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post #41 of 369
When physicians do consider borreliosis, they often start with a screening test such as an EIA, ELISA, IFA or PCR-DNA probe. If the initial screening test is negative, many physicians tell patients they do not have Lyme borreliosis and the testing is stopped right there.

Screening tests that are positive are often followed by a test called the Western blot. The blot is a “confirmatory” test, as opposed to a screening test. (Blots are performed for other infection -- it is a type of test, not a test uniquely for the Lyme bacteria.)

Western blots are accomplished by breaking the Borrelia burgdorferi into pieces, and those parts of the Lyme bacteria are then embedded in a gel. Electricity is used to push antibodies made by the immune system through the gel. Antibodies that are made to attach to certain parts of the Lyme bacteria will bind to those exact parts that are embedded in the gel. When the antibodies bind to the parts of the bacteria, a black band is formed, which is then interpreted as +/-, +, ++ or +++ depending upon the intensity or darkness of the band.

Each part of the Lyme bacteria weighs a certain amount. For example, the tail of the Lyme bacteria weighs 41 kilodaltons (kDa). Think of kilodaltons like pounds, ounces or kilograms. The numbers on a Western blot such as 23, 31, 34 or 39 refer to how much that particular part of the bacteria weighs in kilodaltons. The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.

It’s important to know that screening tests like the EIA, ELISA, IFA and PCR can be negative even when the Western blot (confirmatory test) is positive. I presented research that supported this at the 1994 International Lyme Borreliosis Conference held in Bologna, Italy.

For this reason I believe the screening tests are practically worthless, and is why I use the Western blot to “screen” for borreliosis, even though it is a “confirmatory” test. Antibodies are very specific as to what they bind; consequently, in over 700 borreliosis patients false positive blot results occurred in only three percent of them, based upon research I presented at the 2000 International Lyme Borreliosis conference.

Data from those same 700 patients showed that if their Western blots had even one antibody significantly associated with the Lyme bacteria, then there was a 97 percent chance they would feel better with antibiotics. Consequently, I tell my patients not to worry if the laboratory interpretation is “negative” or “equivocal,” if they have antibodies that are significantly associated with Borrelia burgdorferi.

One thing doctors are taught in medical schools is to treat the patient, not the test result. If someone has chronic pain, fatigue, cognitive problems, blurry vision and/or neurological problems, and also has a significant antibody on a borreliosis Western blot, that antibody should not be ignored in my opinion, even if the ‘official’ interpretation is negative or equivocal. Remember, antibodies are very specific to what they bind, and borreliosis may cause virtually any symptom and any disease.

Disease surveillance is close observation of a group of patients with the same disease, and it is one of the jobs of the Centers for Disease Control (CDC). Criteria used for disease surveillance is often different than criteria used to diagnose and treat patients. In my opinion, surveillance criteria should not be used in day-to-day clinical medical practice. Unfortunately, many patients are told they do not have borreliosis because they do not meet CDC’s surveillance criteria. Surveillance criteria exclude some of the classic hallmark antibodies, such as the 31 kDa band (outer surface protein A or ospA) and the 34 kDa band (outer surface protein B or ospB). In fact, the 31 kDa band is so tightly associated with Lyme borreliosis that a vaccine was made from that outer surface protein. In other words, I believe that criteria that exclude the ospA (31 kDa) band should not be used to tell a patient they do not have Lyme borreliosis. Common sense should tell anyone that prevalent antibodies like the 31 dKa and 34 dKa should be included in the criteria, not excluded. (Remember, research supports that if just one antibody that is significantly associated with Borrelia burgdorferi is present on a Western blot, 97 percent of those patients with chronic symptoms or chronic diseases feel better with antibiotics.)

Same day head-to-head comparisons of borreliosis Western blot results revealed that reference laboratories do a better job of finding antibodies against Borrelia burgdorferi than regular laboratories. This raised the obvious concern that the reference labs might be overdiagnosing patients with borreliosis. That is one of the reasons why I researched those 700 patients. However, the false positive rate was just three percent. In my opinion, reference laboratories do not over-diagnose borreliosis.

False negative test results, on the other hand, are a much bigger problem, in my experience. Negative Western blots convert to positive in 18 to 24 percent of cases, if four weeks of antibiotics are given, and then the patients go off antibiotics for 10 to 14 days before the repeat Western blots are done. In other words, a false negative Western blot converts to positive in about one out of five borreliosis patients. This is a much greater problem than a false positive rate of only three percent.

