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Fibromyalgia Moms? - Page 2

post #21 of 667
Thread Starter 
Quote:
Originally Posted by Nature View Post
I'm not sure I agree with that one.. since at one point I was on thyroid medication for an under active thyroid, and it has since corrected itself. I'm not medicated for it, and I test within the normal range every time. Yet still I have FMS.
Yeah, I'm not so sure about that one either.

Of course, I also disagree with what is 'normal' for thyroid and the TSH test is a bunch of hooey, but that is another thread.
post #22 of 667
Quote:
Originally Posted by Nature View Post
I'm a Fibro mom too with agoraphobia and horrible anxiety.

I also have agoraphobia. Me loosing Calypso has made it worse too because now I'm petrified if I leave my house it's going to burn down and I'll loose EVERYTHING that belonged to my angel
post #23 of 667
Thread Starter 
Quote:
Originally Posted by Alisteal View Post
I also have agoraphobia. Me loosing Calypso has made it worse too because now I'm petrified if I leave my house it's going to burn down and I'll loose EVERYTHING that belonged to my angel

you've had more than your share of bad luck. I think not wanting to leave the house goes along with fibro to a certain degree anyway, though I wouldn't say I'm agoraphobic. I'd just rather be home than deal with traffic or any other irritations.
post #24 of 667
Haven't finished reading the thread yet, but I can already tell that this is the tribe for me! I've only been officially diagnosed with fibro for 2 years, but I've likely had it for 15+ years.
post #25 of 667
Quote:
Originally Posted by bigeyes View Post

you've had more than your share of bad luck. I think not wanting to leave the house goes along with fibro to a certain degree anyway, though I wouldn't say I'm agoraphobic. I'd just rather be home than deal with traffic or any other irritations.
Yeah I was diagnosed with my anxiety and agoraphibia before my fibro really started flaring up. So I think just everything is playing off of everything else making it worse. I told dh I wanted to get a firesafe to put Calypso's very very important things in just in case
post #26 of 667
Thread Starter 
Quote:
Originally Posted by Alisteal View Post
Yeah I was diagnosed with my anxiety and agoraphibia before my fibro really started flaring up. So I think just everything is playing off of everything else making it worse. I told dh I wanted to get a firesafe to put Calypso's very very important things in just in case
you should. I think it would help ease your mind about it.

I think finding solutions to these things helps give us back a sense of control. For me that's one of the worst things about this, losing control of my life, and not being able to just do everything like I always did before.
post #27 of 667
I really wish I could be the energetic, happy, relaxed Mom my boys need me to be. : I spend a lot of time in front of the computer or the tv, I just don't have enough energy to do much else. I do sometimes feel better if I actually get up and get out of the house... But a lot of the time I get out and just want to go home and take a nap. I am being treated for an underactive thyroid and PPD.
post #28 of 667
Quote:
Originally Posted by Alisteal View Post
Yeah I was diagnosed with my anxiety and agoraphibia before my fibro really started flaring up. So I think just everything is playing off of everything else making it worse. I told dh I wanted to get a firesafe to put Calypso's very very important things in just in case


I too was dx'd with agoraphobia and panic and anxiety disorder before being dx'd with Fibro. And I have the same anxious thoughts about losing my memories in a fire. Getting a safebox didn't alleviate that. I think the only thing that would is getting doubles of EVERYTHING and putting it in a safe deposit box... but I know I couldn't afford that. And I'm not sure they have one big enough.
post #29 of 667
Thread Starter 
Quote:
Originally Posted by Nature View Post


I too was dx'd with agoraphobia and panic and anxiety disorder before being dx'd with Fibro. And I have the same anxious thoughts about losing my memories in a fire. Getting a safebox didn't alleviate that. I think the only thing that would is getting doubles of EVERYTHING and putting it in a safe deposit box... but I know I couldn't afford that. And I'm not sure they have one big enough.
Nooooooooooooooo!!!

