Originally Posted by Ruthla
The main "treatment" seems to be accepting my limits and pacing myself. I don't overschedule myself- if there's something important I want to do, I'll clear several days before and after so I'll have the energy to do it.
Whenever I take a "vacation" where I need to fly... I know how much it wears me out so I make sure to schedule an extra day to the begining and end just for rest.
You will learn what each daily activity costs you in energy or points or spoons or marbles... there are lots of cute little things out there that people have come up with for "counting" their activity. Granted we all have our good and bad days... some days we are granted with more energy and find we can do more than usual... some days we may have less and find ourselves being discouraged that we didn't quite fit in what we had planned on...
That is another key point... Don't be discouraged or down on yourself if something has to wait til the next day. The world is not going to end if dinner dishes don't get done until the next morning. Letting go is a huge stride in dealing with the illness.
You may also find that you are able to sometimes "borrow" energy from the next day... it all comes at a cost of course. That's what I mean about planning though. I'm constantly thinking ahead and calculating out energy in my mind...
Learning to split up chores in little tasks to do throughout the day helps too. Learning that not everything needs to get done in that instant is key.
You know by the end of the day you may be thouroughly exhausted... so, maybe put together what dinner ingredients you can in the morning and keep it in the fridge... that way you just need to top it off or pop it in the oven at night.
There is nothing wrong with taking a 10 minute break to just sit in the middle of a task. Beleive it or not but that 10 minute rest may be the result in agonizing pain that sends you to bed early... or mostly bearable pain that allows you to get one more thing into the day.
It will be hard and a lot of pain to learn your boundaries and what you can push through, learning when that break is needed or when to stop... but it's worth it to learn the balance and lead a more "normal" life.
Also keep in mind... even after boundaries are learned... flare-ups happen. Don't get down on yourself and try not to drive yourself crazy because you did everything to your system and today you are in pain... it happens... take it easy and do what you are able to do, don't be hard on yourself about what you can't.
Be aware of everything... I know personally my illness is very weather oriented as well... when it's bitter cold or damp, I will be in more pain than usual... I plan accordingly and where looser, comfy clothes because I know I will feel swollen... just that small adjustment will make the day more bearable.
I've taught my DSD "quiet" time.
If it's the end of the day and I feel like all my nerves are on edge and I'm about to jump out of my skin with one more noise... I tell her "okay... it's quite time now... let's practice our whispers". She rather likes the game actually. hehe
Sorry for the rambly answers, by the way... lol I can go on forever about fibro... it's a difficult thing for sure.