Coinfection testing may depend upon where you live on planet earth. I talked to one medical doctor from New England that was concerned about getting too many positive test results for bartonellosis (cat scratch disease). This physician was concerned about false positives. Yet I have not had a single positive yet.

Research by Greg McDonald, Ph.D. has shown that there is a different borrelia in the Midwestern U.S.A. When Dr. McDonald used a PCR primer that would amplify any strain of borrelia, he obtained positives from biopsies of bulls-eye rashes caused by tick bites in patients from Missouri and nearby states. However, if Dr. McDonald narrowed the PCR primers to amplify only Borrelia burgdorferi, Borrelia lonestari or Borrelia andersoni, the results were negative. In other words, the Midwest has a different borrelia. It has been referred to as Borrelia “confusiosis,” but one of these years when it is finally characterized fully, this Midwestern borrelia will probably be known as Borrelia mastersi, in honor of Edwin Jordan Masters, M.D. and his extensive research.

Pathologists who use a microscope to examine bulls-eye rash biopsy specimens from Midwestern patients observe significant and consistent differences when compared to biopsies from New England patients. The diseases and their rashes are similar, but there are definite differences. This is why borreliosis or Master’s disease is a better term than Lyme disease.

Another feature of Midwestern borreliosis is the inability to grow Borrelia burgdorferi from patients with Lyme borreliosis. In New England about five percent of cultures grow Borrelia burgdorferi from borreliosis patients. There are other borrelia* that cannot be grown in culture media. The bacteria that causes syphilis has never been grown in culture media, even though this infection has been known and studied for several generations. It should not be surprising that the Midwestern borrelia cannot be grown in culture media yet. When it is, knowledge of this infection will increase tremendously.

James Oliver, PhD, who is a very highly respected entomologist, has successfully cultured Borrelia burgdorferi from over 60 ticks collected in Missouri. Why human cultures are negative and tick cultures are positive remains a mystery. Still, there is no question but that there is a Midwestern borreliosis.

The same is true for co-infections. The babesia in Missouri is called MO-1. It is a different babesia. There are different ehrlichia. It would appear there is a different bartonella. When you have different strains of germs, the test results may be falsely negative.

To protect patients’ pocketbooks, I rarely test for tick-borne coinfections. If the tests were reliable I would be more inclined to order more. In general, when potential coinfections are targeted with antibiotics, most patients get better.

At least three possibilities exist to explain patients feeling better with antibiotics. It could be that an antibiotic that targets a potential coinfection such as babesiosis may actually be killing the Lyme bacteria as well. Or it may be that a negative test for a coinfection was falsely negative. And finally, there may be some unknown germ that the patient has that responds to the antibiotic. I tell my patients that regardless of why the antibiotics help most borreliosis patients, the benefits of antibiotics outweigh the risks. My greatest concern is untreated borreliosis, not the potential side effects of antibiotics that target tick-borne infections.

Specimens for borreliosis Western blot testing should always be express-mailed to the laboratory. Antibodies against the Lyme bacteria can clump or bind together and give a false negative test result. Express-mailing specimens lessens the time in which this could happen, which in turn increases test accuracy. If your specimen sits around for several days (or if a screening test is ordered instead of a Western blot, or if a regular lab is used instead of a reference lab) then you might be given a false negative test result, which in turn could result in a false sense of security. Testing in my office consists of a Western blot that is express-mailed to a borreliosis reference laboratory.

Written by Dr C of Missouri
post #42 of 369
On the outer surface of the Lyme bacteria are various proteins. As they have been discovered, they have been assigned letters, such as outer surface proteins A, B, and C. The following is a brief explanation of the test results. Again, each band is an antigen complexed (bound together) with an antibody made by the immune system, specifically for that antigen (part) of Borrelia burgdorferi.

18: An outer surface protein.

22: Possibly a variant of outer surface protein C.

23-25: Outer surface protein C (osp C).

28: An outer surface protein.

30: Possibly a variant of outer surface protein A.

31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).

37: Unknown, but it is in the medical literature that it is a borrelia-associated antibody. Other labs consider it significant.

39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.

41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.

45: Heat shock protein. This helps the bacteria survive fever. The only bacteria in the world that does not have heat shock proteins is Treponema pallidum, the cause of syphilis.

58: Heat shock protein.

66: Heat shock protein. This is the second most common borrelia antibody.

73: Heat shock protein.

83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.

