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Tonight, Friday, on 20/20

post #1 of 10
Thread Starter 
Just thought I'd let you all know 20/20 is having a feature about hysterectomies, tonight.
post #2 of 10
Whoops!

I just saw your post, and it is too late!

Did they mention anything about HERS Foundation?

Dr. Vickie Hufnagel?
post #3 of 10
Thread Starter 
As it turns out, I wanted to keep the tv low since DD was sleeping, came in to use the computer and forgot all about the show.
post #4 of 10
they did a segment on the evening news which was a highlight from the larger piece on 20/20.
I missed 20/20 but I saw the evening news.

This segment was focused on fibroids and hysterectomies. It was all about how women who have fibroids, really, only about 1-5 percent should have hysterectomies. HOwever, the percentage of women who GET hysterectomies is far greater.
The reason. One, money for doctors. HMOS, insurance in general pays more for hysterectomies. And two, if you simply have the fibroids removed women still may not feel satisified or comfortable. They may still have spotty periods, bloating uncomfotable in general and the doctor will continue to get phone calls from the patient. But if they get the hysterectomy...less 'annoying' phone calls.

It was pretty scary piece and in my case pretty timely.

About two months ago I went to the NY/NJ tribes here on mothering and posted that my friend needed a new gyno. The reason why, is she had a very large fibroid and when she went to the doctor the doctor said, "yeah, you should get your head around a hysterectomy." My friend was schocked and called me. I was schocked. I have had a couple friends who have had fibroids removed. Not the uterus, the fibroid.
I encouraged her to go to another doctor for a second opinion. She did and that doctor said the same thing and she should also get her head around it might be cancer.
This was even more horrible and mind you again, this sounded so strange to me and to my friend. So many of my girlfriends have had fibroids and NEITHER of those things have been said.

My friend felt that the doctors were pushing for hysterectomies since my friend is 50. And I agreed.
I posted for a doctor whom someone thought would not say hysterectomy out of the box. I got some postings and I gave them to my friend.

Yes, someone brought up HERS. And Beverly Johnson's experience. And some other doctors who are much friendlier and more willing to do the surgery of the fibroid not the uterus.
In the meantime my friend did more research and I asked a friend of mine's father who is a gyno.
Here is what we both learned. As you get older the fibroid will start to shrink because the hormones will start to lower and the fribroid gets some of its growth from the hormone.
My friend has also been taking some kind of supplement which was made from soy and that too was making the fibroid grow.
That by the way, has pretty much taken care of soy for me...but that is another story.
Anyway, she ended up going to one of the doctors that mdc moms recommended and she went to an chinese acupuncturist and a herbalist.
Long story short.
The fibroid has already began to shrink since her first appointment at the end of may where the doctor said, "I'll perform a hysterectomy."

This doctor who is well known for being more conservative about surgeries said that the fibroid will continue to shrink and that it did not seem like anything that needed to be removed. He also said there is nothing to suggest cancer and was shocked that other doctor said such.

in the meantime, my friend quit her job and broght down the stress which both the doctor and the acupuncturist felt was a good thing.
Stress activates hormones which adds to fibroid.

anyway, that was my personal experience via a friend about this very supject matter.
post #5 of 10
I just posted a thread on this in Healthy Home and Body.

I saw 20/20 last night and it made me so angry!

It said that 1 in 3 American women have the surgery for "female problems" and that an estimated 70% (probably higher) are totally unnecessary. Also, American women are 4 times more likely to have the surgery than women in other "developed" countries (Europe, Australia, etc.).

Un-friggin'-believable! One of the doctors said that yes, money is a motivator but mostly doctors have simply been taught that hysterectomies have nearly no side effects, are even GOOD for women.

MOST women who have the operation experience SIGNIFICANT sexual dysfunction afterward. One woman described it as going from 1000 miles per hour to zero as far as desire, not to mention experiencing pain.

Even when the ovaries are left in the orgasmic function of the uterus and cervix aren't there anymore. And the women who are able to achieve orgasm after the procedure all say it FEELS different.

Doctors don't think they're damaging any major nerves in the pelvis but medical knowledge of what, how many, and where nerves are in the female pelvis is dismally inadequate. Even the spokeswoman for the association of gynecologists (sorry, can't remember the official name right now) said that on a scale of 1 to 10, medical knowledge of female sexual response is about a 2.

AND, your doctor won't warn you that the surgery will probably ruin your sex life. And when it does, he or she will tell you it's all in your head.

Aaaarrrggghhh!!

edited to add: They did talk about HERS and the spokeswoman said that about 98% of the women who are counseled by HERS don't need and DON'T HAVE the surgery. Whew!
post #6 of 10
Nora Coffey of Bryn Mawr, PA founded HERS after she had a hysterectomy. She said the doctor/surgeon said her surgery was absolutely necessary and that if she were his wife he would have it done that day!

Makes you wonder what doctors think of their wives!

HERS is a wonderful organization. The last number I have for them is 1-215-667-7757. Every so often they have a conference.

Nora Coffey said that she knew the surgery was a mistake as soon as she woke up from the surgery. She said she was a real go-getter before the surgery... afterwards, no way.
post #7 of 10
Beverly Johson the beautiful african american former model had the same thing happen to her.
She had fibroids, she went to doctor, he said get hysterectomy, went for second opinion, same thing. Got the surgery immediately regretted it and now....I think...is a spokesperson for HERS.
She was in People Magazine about two months ago talking about it.
post #8 of 10

The late great Mendelsohn Rocks!

He already stated this very clearly in his book "Male Practice" written in the eighties! Almost everyday new studies proof that he was right all along. Amazing how 20/20 acts like this is new stuff! If they would read his book, they would have enough for at least 100 more shows!

Laughing but actually pretty sad about all of this

Christa
post #9 of 10

fibroid treatment alternative

I had huge fibroids but luckily my doctor was not into recommending surgery. A friend told me about an alternative that I eventually pursued (because the pressure was causing bladder leakage): uterine fibroid embolization. It is not particularly fun, but it is less invasive than a hysterectomy or surgery to remove the fibroids.

I don't feel that my sex drive was messed up or, so far, that I've had any catastrophic consequences. It is now a bit over a year since I had the surgery.

Deborah
post #10 of 10
If we were talking about a penis or testicles the protocol would be different, don't you think? Women getting breasts removed because of a gene "potential" for breast cancer?? If it were penis cancer "potential" I don't think the docs would be loping them off!
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