Mommas with Lyme Disease <3 - Page 19

[logansmom109]

Panserbjorne,

Thank you for so much great information. Slowly but surely I am getting this stuff. I am going to look up this My Lyme Immune ID today. I had not heard of that before and I even work in a Dr. office (not a LLDM mind you).

To give you an example of these drops I was given, there are two brands, Deseret and DP Nutritionals. Some are called homeopathic and some are herbal. An example of one says "homeopathic bacterial combination". This is a Deseret brand. The ingredients list about 13 different bacteria such as strep, borrellia, etc all at 6X. There is one for parasite, one for fungus, two for candida, etc. Does that help you know if she is doing the slow drainage thing or not?

Unfortunately I met with her on the advise of a friend and the experience was subpar. The aftercare, when I had a question about the alcohol content being contraindicated in Lyme was even worse with the office manager getting very defensive and rude with me and telling me the lady was too busy to answer her own messages so she was answering for her. I know I will not be going back to her, but hate to waste all of this money, if they might do some good.

What do you use specifically for drainage and is that the same as some call detoxing? Which cell salts do you find to be most helpful with Lyme or is it more symptom based? I have the basic travel kit that has all of them, but haven't quite figured out which to use. My biggest symptoms currently are the terrible peripheral neuropathy and neck/back muscle spasms along with the ever present fatigue and insomnia/anxiety.

Have you treated many folks with Lyme over the phone? I just wondered if this was something that would be better with face to face contact or what your experience has been. Thank you again!!!

Erin

[Panserbjorne]

honestly deseret is a GREAT company.  That's not really homeopathy though.  I use several of their products because they work.  That's more in the realm of isopathy which can be very effective.  Are you feeling any better?  That's the gauge. 

What you are doing is not really drainage-which is sort of detoxing.  The idea behind drainage is it helps the emunctories function on a higher level AS you are detoxing so things like toxins don't hang around in your body causing more trouble.

For the symptoms you listed you can try the five phosphates...very specifically kali phos and mag phos.  I'd include the others though.  Working with cell salts is a very symptoms based approach.  Some people have more connective tissue issues and that would be a different set of salts.  Some have flu like symptoms...again, different salts.

I do work with people over the phone and have 2 people that have done teasel long distance (they administer the remedies themselves with my guidance.)  Not everyone uses teasel, but many do.

I haven't personally found that the small amount of alcohol is an issue, but I do wonder why you can't put it in water?  I just have people sip throughout the course of the day.

Are you doing magnesium and iodine?  I think you said you're doing B-12 too...is that helping with the neuropathy?

[kjbrown92]

I'm not on Levaquin and I have Bartonella. I'm on minocycline and Bactrim (my DS is as well). My LLMD says that the Bactrim helps the minocycline get through the Spirocete cell wall. I've alternated that with teasel and another herbal remedy (Byron White Formula). and I've taken the cell salts that Panserbjorne recommended and they've helped the inflammation immensely. Keep reading - there's some great information on this thread!!

[logansmom109]

Well, I am glad to hear the vote of confidence on the company itself. To answer your question, I am not feeling much difference at all. My attitude is partially to blame b/c I can't get past the horrible taste and I dread taking all those drops three times a day.

Will definately get out the cell salts and start on those you mentioned.

I am taking a chelated magnesium but have not been educated enough on the iodine issue to do that on my own and no doctor will address it with me. Open to suggestions as I know from the experience I had with the CT contrast that it would help me.

I am doing the sublingual methyl b12 3000mcg tid. Dr. prescribed injections but it is the cyanocobalamine which I had read wasn't as good??? With all of this no improvement with neuropathy at all.

I am ignorant on the Teasal issue. Will be looking that one up next. Thank you, thank you.
 

Originally Posted by Panserbjorne 

honestly deseret is a GREAT company.  That's not really homeopathy though.  I use several of their products because they work.  That's more in the realm of isopathy which can be very effective.  Are you feeling any better?  That's the gauge. 

