Major teaching hospital does not automatically equal good care.There is no other hospital or care within a two hour drive beside PCP's
Did you see a ped urologist? While yes, they can be the worst about the circ issue, they are also the best eyes to look at uro-genital anomalies in babies and children.We saw a ped nephrologist (kidney dr) we will be travelling to another children's hospital several hours away at the end of the month to visit their pediatric urology dep't
It's not as simple as I'm about to say it for some people, but we simply make it clear to our surgeon what we will and won't do
.Dh and I are 20 years old. I wish this worked for us, but usually our youth means that the dr treats us as though we are irresponsible teen parents who know nothing
He respects our decisions.
My son has reflux, though it cannot be captured on testing, it is assumed. He has several urinary tract anomalies, and has had many many infections. He is three.
Because he has had so much exposure to infection and antibiotics, he cannot have antibiotics prophylactically. We treat infections as they come. We have bags and urine dipsticks, and we can test the urine if he starts to become symptomatic. Then we call and get a urine micro and macro, culture, sensitivities, and a call back from our ped. They pick an antibiotic, and usually these things resolve easily.This is a good idea. How often do you end up testing? Do they do anything besides a bag test (eg cath/suprapubic) if the bag test comes back positive?
I am happy to PM with you about different doctors around the US, as I'm assuming that is where you are located. It sounds like you need one who better suits your needs.
I'll say one more thing which hopefully won't be taken the wrong way. It is not
necessary to convince the doctor that it is better to be intact. It is necessary
to make sure that your doctor will respect your wishes for your child. It is not
necessary for the doctor to agree with you. It is necessary
for the doctor to follow your advance directives.