My child's vax reaction: 12-15 month Well Baby Visit - Page 2

[Tracy]

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[Tracy]

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[Tracy]

Originally Posted by iris0110

Well Kearnan had his MMR vax at 18 months and that is the vax he reacted to (didn't have any other vaxes that day so it had to be that one). Not sure if I should post this here or on the 12month one where MMR is listed. I'll post here, let me know if I should move it.

Kearnan had his first dose MMR vax at his 18 month appt. Directly afterward he was fine (no imediate swelling or fever). Soon after he stopped speaking and started screaming. It was the worst sound I have ever heard. A keening wail is the best I can describe it. It would start quiet and build to a crescendo louder than I thought a human could produce, then it would drop off again and he would make these sounds like a sick nb kitten. This continued almost 24hours a day for months. He would usually cover his ears at the same time. I thought he was sheilding himself from the racket he was making, but now I think he was actually holding his head because it hurt him. He stopped sleeping and stopped eating. He quit making eye contact around the same time. Stopped really interacting much at all, other than the screaming. Then he started having violent tantrums, he would kick and hit and bite, hurting us and himself. His eyes got dark circles under them, and he developed a rash over his whole body. Later MRI revealed damage from encephalitic brain swelling.

I am sorry, Iris I meant to respond to your post last week.

Iris how is Keaner doing now?

[iris0110]

Thank you for asking. He is doing amazing now (well he is sick this week, poor baby, but otherwise). I can't say enough wonderful things about his DAN! Dr. We just got his eval from speech therapy back and the change is so dramatic. Last year he started back with OCHB after a bit of a break (our old insurance stopped paying, now he is on SSI and medicaid so back in private therapy) and they did the full eval even though we only really wanted the feeding therapy. Last year he came back as 3yrs delayed, or moderate to severe speech delay in receptive and expressive speech. Plus the same for self care and socialization. His new eval is normal to mild speech delay in expressive only. And those are artificially low because she couldn't get a ceiling on certain areas, so she had to guess so the insurance would keep paying. His only problem now is some pronunciations and putting er at the ends of words (like a person who paints is a painter ect). Otherwise he is within normal range for chidren his age. So that is really huge. His vocabulary is actually in the advanced range now. And that is totally without any speech therapy, he sees her only for feeding issues. The supplements and more so he B12 shots have been amazing for him. WE haven't had the OT eval yet, but he is potty trained now and doing much better with self care and self regulation. It helps that he can use his words now to tell us what is going on. He still has some problems with focus and hand strength, but he is getting better all of the time. He is enjoying horseback riding therapy (which is really helping with the hand strength and self care) and wants to start taking Karate and Violin lessons. He's an all around pretty normal kiddo these days. He still gets over stimulated, and he is still a picky eater but he is trying new foods too. He will now eat just about any fruit from Just Tomatos as well as yogurt and pudding which he wouldn't eat before. And he can take homeopathic medicines (not anything else though, he still vomits if you say the word medicine). And best of all he has a best friend, and they really love each other. They play together just like little kids are supposed to, and ask about each other all week long. It's great. You wouldn't know if you just randomly met him that he was on the spectrum at all, or how hard he has worked and how far he has come. It's really amazing. I can't wait to go in for our check up with his DAN! in march and let him see how well he is doing.

[shimmerMom]

Both of my twins had reactions.

Ava had two seizures 7 days proir to her 18 month shots. And Linnea had what we now know was a severe nuerological reaction that included screaming, light senstivity, sensitivity to sound, clutching at her head. It went on for months and we now believe to caused her Apraxia.

She is now undergoing treatment with a nautrapath to remove the haevy metals from her system.

[Tracy]

Iris, I am so glad Keirnan is doing better. But, man I am so sorry you had to even go through all those hurdles.

Also, hearing that he has a best friend is so wonderful. I kind of welled up when I got to that part of your update. so sweet.

thank you for taking the time.

And hugs to you all!