened in this trial was truly disgusting. There is evidence that some individuals who have been or are currently infected with the lyme disease bacteria have experienced adverse events to the OspA based lyme disease vaccine that far exceed the reactions stated as possible given to potential participants in vaccine trials. LDA believes that the removal of OspA and OspB from the DEARBORN criteria has done irreparable harm to chronic lyme disease patients who present with those specie specific bands. Many patients have gone on to develop LATE STAGE difficult to treat disease, because disregarding these markers as instructed by the CDC and diagnostic labs (and now written in proverbial stone) have consigned them to the negative category for lyme. The vaccine also induced autoimmune arthritis and even MYELIN and BRAIN damage in certain people. Specifically, researchers have associated treatment resistant disease in the presence of CLASS 2 major histocompatability genes, particularly certain DR4 and DR2 alleles. Excuse me people? These are the highest probable genes found in ASD children!

So, it sounds like I am really saying, vaccines are the cause. But what I am really saying, and what the truth is, is, that our kids should not be vaccinated with the current vaccine schedule-especially with these genetic haplotypes, and not knowing if you have already an infection in you. This is because having lyme in their parents, and a congenital infection, with not knowing if you have this or not, is like putting a bullet in a one barrel shot gun. The FDA is AWARE of very recent data that further supports the hypothesis that cell mediated immunity may be involved in the pathogenesis of treatment resistant late lyme arthritis. Would it not be any different for a child, who had received all his vaccine series, who has these alleles and genes and the very viruses these vaccines are trying to prevent? What this peptide does is bind to HLA-DR4 alleles, and provides a molecular explanation for a vaccine inducing illness. It is my contention, that a large percent of the autism population does have lyme or other tick borne disease or mycoplasma, does have this allele, does have this propensity to autoimmunity, therefore, biologically explaining an epidemic by infection, naturally derived, and or vaccine derived, or the combo of the two. In fact, lyme can be transmitted not only by a tick bite, but by other species that suck blood, by semen, by breast milk, by sexual transmission to fetus through the placenta, by the blood supply that is not screened, and possibly even a food source in our food supply (probably cows). Every state of the union has lyme.

There are some parents who never vaccinated their children, why do they become autistic? It is my contention, that again, they have these alleles, they have specific immune derangements, and when given this infection at a key developmental time, can in fact, create autism in a child. One illness/toxin loading event in their babyhood could trigger or wake up this bacterium, even if it does not come from a vaccine. The reason we have an epidemic, is now we are TRIGGERING the infection at a key time in a large clinical trial setting if you will. Extended haplotypes were also looked for in the HEP B vaccine trials. Thereto, they also found the HLA-DR4, DR-2's did not respond well to the vaccine, and had higher side effects, even damage. Vaccinating a large percentage of the population is risky. This unfortunate allele can develop subsequent infections, often chronically and persistently harboring either the infection, or the aftermaths of the infection. It may well be that the vaccine is associated with the actual infection it was trying to prevent. Quotes from this meeting, were like, "we are all worried about this", and side affects are a "relative term". And or, we cannot think a vaccine trial is the "real world". And in the "real world", people are not monitored as they are in clinical trials (duh!). Nonetheless, concern over this theoretical genetic link to vaccine damage continues. A panel of FDA advisors met in May of that year to review the vaccine's safety and many panel members worried openly about the genetic issue.