We have to fly back to the mainland for a wedding, I hope I don't worry the whole time.
post #30 of 667
Quote:
Originally Posted by Nature View Post


I too was dx'd with agoraphobia and panic and anxiety disorder before being dx'd with Fibro. And I have the same anxious thoughts about losing my memories in a fire. Getting a safebox didn't alleviate that. I think the only thing that would is getting doubles of EVERYTHING and putting it in a safe deposit box... but I know I couldn't afford that. And I'm not sure they have one big enough.
It's funny people always say don't go back into the house after you get out. In my case. I'm getting the kids out and then getting ALL the pictures out and all Calypso's stuff.
post #31 of 667
Quote:
Originally Posted by Alisteal View Post
It's funny people always say don't go back into the house after you get out. In my case. I'm getting the kids out and then getting ALL the pictures out and all Calypso's stuff.
I often think about that as I'm falling asleep at night. Exactly what I'd go back in after and what I'd grab. I've got it down to two extra trips with pictures boxes and my hard drive. (that has 4 years worth of pictures on it.)
I probably should pare it down a bit huh?

Ugh. It seriously causes a lot of anxiety thinking about it.
post #32 of 667
I have been DXed with fibro...but I don't buy it.

Not sure if that's because I don't want to or I don't believe it....

:
post #33 of 667
Thread Starter 
Quote:
Originally Posted by spiderdust View Post
Haven't finished reading the thread yet, but I can already tell that this is the tribe for me! I've only been officially diagnosed with fibro for 2 years, but I've likely had it for 15+ years.
I'm pretty sure I had it for a long time before being diagnosed too. I fought it for a long time with caffeine and cigarettes, then when I quit smoking I crashed so hard it wasn't funny. I thought everybody had to do something to keep going.

I can remember drinking coffee round the clock and still not being able to stay awake or think straight.

Does anyone else take anything to help with sleep? What works for you with the least side effects? I'm not liking what I'm taking but it's helped with the headaches and I'm actually getting some sleep, but I keep hoping there is a better solution available.
post #34 of 667
Quote:
Originally Posted by Nature View Post
I often think about that as I'm falling asleep at night. Exactly what I'd go back in after and what I'd grab. I've got it down to two extra trips with pictures boxes and my hard drive. (that has 4 years worth of pictures on it.)
I probably should pare it down a bit huh?

Ugh. It seriously causes a lot of anxiety thinking about it.
I understand 100%. We have Calypso's memorial case by the front door, so I can get the kids out and then grab armfulls of Calypso's stuff and run it out
post #35 of 667
Quote:
Originally Posted by harleyhalfmoon View Post
My Mother has it. She's had it since I was 12 or 13. My brother is showing some mild symptoms. Is it hereditary?

I have read, and of course do not have the source that people with Fibro have a 50% chance of passing it on to their children. I have also read that the chances may be higher in women, but I've read doctors are not sure if this because women are more apt to come forward with their symptoms or if more women just plain get it.

Many women get it after childbirth, PPD, or other hormonal changes. So I always think about hormones.

Hugs to everyone, I hope your all doing well today. I know this damp weather is driving my muscles crazy.
post #36 of 667
How many people here first thought (or still think) they have something like lupus, rheumatoid arthritis, polymyositis, multiple sclerosis, myasthenia gravis, etc...?

-Laura
post #37 of 667
Quote:
Originally Posted by supakitty View Post
How many people here first thought (or still think) they have something like lupus, rheumatoid arthritis, polymyositis, multiple sclerosis, myasthenia gravis, etc...?

-Laura
me me me
post #38 of 667
Thread Starter 
Quote:
Originally Posted by supakitty View Post
How many people here first thought (or still think) they have something like lupus, rheumatoid arthritis, polymyositis, multiple sclerosis, myasthenia gravis, etc...?

-Laura
chronic fatigue syndrome was my first thought
post #39 of 667
What other things specifically have people considered in their own differential diagnosis?
post #40 of 667
Quote:
Originally Posted by supakitty View Post
How many people here first thought (or still think) they have something like lupus, rheumatoid arthritis, polymyositis, multiple sclerosis, myasthenia gravis, etc...?

-Laura
Me I was tested and had MRI's to rule out MS.
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