93: The DNA or genetic material of Borrelia burgdorferi. In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.

These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93. This is true regardless of whether it is IgG or IgM.. But again, there is no universal agreement on the significance of these bands. Betina Wilska, M.D. from Germany is one of the world's experts on outer surface protein A (31 kDa).
post #43 of 369
"The thyroid is almost always affected in adrenal fatigue, even if it doesn't show up, so if someone has Lyme, they probably have adrenal fatigue which means that their thyroid would be affected as well."


I had a hyperthyroid a few months after dd was born. I developed symptoms (achiness, fevers, strep infections, mastitis, bone pain, muscle pain and weakness, fatigue) about 2 weeks after the tick bite. I am wondering now if the hyperthyroid was because of the lyme. Hyperthyroid has subsided for almost a year now, my levels have been "normal" and last i tested 6 months ago I was still fine. could have also been postpartum hyperthyroidism too i suppose.

My symptoms began within weeks after being bitten by the tick. I didnt put two and two together--just assumed i had alot of kids and just had a baby and was just tired. I had the unusual fevers, constant body aches and pains, strep infections, mastitis, mood swings that were really not like me, etc. I had lots of symptoms. Fast forward to this past june--i thought i fractured my hip it hurts that bad. I even had an xray to be sure. no one could figure out why it hurts me so much. So maybe the levels went up in June? i dont know how that works. but thats when the bone pain began. I had the aches all the time up till that point, but when the bone started hurting i thought i did something and didnt remember what i did to it. and ever since then ive been going downhill. Mentally i am just not right--i almost put myself in the hospital a few weeks ago. Really bad. thats a new thing since september. palpitations began again a few weeks ago, but not as bad as a year ago. Last year it was horrible but then subsided.

I just think ive had the symptoms since a few weeks after dd was born. I dont know what that means, or why half the lyme test is negative. I guess it could be a false negative.
post #44 of 369
Metasequoia~
You have lots of knowledge here, don't ya ??

I feel like I have researched myself to the point of annhilation. I just wore myself out, trying to figure out what it was that was making me feel so incredibly bad. When I first saw lyme and then, later actually considered it, it seemed to good to be true. I thought there was no way that a 'simple' thing like lyme was causing all of my probs. Then, I researched lyme and was shocked at how this thing works. Lyme is anything but simple and anything but easy to treat.

For myself, I felt that since I have chronic lyme, I didn't want to chance it with abx. Yes it could work, but so could the cat's claw. The cat's claw had a lesser chance of damaging my already bad leaky gut and I didn't want to be on IV abx, either. I guess I just figure, that for me, going w/o abx, and using the herbs and supps and following a strict diet, that I will get better. I mean, the human body is always in a state of repair, right? I do think it is very hard to follow such a strict diet. I do feel like this is how people should eat, anyways (see the work of Aajonus Vonderplanitz ). It is hard, though. Lots of work, and it isn't like I am tired already, right? I guess, I am just trying to say that even though LLMDs are a wonderful group of people, I think there are other ways of treating lyme outside of abx.

I hope I didn't come across as snarky, I am waaay tired.

Jamie

I was tested for loads of things at the same time as being tested for lyme and my results showed mild adrenal fatigue and hypothyroid issues.
post #45 of 369
i dont want abx either.

But I am sooo incredibly limited in what i know, and like you, i am way too tired to deal with this. ive exhausted myself for 20 hours trying to find info. And i have, really great info--but my mind is like a sieve. why did i bother reading everything, i retain maybe 10% of what i read lately.

what is a leaky gut?

I put a call into a great naturopath who helped a friend of mine with lyme. So hopefully she will give me some answers and I will better be able to make decisions. I do know i will be taking homeopathic remedies for this along with supplements-just not sure what supplements as of yet. Hopefully the primrose will help, as someone mentioned before. Is that EPO? I know i have neuro stuff going on, i have tremors for 1 1/2 years in my hands and various parts of my body twitch way more than ever. you know the normal leg muscle spasms...well i get them too frequently and now they have moved into my eye. talk about annoying!But i want something that will cross that barrier.

I am too tired and in way too much pain tonight. usually the nights are bad., the past few months ive had insomnia because of the leg pain. ugh.

