i would be interested in knowing more too!
today was awful for me. i have excema in my ears and i scratched. i mean i had my pointer finger in there it itched so bad. needless to say i hurt myself. and since i am prone to infection..... i got a real bad mioddle ear infection. i am on augmentin plus a drop that goes directly in the ear. the side of my face is swollen and i cant open my mouth or close my mouth far enough to eat. i have been living on carnation instant breakfast and water for the last 2 days.i have such serious pain i had to get hydrocodone for it at the ER sun night. and the had to put a wick in my ear canal because it had swollen up so bad the drops couldnt get in there. i am so miserable and i cant hear out of that ear right now. and the heat and humidity make it worse. i feel like a little old woman sometimes. esp with the hard of hearing thing. lol.
after reading this you would think all i do is whine. but all of you are the only ones who really know how bothered i am. i just cant seem to tell my DH about it anymore except when it is really bad. i feel like i am wearing him out with it. i know he doesnt feel that way, but sometimes i get tired of listening to myself too. need to talk optimistically instead of dwelling on the yuckies, huh? it makes me feel better to know that i am not the only one who is like this.
by the way, i think it is genetic. my mother has been diagnosed, i have been diagnosed, and my long lost sister that my mom gave up for adoption 40 years ago and found again, shows signs of it too and i am encouraging her to get diagnosed.