We don't know, simply, what vaccines do in the long haul. And we don't know, if we are modifying this bacterium, to specifically go after the CNS? In the ideal world, people will be tested for these genetic frequencies, and told the possibilities of pathogens persisting in them. What mother do you know would sign on for that task or risk without knowing this risk factor? Exactly! Would I say, this vaccine parallels what is going on in the autism community, as they furiously try to prove, with the smallest means possible, that we have the same thing going on? Not unlike the Simpsonwood meeting, we learned how "concerned" these people actually were when they saw the relative risk of vaccinating children with mercury levels such as we do and basically voted to keep that harmful implicating data to themselves? In like fashion, it still presses forward because of these conflicts of interests, which are never relayed to the public. Provisional affirmatives does not mean these people hold out for the truth. More like hold out their hands for their stake in the pie and look away and sleep at night. In one quote, Dr Greenburg said the following "I vote yes on LYMERIX, and I am not sure this proviso has been thrown out. But this vaccine has the potential to be like the inactivated measles vaccine, and that is to cause a late unanticipated event in people who were vaccinated with a different disease. So there needs to be careful monitoring (my quote, that won't happen), even if there is not boosting of people over time-over 5 and 10 years to make sure they don't respond to a secondary infection in a different way".

In fact people, Osp A, is a similar human protein found on blood cells. High levels of antibodies to OspA correlate with severity of joint swelling in people with lyme arthritis, suggesting that the body's immune system response against the infection somehow triggers an attack ON ITS OWN JOINT TISSUES. How is this not different from a child who has molecular mimicry from their childhood vaccines and has numerous antibodies to their own brain tissue when in fact, they use pieces of brain tissue in that vaccine? People who have tissues that carry a cell surface protein known as HLA-DR4 are more likely than others to develop PERSISTENT arthritis from lyme disease and more prone to COMPLICATIONS from vaccinations, IN GENERAL. Many people with lyme report that there disease was activated soon after a vaccine series-even if it was not Lymerix. This may explain this epidemic again, are we vaccinating children with lyme and they at that point, will not handle vaccinations AT ALL? A Total of 1.048 adverse events were reported in people who received the Lymerix vaccine. Some even had facial paralysis and allergic reactions, some even now in wheelchairs. When you look at these reports, they are very compelling. How dare I say, that autism has become a non issue to these same people? This should be a reminder that even with so called extensive testing, one cannot guarantee that a new drug or vaccine will not produce unexpected side effects and demonstrates the need for closer safety monitoring after products are approved. Even if they did a study on 10,000 for the study (never done, never will be), this will not pick up what will happen in the million people out there in the "real world".

What I am suggesting is, we are seeing in our organization a great deal of the walking dead and wounded, namely the mothers. They are not only dying from the stress, they are dying from an illness in them! When asked recently at a conference how many had these symptoms on a power point, which were lyme symptoms mind you, almost all of the hands in the meeting went up. The same was asked of their children, and with like response. This is confirming my already cemented belief, that we have some moms out there who are not putting their oxygen mask on, and not recognizing, though have something quite "narly" is the vernacular, going on in their own bodies. They are giving this to their children, and their genetic susceptibility to not handle infections well, from either vaccines or naturally derived infections AND toxins or simpy their genetics, or in other words, stirring EPIGENETIC causes to disease. This does not exclude the fathers, who are often carriers of this borrelia related complex AND Toxins. My suggestion to this community is to wake up to some certain facts as I had to do. Recently, our family did Neurospects, on all family members. I was not surprised by the extent of damage on my children (well, maybe a little bit), but more surprised on what was happening to me. Even though I function, can put one foot in front of the other, and somewhat survive this autism/lyme jungle, I have in fact a brain that is deteriorating due to this disease, and toxins. Mothers? Have you thought of this one? Are you going to be there for them? What if I told you, you can and could reverse this process, by not looking away from some obvious things? Would if I told you that same hope could be there for your children?

