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Fibromyalgia Moms? - Page 26

post #501 of 667
I've never heard of that, krankedyann. Do you have a link with more info?

And UGH. This low-pressure system in New England is absolutely killing me. I'm hurting and the weather makes it worse. Rain, rain, GO AWAY. D:
post #502 of 667
Send it south, we need the rain. I keep hearing about the rain in Boston and then it goes out to sea instead of hitting us here on the sound.
post #503 of 667
I actually had a pain free day yesterday. Ugh, not today.
post #504 of 667
Quote:
Originally Posted by Ruthla View Post
I actually had a pain free day yesterday. Ugh, not today.
I'm sorry to hear that Ruth. About today I mean. I'm in the mist of a flare that will-not-let-go. Every night I think tomorrow will be better, but then no.

I must have PMS on top of that because I've been crying about everything all day.


I was wondering if we could all share ideas/things we do with our kids when we are down for the count.
I'll start:
-Movie night and snuggles
-reading and snuggles
-looking at pictures on my laptop with the kids
-games like I spy

That's all I really have for now...
post #505 of 667
Quote:
Originally Posted by jenisttc08 View Post
I've never heard of that, krankedyann. Do you have a link with more info?
I don't. I haven't been able to find anything about it online, which is why I'm asking here. It's made a major change in my ability to function. My doctor did say that it's experimental, but that he's seen a complete resolution of symptoms in quite a few auto-immune patients with it.
post #506 of 667
i would be interested in knowing more too!

today was awful for me. i have excema in my ears and i scratched. i mean i had my pointer finger in there it itched so bad. needless to say i hurt myself. and since i am prone to infection..... i got a real bad mioddle ear infection. i am on augmentin plus a drop that goes directly in the ear. the side of my face is swollen and i cant open my mouth or close my mouth far enough to eat. i have been living on carnation instant breakfast and water for the last 2 days.i have such serious pain i had to get hydrocodone for it at the ER sun night. and the had to put a wick in my ear canal because it had swollen up so bad the drops couldnt get in there. i am so miserable and i cant hear out of that ear right now. and the heat and humidity make it worse. i feel like a little old woman sometimes. esp with the hard of hearing thing. lol.
after reading this you would think all i do is whine. but all of you are the only ones who really know how bothered i am. i just cant seem to tell my DH about it anymore except when it is really bad. i feel like i am wearing him out with it. i know he doesnt feel that way, but sometimes i get tired of listening to myself too. need to talk optimistically instead of dwelling on the yuckies, huh? it makes me feel better to know that i am not the only one who is like this.
by the way, i think it is genetic. my mother has been diagnosed, i have been diagnosed, and my long lost sister that my mom gave up for adoption 40 years ago and found again, shows signs of it too and i am encouraging her to get diagnosed.
post #507 of 667
I pretty much do movies when I'm down too. *nods*

It's raining and muggy here. Which means my legs are KILLING me. Ugh!
post #508 of 667
It was muggy this morning and now we have a thunderstorm. I'm also on day 2 of my cycle, which explains some of my extra discomfort in the past few days.

I missed my Torah study class this morning- when my alarm went off at 7:30AM my shoulders just hurt SO MUCH and I knew I'd be in awful pain all day if I didn't get back to sleep. So I turned off the alarm and slept another 2 hours. Now I'm feeling a bit under the weather (quite literally, seeing how my body responds to low pressure systems) and have mild menstrual cramps, but I'm not in excruciating pain and I don't feel like I'm in a flare. I doubt I could have said the same thing if I'd forced myself out of bed this morning.

I just feel a little bad because this week one of the women was sponsoring it in honor of her mother's yartzeit (anniversary of her death) and they were serving breakfast before and after the class. Irina had emailed me a few times about getting safe (gluten free, dairy free) foods for me to have there, and then I didn't make it. I did email her this morning after I woke up and explained that I wasn't feeling well today.
post #509 of 667
:

I'm having a new symptom (For me). I've been having uncontrollable ticking and jolting in my muscles.

It started last night (I have been in the middle of a flare).

So is this Fibro or do I need to worry that it's something else?
post #510 of 667
Can you explain the ticking?
post #511 of 667
i think it know what you mean by ticking. i used to have a facial tic. sometimes other muscles will do it too. it is like a twitch right?
post #512 of 667
For me, ticking means I need more magnesium. But since I don't absorb it well from supplements, I get it from Epsom salt baths instead.
post #513 of 667
The ticking is like when your trying to fall asleep and your body will suddenly jolts. Only it is happening during the day. For example my arm went through a little spurt today where it kept jolting suddenly. You can actually see it happening. My neck was also randomly ticking to the left.
I have no control over it.

I actually have some Epsome salts perhaps I will try to take a bunch of baths.

I would drink some nettles but I don't know if they would interact with all the medicine I'm taking.
post #514 of 667
I've had that kind of thing at night, and taking more magnesium definitely helps.
post #515 of 667
Oh wow. I am sorry you are having such a hard time right now.
post #516 of 667
Has anyone tried the NeuroSensory Center to treat your fibromyalgia? They have locations all around the US and just opened one near me. They do some kind of non-invasive testing of your vision, hearing and balance and then treat your fibro based on those results using anti-virals, anti-fungals, supps. and chelation. They work with migraines and autistic spectrum disorders, too. And they take insurance. I'm thinking it's worth a try, especially cause they're so close to me.

Any advice?
post #517 of 667
Quote:
Originally Posted by Richie'sMama View Post
Has anyone tried the NeuroSensory Center to treat your fibromyalgia? They have locations all around the US and just opened one near me. They do some kind of non-invasive testing of your vision, hearing and balance and then treat your fibro based on those results using anti-virals, anti-fungals, supps. and chelation. They work with migraines and autistic spectrum disorders, too. And they take insurance. I'm thinking it's worth a try, especially cause they're so close to me.

Any advice?
I've never heard of them. Frankly I'd be nervous about being put on a lot of antivirals or antifungals when in general I tolerate medications poorly.
post #518 of 667
I am so thrilled!! : I just realized today that I now have been working full time for a whole year! This is the first full year I have been able to work full time since I got diagnosed in 2002!! It has been a long road, but I am so proud!
post #519 of 667
Way to go, Jenifer! :

Um...I've started a new job? And I've now done two weeks full time?
post #520 of 667
Quote:
Originally Posted by JSMa View Post
I am so thrilled!! : I just realized today that I now have been working full time for a whole year! This is the first full year I have been able to work full time since I got diagnosed in 2002!! It has been a long road, but I am so proud!
Congrats!

I've been feeling OK for two whole days.
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