OMG!OMG!OMG! I just slept, all night long, all in one chunk! And I just had to share this momentous occasion with someone(s) who would understand. Sure, it took Rozerem, Clonazepam, and a muscle relaxer to do it, but it happened!
Also, I had an amazing doctor visit last week. First, it was amazing because I could actually go see her, as I haven't had insurance in over a year, and now I have great insurance, having gotten married last month. But, she also listened to me, and we discussed a bunch of stuff:
1: I needed to temporarily (see #2) up the dosage on my fentanyl patch to 100mcg/hr, as I'd got a tolerance built up to the 75s. She did that.
2: in January, I want to work on getting off the Fentanyl patch and the other meds I'm on, and try some alternative therapies, because I want to TTC in about a year. She's going to help me wean slowly and detox (not going to be a pleasant process, as I've been on the patch for 5 years!)
3: I'm not entirely convinced that it's Fibromyalgia. I believe that, within all the diagnoses of fms, it's really some actual fms, and several diseases that they just haven't discovered yet. Why else would there be such diversity in what treatments work? But for me, it's like, none of the treatments I've tried (cognitive, Neurontin - works ok for my RLS, not for my pain, guiafenisin, etc) have worked. Plus, there are a few fms symptoms I don't have (I have an aversion to heat, not cold), and I have some non-fms symptoms, like weird skin tactical issues, and my pain is worse than the vast majority of fms patients.
So she's sending me to a Neurologist. Yay! Because I'm convinced that all the Rheumos I've seen have all done diddly for me.
4: one of the major reasons I suspect it's not fms is that methylprednisolone, a corticosteroid, makes me feel TONS better. A doc gave it to me for an injury about 6 years ago, and it had this amazing side affect of making me feel almost normal. Since then, whenever I've asked a doc for/about it, they've dismissed it, saying, "steroids don't work for fms, so that didn't make you feel better, and I'm not going to perscribe it". I finally convinced my doc in Virginia to give me a dosepak (it comes in a six day "dosepak", where you start off taking 6 pills a day, and go down by one/day) for the week I was going to be driving across the country, but I think that he only did it because he was getting rid of me, and wouldn't have to follow up when I said, "see, it worked - I felt good enough to drive across country!"
I asked my doc to give me a dosepak for Xmas week, as we have tons of different family to see, plus travel. And not only did she, she gave me two, one for this week, too!
5: she figured out why my hips have been hurting so badly. I have bursitis, probably from all the side-lying I do, since I'm in bed so much. She said, having already written the Rx, "hey, the methylprednisolone should really help with that, and if not, we'll do some direct injections."
It is such a relief, knowing that I'm being taken seriously, and finally going to be medically cared for. Without insurance, since I couldn't actually go see her, all she's been doing is calling in or writing my Rxs for so long. I'm going to see a Neurologist, and I've got a referral to a sleep clinic. Yay!!!
Even though it's going to suck pretty hard getting off the fentanyl, I know there's a light (or rather, a baby) at the end of the tunnel!
And did I mention I slept? All night long? 8 hours in a row?