Quote:
Originally Posted by niblet  subbing.
I was diagnosed with Lyme in April 2007. I had no idea that I had it. I did know that since the summer of 2006 I was exhausted, irritable, and unable to concentrate.
In March, my knee swelled up to twice its size and I could barely walk. After a visit to the orthopedist - and no improvement after a few weeks, he tested me for a variety of things. He called me personally to tell me that it was lyme.
My GP did 2 blood tests - western blot and another, and put me on antibiotics for 3 weeks. While my knee is better, I am still exhausted, and still irritable. And PMS is wretched, both for me and my family. 
Right now I try to drink red clover infusions every few weeks, and take C, calcium/mag/zinc, primrose oil and EFA's (when I remember.)
I am tired of having to write everything down so I can remember! Life is turning into one big post-it note for me!
And man, is it hard to read medical info when your brain is fogged! So while I am slowly trying to amass information, I am very grateful for your knowledge. Thanks for starting this thread.
Oh and what does the <3 mean? |
I only read so far on the first page when I saw myself....
I know not much abotu Lyme. For two
years now I have been suffering with a multitude of symptoms and no help. I have been frustrated and crying and a wild banshee woman for 2 years. Oh yeah and in pain too.
2 years ago I gave birth at home to a healthy baby girl. One week after this is when I found the tick in my thigh. I screamed and told dh to get it out because I couldnt even look at the thing. i went right to the dr and she didnt even want to see it she said she would bet I have nothing to worry about. I insisted on showing her anyway and she said nope, no bullseye ring, no lyme. I went away thinking ok I am definitely fine.
a few weeks later I was limping, but not bad, just figured ok I have four kids and i am extremely busy. I was always tired. Always. But i forced myself to do things because I had to. I am a person who does not rest.
these have been what I have been battling for 2 years straight, not even sure if they are lyme related:
hyperthyroidism(which has corrected itself on its own, no thanks to beta blockers which caused an asthma attack...went to many different homeopaths, drs etc to find a cure for this too.)
palpitations, severe at times to where I was crying and convinced I was dying. All tests showed them come up, but that they were benign.
pain. Entire body pain, and when i dont have that, I have extreme hip pain to the point where I got an xray not long ago because i thought i hurt it ( i am a dancer). No one could find out whats wrong with my hip, they said maybe arthritis and get PT.
weird fever feelings with pain. When i got this at first, I said oh great i have a new baby and im getting the flu. Started on echinacea and vit c. My flu like symptoms lasted 24 hours and I was fine. This has been happening at least once a month. Sometimes weekly.
Leg and foot pain, sometimes hand pain. These pains are not debilitating, but are very bothersome. and they make me extremely tired. By the time night rolls around, i want to get into bed and have someone massage my entire body. i feel ike i need a massage hourly. i did get a massage not too long ago and it felt good for the time, but when i got up to go, I was still limping with hip pain. the hip pain comes and goes---comes on especially while sitting for long periods of time, when i get up I almost fall but then as i walk it out it gets a little better. still not 100% but at least i can walk.I feel every night like i have gone 10 rounds with someone and they won. seriously...and you know what I feel like a hypochondriac.
Painful periods and RAGING pms. RAGING. I cant even begin to describe how this has worsened in the last few months. I am a raving lunatic lately and so frustrated because i couldnt pin point exactly what was wrong with me. Does lyme make you nuts, because i certainly am at times. I am taking fish oil only because I read that may help with my moods, and it does on and off. Some days it doesnt matter, but it did take a great edge off.
'
Muscle twitching. Right now, the last 2 days, my eye has been twitching so badly that it is forced closed. Then my eyes tear and its so annoying. Its only one eye, but not cool when driving.Other muscles that are twitchy are legs and arm.But not that bothersome at all. just annoying lol.
Depression. On and off. I had PPD after my baby was born and i never ever had it with my other kids. not sure if this is related to lyme--i have no clue about lyme really. im on here trying desperately to get help before my dr appt today. I was diagnosed yesterday my labs came back positive.