Some DAN doctors believe, "well, everyone has lyme then". May I suggest, yes, if you have an autistic child, you most CERTAINLY have it. If you go by the DEARBORN criteria, my guess is, you don't. But my deeper guess is, that you do. The most sick are the least likely to produce antibodies. Would this not be timely, in such an environment of this level of concern, is to get tested for around a hundred dollars, and find out ( I have no financial ties to this, take it at word)? Tell me, if I am wrong? Vaccines in fact, change the immunological profile in your body, for a lifetime, rendering it open to other infections-but so do persistent infections. What can be gained by dismissing this infection? Nothing. I have serious reservations about our medical community-especially the ones that treat our children, if they are not open to every ROCK UNTURNED in this epidemic nor are looking to the mothers/fathers as the source of these infections/toxins. Let's not upset the apple cart or the business model here, meanwhile not putting upon ourselves undue burdens or the one more thing to think about scenario. I am asking with all my heart, that you begin to see this connection, and that we stop this epidemic by our wise standards and questions, not our dismissals. I don't want to identify autism in a year old, I want to STOP IT. I am very sure there are many asymptomatic people out there, harboring this infection, and don't know it, and are dismissed as having it. Indeed if the case definition of lyme is either broad or serologically uncertain, one may have to concede the existence of seronegative lyme disease, asymptomatic or subclinical lyme that later becomes chronic because left untreated, persistent infection beyond the "cured for four weeks scenario", the reality of antibodies to OspA, the existence of many unknowns including variability of some 300 strains and rapid mutations inside the host, and possibly, that, we know so little about the genetically engineered antigens of the pathogen. It's not hard to recognize we have concern about this in our community when we start to crunch the numbers of people infected, and have very serious symptoms.

If this was too bold, I apologize. But, I have heard of too many DAN doctors unwilling to approach this with the keen eye necessary to know what to do about it. It is in fact, a very disastrous scenario that we heretofore have not even begun to punch through yet. Our hopes as a foundation, is that we don't confuse or confound the issues of autism, rather, shed further light on why this is happening-maybe even add some hope. We also feel that various multi infections could be present, not just lyme-which seem to hang around lyme infected people, including HHV6. We feel as a whole that our nation has become severely unwell. We hope to tinker on these points, and prove them, but know that we have an uphill struggle with the ideology of what infections can really do and the struggles that our physicians face who treat us. We should not narrow our thinking on case definitions and tests, but begin to identify clinically what is lyme, what is this infection capable of doing and what is going to happen if we ignore it-especially a mother who has an autistic child? The more of us that get tested and identify properly this pathogen, the more concern the autism community will devote to it. My hope is that you become your own project mothers, and begin to recognize, you must be there for your children.

Sincerely~

Kathy Blanco
Vice President Co Founder
LIA foundation
www.liafoundation.org
post #2 of 5
I didn't get a chance to read the entire thing.
My take (and science would support) on why autism will continue no matter what parents and others do or don't do? Because it is genetic. I'm not saying environmental influences play no part (they likely do in most cases). But the heart of it is in the genes.
post #3 of 5
There is no reasonable or informed support for the idea of an autism "epidemic."

ETA: After reading the letter you posted, I suggest that it might be found more appropriate on the vaccine board, where these sorts of discusssions are hosted.
post #4 of 5
Thanks for posting the info. I can see posting it here and on the vaccine forum. I have no judgment against the op in regards to some of the words used within the article... maybe some judgments on the author.

So anyway- interesting to read and wonder about. I am always amazed at how the question why drives people on a quest for answers. It comforts me that even though they may not come up with why autism, maybe there will be cures found for neurological diseases that otherwise would not have been found. Then again I often am accused of being a Pollyanna...
post #5 of 5
Thread Starter 
The thing about autism (or ASD) and lyme is that if the lyme is addressed, then the autism can get better, and even go away. Some autistic children have gotten better by ONLY treating lyme. Others need to address additional issues, such as gut, metals, etc...... We are working on everything for my child. I just want him to be able to get through the day without screaming at everyone. He is sick, and I'm just trying to get him better. I'm not trying to change his personality. As far as I'm concerned, his illness is seperate from his personality. He is very smart, etc... and I'm not trying to change who he is. I'm just trying to get the bad bugs out of him. And those bad bugs are invading his brain, along with his other organs, gut, etc......
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