What you are doing is not really drainage-which is sort of detoxing.  The idea behind drainage is it helps the emunctories function on a higher level AS you are detoxing so things like toxins don't hang around in your body causing more trouble.

For the symptoms you listed you can try the five phosphates...very specifically kali phos and mag phos.  I'd include the others though.  Working with cell salts is a very symptoms based approach.  Some people have more connective tissue issues and that would be a different set of salts.  Some have flu like symptoms...again, different salts.

I do work with people over the phone and have 2 people that have done teasel long distance (they administer the remedies themselves with my guidance.)  Not everyone uses teasel, but many do.

I haven't personally found that the small amount of alcohol is an issue, but I do wonder why you can't put it in water?  I just have people sip throughout the course of the day.

Are you doing magnesium and iodine?  I think you said you're doing B-12 too...is that helping with the neuropathy?

[logansmom109]

Originally Posted by kjbrown92 

I'm not on Levaquin and I have Bartonella. I'm on minocycline and Bactrim (my DS is as well). My LLMD says that the Bactrim helps the minocycline get through the Spirocete cell wall. I've alternated that with teasel and another herbal remedy (Byron White Formula). and I've taken the cell salts that Panserbjorne recommended and they've helped the inflammation immensely. Keep reading - there's some great information on this thread!!

[tatsu15]

Originally Posted by kjbrown92 

My osteopath said the Igenex test is the only one worth doing. It's the only test I had (and my kids). And we all tested positive the first/only time. Some lyme doctors treat on symptoms alone, I believe. And make sure you get a doctor who is in ILAD (I think that's what it's called but can't remember what it stands for except the L = lyme). The book I got that was the most helpful was called Healing Lyme.

Is the Igenex test also called western blot test? My doctor just placed an order for me to have the western blot test but she said it's  a non specific test (not sure what that means) and results can be inconclusive.

[Panserbjorne]

Originally Posted by tatsu15 

Originally Posted by kjbrown92 

My osteopath said the Igenex test is the only one worth doing. It's the only test I had (and my kids). And we all tested positive the first/only time. Some lyme doctors treat on symptoms alone, I believe. And make sure you get a doctor who is in ILAD (I think that's what it's called but can't remember what it stands for except the L = lyme). The book I got that was the most helpful was called Healing Lyme.

Is the Igenex test also called western blot test? My doctor just placed an order for me to have the western blot test but she said it's  a non specific test (not sure what that means) and results can be inconclusive.

they sure can be.  that's why I'm telling people to look at the neuroscience test.  the western blot is 1/4th of it.  It is generally covered by insurance and gives you pretty definitive results.
 

[tatsu15]

I got the results back awhile go for the western blot and it was also negative.

[PicklinQueen]

Hi Mamas - haven't  been on Mothering in a long time. Thinking of TTC this summer: but am concerned due to having been diagnosed with Lyme's in May 2011 (infected in Nov 2010). 

Been through three six week cycles of antibiotics, the last of which was incredibly tough on the system. (Anyone else ever take Tindamax? that stuff knowcked me out, even though I only took it 3 days a week, while also on clarythromyecin and augmentin.) some of the others I took include Amoxcillin, Zythromyecin. I was diagnosed through the Igenix CD57 count ( had less than 1% when diagnosed), and have been working with an amazing midwife/ND here in Maine. I also used Zhang garlic pills, grapefruit seed extract,  Artemisia for the babesia co-infection, teasle, probiotics and various mushroom concoctions to try and up my immune system. Been slacking on my supplements recently, need to get back to it. 

Last treatement ended in September, haven't been able to afford going back for another blood test, but symptoms have been slowly decreasing. 

I've been juicing vegetables several times a week (every day when I can remember), and try to eat low-carb when I can. Harder in the winter due to heavy reliance on local foods. 

Just wanted to introduce myself and say "hey", looking forward to sharing and learning from all of you. 

Edited by PicklinQueen - 2/28/12 at 9:06am