Memory loss---oh gods this is horrible. I thought it was just because i was getting older, doing too much and have lots of kids. i cant remember crap. some days are better than others. in my dance routine, I am having difficulty some days on remembering what comes next. i was never like this. songs I know the words to---suddenly i am at a loss. I cant even remember where I put the baby wipes 4 seconds ago and it frustrates the hell out of me. I will sit and cry and cry and have a total fit because i cant find where I JUST LAYED THEM! then i will find them in an odd spot and not remember putting it there, or question, why do I put things in places like this that are not my normal places?
Meltdowns. for 2years my meltdowns have gotten really bad. I will just fly off the handle for no reason. PMS is a horrible horrible time lately. Its just getting worse.
Strep. I have gotten strep 4 times in the last two years. I have NEVER ever had strep in my entire life until when my baby was 3 months old. and it was brutal. Last time i had strep was april of this year. I can feel im due to get it again. I just know when somethings brewing. and somethings been brewing for 2 years and ive been out of my mind trying to figure it all out. Thankfully someone here on mothering mentioned a few months ago i could have lyme..otherwise i would not have thought to test.
when i first got bit i didnt have many symptoms. slowly its been increasing over the 2 years. Over the last few months I have developed the hip pain..the body pain and weird fever feeling (never actually getting a fever--though sometimes I did) i had since 2 weeks after getting bitten. The last time i had the flu symptoms was 2 weeks ago. I laid in bed after dance (seems that after dance is when I get sick for some reason) and felt my heart pounding and a fever felt like it was coming on and my entire body felt like i had been severely beaten with a meat mallet. I said oh well im getting the flu or a bad virus...i told dh get the tea ready lol. But by morning, i was fine (aside from the normal pain that has become my normal life.) and just said ok it wasnt getting sick, just one of those weird fever pain thigns. Dh said i felt a bit warm that night too so maybe i did have a fever.
the dr i am going to is not my normal PCP. i dont even know this guy but ill go see what he says because i need to figure out what my options are. But i came here first to see what my real options are. Left untreated can it really get bad? i dont want antibiotics. I dont. I hate taking pills at all, i have anxiety and get really sick with worry. I dont want to be allergic to something either. I really hate this.
I am still nursing my 2 year old...should I test her for lyme? should i test my entire family? my dd was bitten years ago by a tick...i will test her. my tick was different though dont know if it matters, but mine was tiny tiny and had not blown up...dd's was huge and had blown up. i had brought her to dr back then and they told me same thing that no bullseye no lyme. Bull
is what i say. i dont trust doctors in the last 2 years anyway since i have become empowered in taking my health into my own hands. But now I am just at a loss. That dr who told me the no bullseye crap we left when my baby was 1 month old. I just didnt like her and she was trying to force me to vax when i didnt want to.
where do i go from here? i visited that website someone had posted in the first set of threads. My hands and wrist are hurting from typing so much(i am a writer and have been typing since i was 6 and never had this pain till recently) so i am going to go...but i need to be armed with knowledge. I need to. Just seems like every month or every couple of weeks some new symptom comes up. I felt like a freak in my body not knowing what was going on with my body. I knew that something has been wrong and have yelled at doctors when they said well we can do this and that but basically you are healthy. yeah im healthy BUT SOMETHING IS WRONG!
i am glad i found out that I have Lyme. now I may know why i have been so crazy...i sure hope this is an effect of lyme...otherwise I really am going nuts. Oh one more symptom I just remembered...for over a year and a half, its been increasingly hard to button buttons and snap snaps on the baby's outfits. I cant even open pickle jars and my fingers sometimes just wont do what i need. ugh.
Again i am glad i found out. Now i have something to say ok this is real, this is not anxiety, this is real, its concrete. Something is wrong and I am going to continue to fight. I dont ever rest or slow down unless its bad...sometimes it is pretty bad, the pain but i keep going because i have to and love to dance. the only time its knocked me down was when i had strep. I didnt even know where i was or care. Alli i know is i was literally knocked down onto the couch and stayed there. I wont ever stop moving.
)
: (Not irked at you, at our government, lol.)
