honestly, i did raw milk for a while. they didn't drink it as i was nursing. and i think it had some healing qualities, but overall they improved markedly without it.
and i realized that i did do a lot of supplements for a while. just before the homeopathy, they had their first normal stools for about a week while on zinc, mag, selenium supplements, but then they got a stomach bug and never got it back til homeopathy. even now, it comes and goes, but it's rarely diarrhea anymore (tho i just gave them those rhino echineacea lollipops and...less than ideal stools. sigh). i left the ND who prescribed the homeopathy after receiving them but before giving them, so after reading a LOT about homeopathy (including
The Impossible Cure and the materia medica, plus my stepmom's a lay homeopath, tho she would not see their symptoms as ASD), i gave them 200K of Thuya and Silicea on alternating days, with Sunday reserved for a constitutional remedy--which wasn't right at the time, but did help later. It was so intense! One daughter kept freaking out, but when I recognized that she sounded exactly like she did at 4 months with her "late onset colic" (according to the pediatrician--which later i realized started a few weeks after they received 4 vaccines at once). It was 2 or 3 really intense weeks, with night wakings (more than usual), sleep walking, and very unpredictable behavior. But ddb had solid stools after about 4 days, and dda did after about 9 days, and, since they were already 2.25, that was such an inspiration. Their arm flapping really decreased. I just realized it had been completely stopped for at least a month...but the lollipops or something started it again. Sigh. But it's not intense and will be gone soon, I hope. Oh, they could also wake up without crying, and get out bed without an hour to 1.5 hours of reading. Such a change. I have the remedies and would be happy to talk to you on the phone if you want to try them. It's not illegal or anything, since it's just sugar pills infused with energy. But i would definitely read the impossible cure before trying it.
Enzymes never worked for us, but they were in diapers then, and their poo "ate" at them. Maybe i could try again (i still have them), but I'm scared.
We tried the brainchild vitamins (pricey!), and they did all right with the sample, but no good when i tried for more than a week. Probiotics never worked (made their poo frothy) except in "natural" form,--kombucha or water kefir. I know their gut still needs healing, so I try gentle foods and lots of bone broth. For a while they couldn't even tolerate rice, but now they're fine with non-gluten grains; we eat rice cereal for breakfast (with berries and tons of coconut oil) most mornings.
I know what you mean about sweet potatoes; I would probably hold off on the Specific Carb Diet unless there's a candida crisis. Because it has yogurt, and I would really try soon to see what effect getting off dairy has for your son. The complement to TF that SCD has is that both focus on nutrient dense whole foods. TF just seems "wiser," somehow...tho I really wish we could add grains or dairy.
And for a brief while we could--the girls seemed fine, even thriving on goat's milk yogurt. But then ddb got diarrhea. I thought it was a bug for the longest time. Then they because more sensitive to sugar (evap cane juice) and rapadura, even too much honey. And now soy is off limits too (I used to let them have Mi-del ginger snaps and the occasional gfcf AMy's pizza). Now they get a little rash. Even ghee seemed no good (tho I only tried it with one batch of cookies--so maybe it was something else). But when I gave them the casein free hivitamin butter oil, they had a major reaction to that--hyper and arms flapping. There's so much I don't understand.
diet snapshot--So, we eat rice cereal for breakfast, or eggs and bacon, or pancakes from SCD (mainly cashews and eggs; I soaked the cashews and dry ala NT). i buy coconut oil by the gallon. We have a lot of carrots and red peppers and celery and apples with peanut butter for snacks. Grapes. (I don't know what I'll do this winter when it's all out of season--apples I guess.) We also have sweet potato with cinnamon and co a lot, and squash with maple syrup. Lunch is often hot dogs (applegate farms grassfed beef), rice or quinoa salad, or pnj on cashew "bread." Dinner is meat/chicken or fish with two vegggies. Tonight we had chicken stir fry from Eat Fat to Lose Fat (by Fallon)--actually it called for pork, but i use chicken thighs and the girls love it. i serve it over rice or with brown rice noodles. i add extra stock to everything i can. i try to have soup at least once a week, but they don't always go for it. right when they were learning to eat lunch (at a year) we were on SCD, and the poor babes had to eat chicken broth with cooked carrots every day for about a month. Becase every time I added a new veggie, I drenched it in butter and they had a reaction. So all the food now seems like a luxury. We use a lot of coconut milk too--smoothies with berries and egg yolk, and I make coconut milk ice cream.
I know what you mean about the grandparents--my mom just saw jenny mccarthy on oprah, and finally said, "oh mehera, you're saving them." i'm happy that she finally sees it, but i'm sad it took a comedian to show her.
ps--you're all my friends! is there a tribe on h&h or somewhere that i missed when i looked a few months ago?
and kdmama--i asked this recently on another thread--how do you do coconut milk yogurt? where do you get the starter? i would be soo sooo soooo happy with some yogurt!
sorry i'm so rambly. but just fwiw, my girls never really had verbal issues; they fir the other two criteria. no pretend play, no social interaction (no affection or interest toward grandparents, sometimes not even daddy, they couldn't stand people looking at them in the grocery), repetitive behaviors, headbanging, aggression (in one dd), armflapping, and really severe physical sensory issues--baths were impossible, carseats.... they just wanted to nurse and read book ALL DAY. it is just so interesting to me how this "disease" manifests in such unique ways with such gut similarities (and of course, differences there too). my time is up!
: All I know is I want to help Jacob. Please, please, desperate mommma looking for advice. 
No, it's not like ghee. It's a supplement, not for cooking.
We find it super easy to keep GF at home; we also limit our going out to Mexican food or In-&-Out burgers protein style. 
: It's the grandparents that are hard ... they are finally getting the "no bread" thing, but then they'll go give the boys some yucky piece of candy. 