I hope my naturopath knows about cats claw. I want to know more about it. I want to know more about everything, but i just dont know if i can handle being so obessed about this and taking care of myself. I just dont have the energy between taking care of my 4 unschooled kids and work and what i need to get done before monday night. im just so tired. off to bed
post #46 of 369
Here is a link aboutleaky gut

Neuro symptoms were the scariest thing for me. I was convinced I had Lou Gherigs disease. The muscle twitches, the muscle weakness, etc. It was/still can be awful. I am still healing. It helped tremendously that my ND has/had lyme and is living well with it. She was in a wheelchair at 22 years old and now has a family and is a ND! I just love her. If you want to PM me, feel free! I think EPO is evening primrose oil.

Jamie

Quote:
Originally Posted by doulajewla View Post
i dont want abx either.

But I am sooo incredibly limited in what i know, and like you, i am way too tired to deal with this. ive exhausted myself for 20 hours trying to find info. And i have, really great info--but my mind is like a sieve. why did i bother reading everything, i retain maybe 10% of what i read lately.

what is a leaky gut?

I put a call into a great naturopath who helped a friend of mine with lyme. So hopefully she will give me some answers and I will better be able to make decisions. I do know i will be taking homeopathic remedies for this along with supplements-just not sure what supplements as of yet. Hopefully the primrose will help, as someone mentioned before. Is that EPO? I know i have neuro stuff going on, i have tremors for 1 1/2 years in my hands and various parts of my body twitch way more than ever. you know the normal leg muscle spasms...well i get them too frequently and now they have moved into my eye. talk about annoying!But i want something that will cross that barrier.

I am too tired and in way too much pain tonight. usually the nights are bad., the past few months ive had insomnia because of the leg pain. ugh.

I hope my naturopath knows about cats claw. I want to know more about it. I want to know more about everything, but i just dont know if i can handle being so obessed about this and taking care of myself. I just dont have the energy between taking care of my 4 unschooled kids and work and what i need to get done before monday night. im just so tired. off to bed
post #47 of 369
I never realized how hard this journey would be. I cannot find a doctor near me. The closest one on the website is 3 hours away. i am way too tired to do long trips unless someone drives for me. Dh has to work, he is away 2 days a week in manhattan and I am in VT. I am still trying to find one closer to me. Its a shame all doctors arent taught in medical school how to properly treat lyme. The infectious disease people (who my jerk doctor referred me to) said they cant get me in until mid january. I dont want to wait for antibiotics until then. Now that I have found the cause of my pain I want to get rid of it. How long does this take...how long from the start of abx until I get some relief from leg, foot and hip pain? i still keep up the house and do things with the kids, but i am irritable and cranky and tired and feel so run down every single damn day. some days are better than others with little pain. today its a 7 on a scale of 1-10. Not so bad i guess, but it just makes me so tired. Off to take a hot shower, i so need it.
post #48 of 369
Quote:
Originally Posted by PrayinFor12 View Post
Flutemandolin,
There is? Really? Are you sure it IS accurate or do they just say that. I mean, they say that about the human tests too.
If that info is right, I totally don't get it!
When I took my dog in to get neutered a couple weeks ago, they asked if I wanted to have him tested for Lyme and a few other things. Since he's an outdoor dog (Siberian husky), and we live in a high risk area for Lyme disease, I said okay. The next day when I picked him up they had the results, and guess what, he tested positive for Lyme and one other tick borne disease. He got a month's course of Doxycycline. I'm not sure what kind of test they use, but they must be able to do it right there at the vet's office.

I said I'd tell the rest of my story, so here it is. We (me, dh, ds10, dd8, and ds6) live in a rural wooded area in Minnesota. We have all tested positive for Lyme disease over the last four years; dd and ds6 were the only ones that had the rash. Or I should say rashes; they both broke out in multiple bullseye rashes all over their bodies. (Here's a photo) We found out ds10 had it when he was having pain in one knee; the doctor drained a lot of fluid from it and had him tested for Lyme, and it turned out positive. All the kids seem to not have any symptoms since they were treated with antibiotics...so far.

I suspect I may have had Lyme for eight years or more. I do remember several times in 1999-2000 (also high stress years for me) when for a couple days I would have flu like symptoms and spike high fevers; this was not during flu season. in 2004 (another high stress year) I started having joint pains and fatigue; I tested positive and did 21 days of Doxycycline. I can't even remember if I felt better after that, but since then I have had on and off bouts with pain and fatigue. I have gained over 40 pounds while eating a better diet than ever (I avoid sugar and processed foods as much as possible, eat organic, pasture-fed meat and eggs and organic vegetables, etc.) I think my thyroid has been affected; last year I had a TSH of 3.75 which is high by the new standards, but the doctor said the other thyroid numbers were "normal". One of my eyelids twitches a lot, and I have lots of floating spots in both eyes. I have a few other symptoms, like brain fog and irritability. I've done tons of research on the Internet, and everything I have has been associated with Lyme.

