Hi.
My son James (ds2) had his first grand mal seizure today. He was a little tired this morning, had a great afternoon at school, came home and was playing in the yard, and when I looked over he was sputtering and shaking. I gave him diastat and called 911, and when the parametics were here he had another seizure. They stopped that with versed. Then in the emergency room he inhaled some vomit or blood (nobody noticed it was so crazy), and that stopped his breathing and stopped his heart. They did compressions for three minutes and got him going again.
He's on a breathing machine now, and they've put him in a low-temp comatose state to help his brain heal. We're struggling with clotting (he also has a bleeding disorder). His head CT was clear (no bleeds). They're going to do an EEG to see if he's having seizures underneath the coma. Several doctors have said things look as good as they can, and that he might make a full recovery. They all say we need to wait to see if the MRI shows brain involvement (swelling as a reaction to oxygen deprivation). They say we should be hopeful.
I never knew what it was like....to be standing there watching my son's heart stop, see them doing compressions on his little body. This has been a horrible day. And just yesterday, when everyone had a good night's sleep and good behavior/participation at school....just yesterday (!) I was thinking "life is really good right now. I wonder how long it will last this time." 24 hours, apparently.
I'm babbling. Anyway, I was just wondering if you could send all your positive energy to my little James right now. He has so many challenges, he needs to triumph over this one. He needs to pull through. So if you can, please focus on him for a while and ask for a full recovery.
They're going to keep him at a low temperature, paralyzed, for about 48 hours they said. We'll know more when we get the MRI.
Thank you.
My son James (ds2) had his first grand mal seizure today. He was a little tired this morning, had a great afternoon at school, came home and was playing in the yard, and when I looked over he was sputtering and shaking. I gave him diastat and called 911, and when the parametics were here he had another seizure. They stopped that with versed. Then in the emergency room he inhaled some vomit or blood (nobody noticed it was so crazy), and that stopped his breathing and stopped his heart. They did compressions for three minutes and got him going again.
He's on a breathing machine now, and they've put him in a low-temp comatose state to help his brain heal. We're struggling with clotting (he also has a bleeding disorder). His head CT was clear (no bleeds). They're going to do an EEG to see if he's having seizures underneath the coma. Several doctors have said things look as good as they can, and that he might make a full recovery. They all say we need to wait to see if the MRI shows brain involvement (swelling as a reaction to oxygen deprivation). They say we should be hopeful.
I never knew what it was like....to be standing there watching my son's heart stop, see them doing compressions on his little body. This has been a horrible day. And just yesterday, when everyone had a good night's sleep and good behavior/participation at school....just yesterday (!) I was thinking "life is really good right now. I wonder how long it will last this time." 24 hours, apparently.
I'm babbling. Anyway, I was just wondering if you could send all your positive energy to my little James right now. He has so many challenges, he needs to triumph over this one. He needs to pull through. So if you can, please focus on him for a while and ask for a full recovery.
They're going to keep him at a low temperature, paralyzed, for about 48 hours they said. We'll know more when we get the MRI.
Thank you.
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