Originally Posted by Roar
Okay, that's your reality. I'm totally willing to accept at face value that this is the way you feel about your life and this is a set of decisions you feel comfortable with.
At the same time I'm the parent of a kid who was able to express and express clearly a sense of internal dissatisfaction that had nothing to do with anyone else's insistence that he be a different way or not accept himself. It can be PAINFUL to have difficulties with sensory regulation. Some folks who may be by nature highly introverted or wired to be largely disinterested in the outside world, may feel great to retreat into their own home or world and not be bothered that they can't go beyond that without discomfort. But, for some the distance between what their bodies will allow them to do and what they wish to do is large and painful. There were things our son strongly wanted to be able to do that he was unable to do prior to getting therapy and help. Getting him help like OT hasn't fundamentally changed the person he is. It has instead made him far more comfortable and happy in his own body. It has allowed him to connect to other people and experiences that have great meaning to him. I can't imagine denying a child that option to feel more comfortable because someone says they should feel that way already.
You made the choice that is working for your family. You are reacting to your child's needs. There is nothing wrong with that. The moms that are "against a cure" are not saying they are against intervention. I think the point is that children should be allowed to be who they are and do what is best for them and not forced into a mold they don't want to be in just because society says they should be. If that means OT or diets etc to fulfill your child's needs, then that is what it should be for them.
I don't want to "cure" my child, but he still gets OT twice a week, ST once a week, and special resources at school daily. Why? Because its what we do for him to help him with his
goals, what he wants to do and help him be who he is. Not to make him "fit in", only allow him to interact and integrate on a level that is appropriate and comfortable for him. If, at any time, he decided he no longer wanted to attend OT etc, we'd stop. Of course, at 6 (or in the case of non-verbal kids) he is not always able to express exactly what he wants which leaves us, as parents, to interpret. But I think most parents have a pretty good idea what their children want and understand them and their needs. Thats the key, their, them
, not us.
Example: seeing my child struggle with social interactions and seeing the look on his face that says he WANTS to interact but doesn't know how. He comes to me and you can see the feeling of defeat on him. After seeing this repeatedly I can safely assume he wants help in this area, he is coming back to me each time and looking for my support. We start working with a group that works with kids with social issues and he thrives, loves it and is starting to be able to initiate social interaction. (not always productive but its a huge step!) Its an intervention, not a cure, and in our individual child's best interest. Not because its what he "should" be doing, but rather what he wants to do. Make sense?