My dh hasn't been feeling right either; lots of sharp, migrating joint pains, and general fatigue. To top it off, he had a stroke a month ago. At age 52. I don't know if Lyme had anything to do with it, but I have heard Lyme can cause stroke like symptoms. Thankfully it wasn't a major stroke, but his right side and his speech are affected, and he's improving with physical and speech therapy.

Of course the doctors around here don't believe in chronic Lyme, although they are pretty good about suspecting and testing for acute cases. Even if they did acknowledge chronic Lyme, I don't know if I'd want to do long term antibiotics. I have heard about the Salt C protocol, and was even trying it for a while, but for some reason or other I stopped. Dh and I are taking cats claw now; we've been on it for about a month and he claims he's feeling better. I think I may have been having a Herxheimer reaction this week; one morning my muscles were achy everywhere.

Thanks all for the good info on this thread!
post #49 of 369
Oh my WORD we're chatty this morning! Good!

Girls, I need specific help here. I am currently 7 weeks pregnant and have chronic Lyme. I've just printed 5 pages from Burrascano and PubMed. But I need more!

Please link me to anything you've found about pregnancy with Lyme! And hook me up with any real people you know who've had Lyme and gotten pregnant.
post #50 of 369
What is the Salt C protocol?

What are my other alternatives, in a nutshell? I cannot keep going through threads to find this i get brain fog and overwhelmed, then i shut the whole computer down and say forget it. What supplements should I be taking? I already know EPO. I am taking a fish oil, dont know if that helps, but it does help take the edge off my moods.

My eyelid started twitching bad 4 days ago. I just thought it was a freak thing and never worried about it. Then 2 days after it started, I found out i was lyme positive. It twitches alot so bad to the point that I cant see when I drive. My eyelid is forced down and flutters. Then both my eyes tear. Last night we were laughing because i look so funny when it happens and then my cheek twitched on the other side. i was like ok ok. all morning its been twitching on and off, and right now my other eye, right below it is twitching. ive had muscle twitches before like in my legs or arms, but not that often. ive had eye twitching when I was younger and under stress, so thats what i thought this was. Maybe it still is, idk. I just know it started 4 days ago and not stopped yet! its crazy.
post #51 of 369
doulajewla,

I know you're confused and overwhelmed right now. I've been there.

Now is the time to just get on an antibiotic. That will start helping and you can work from there.

When I got that bad, I JUST got on the antibiotic. That was the first step. I'm convinced it saved my life.

Start there.
post #52 of 369
I have the doxycycline. I wanted one that will help my brain though. I guess I will start there though I am terrified of taking it. I have issues with taking pills, BIG issues.I fear that I will have a severe allergic reaction. I am so scared more of the abx than lyme itself.
post #53 of 369
Quote:
Originally Posted by doulajewla View Post
I have the doxycycline. I wanted one that will help my brain though. I guess I will start there though I am terrified of taking it. I have issues with taking pills, BIG issues.I fear that I will have a severe allergic reaction. I am so scared more of the abx than lyme itself.
Dr. Hale's book says to only take doxycycline for up to 3 weeks for BF b/c it can cause problems in the child's teeth if taken longer, so I'd take it for the short term and then get something else you can be on long term. You will feel some relief quickly once you start taking the pills or so say DH's relatives that have had the lyme. Just do a search on Hale's forum for the drug: http://neonatal.ama.ttuhsc.edu/cgi-b...cus/discus.cgi You'll get his replies.
post #54 of 369
Thread Starter 

Ask and it shall be given

sorry i feel like total crap today as i have a nasty cold
so bear with me. On a day I am feeling better I will go into
greater depth about the diet , detox and destroy factors.
Until then i hope this will do.

Part of healing Lyme is:

Diet
Detox
Destroy

the three D's

Diet: Little to NO sugar, Low on carbs, No junk food, preservatives
etc. ( i know NO fun huh? ) Find out what your food allergies
are and avoid those for the time being. If you cant afford Allergy
testing, try an elimination diet ( removing popular allergy foods
from your diet ) . But no matter what keep the sugar and
junk food away!

Do eat things like, rich soup broths and soups, raw protiens,
rich colorful vegetables ( but try to stay from too much starch).
Cod liver oil or fish oil for hormones and fatty acids. Verse
yourself in what the body needs. www.westonaprice.org is
a great place to start the information is free.

Detox: Lyme and coinfections inject horrible toxins into you
when they die or feel threatened, dead bugs and toxins
build up in your lymph system, you cannot kill w/o detoxing
it will be torturous. Things you can do are things like Coffee enemas,
taking french clay ( yes drinking it ), Clorella pills, Epsom Salt
baths, sauna...etc. Herbal detoxes that detox the organs are
good too, everything needs to be cleaned out .

Detroy: You obviously need to kill the little bastards right? right.
Aside from antibiotics, there are other methods that others I know
have used...there is Rife,Salt/C,MMS,Ozone, and herbs.
Rife is an electro magnetic device that sends electric current
into your body, but it is not the strength that would do damage
to you but targets the specific pathogen you want to destroy,
everything that lives has a frequency that will kill it, that is
the way rife works. Not all Rife machines are made equally and
they are very cost prohibitive, the doug coil i have purchased
is worth 2 grand.

Salt/C, salt c tonic, is a protocol which raises the salt concentrations
in the blood to basically "burn" the bugs out. Salt kills many pathogens
including bacteria, parasites, protazoa ...

MMS I am just learning about, aparently it is a chlorite oxygen combo
that kills pathogens, i am hearing people rave about it literally on
the groups i frequent, but have more to learn.

Ozone, is oxygenated water...the machines are expensive but
it is possible to buy powdered activator. I know this is all so
confusing....
Ozone is lethal to pathogens esp single celled organisms, ozone
helps the body to detox, kill and repair, you can not OD on it,
it will not harm you.

I highly recommend those of you looking for adjunctive protocols
OR a different way to try and kill the lyme visit these groups.
Everything i have mentioned and more is discussed and
there are people there who have healed and improved themselves
using these therapies.

http://health.groups.yahoo.com/group/lymestrategies/

http://health.groups.yahoo.com/group/Lyme-and-rife/

this website explains in full the Salt/C theory..

Lyme Photos

Books:

Nutrition and Physical Degeneration


Top ten Lyme Disease Treatments


post #55 of 369
wow thanks

I am only on the doxy for 3 weeks because that is all the dr gave me. He said in 3 weeks i might be fine so I dont need anything else. I disagree...this is why i dont want to go to him I am trying hard to find someone else. My mom and sister are so worried and i just keep telling them to knock it off--they are searching for doctors and calling places 4 hours away. Its so annoying lol. they are just trying to help. I know i need help soon but really....i just want to forget i have it. though every eye twitch and hip pain reminds me.....
post #56 of 369
Having trouble taking the antibiotic. I am so afraid. I shouldnt let fear have a say in this. I am trying to see the healing properties of this and imagining it stamping out those spirochetes. Before I went to bed last night I asked myself to dream about the abx. I didnt remember my dream right away and then it came to me a little while ago. The only dream I remember is being on a porch and having this overwhelming urge to throw up. That I can deal with. I can deal with stomach issues, I do all the time anyway. I just couldnt deal with an allergic reaction.

Off to stare at the pills some more before i get the courage to take it.
post #57 of 369
doulajewla,
Just make sure you'll have someone with you for the first 48 hours after the first pill. Tell them why you want them close and make sure they know what to look for as far as the allergies go.
Gotta give it a shot girl. This is super likely to be a good thing.
post #58 of 369
Thanks for the comforting words! I have to work tonight, just 3 hours of doula work...and I am just afraid of having a reaction at work. They are in the middle of nowhere too lol. I am just so nervous...i thought about it in the shower too just now. I felt the pills and dont feel anything bad. Just the thought of taking them makes my stomach hurt lol. I am trying. I want the cephalosporin--i know I am ok with those as I took them as a teenager.
post #59 of 369
I hate posting so much--but this fear is very real.

I called the dr on call and lo and behold it was my regular dr. She had no idea i had lyme. I asked her for a cephalosporin (which i feel more comfortable taking because ive had it before) and she was more than happy to fill it. I took it about an hour ago with no side effects yet. Would i have them by now? I am so weird lol...but I cant help these fears. I am hoping for no side effects. Will take my probiotic in a while, already did EPO.
post #60 of 369
Thread Starter 

I totally understand, i totally have prescription phobia,
i think you would know by now but give it a few days,
are you familiar with the side effects and reactions of
that particular pill?
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