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Anyone else with sons who have an undescended testicle?

post #1 of 47
Thread Starter 
My DS is about to turn one and my ped has had me watching to see if his undescended testicle would drop down on its own in his first 12 months. It hasn't. We have an appointment with the urologist in 2 weeks. Anyone else have this experience? What do they do about it? Surgery? I am somewhat nervous about what they might tell me or want to do.
post #2 of 47
Thread Starter 
Really, no one? Wow... well maybe this will help someone else. The urologist has recommended surgery to bring the other testicle down and we are sceduled in 2 weeks. I'm a wreck. I actually feel the surgery will be fine, but I am very concerned about the no food after midnight. He nurses at midnight, 3A and 6A. So, I nurse at midnight and then what? He WON'T understand!
post #3 of 47
I didn't see this as my kiddo is quite a bit older now than babe but
My son had that surgery. He was older (not good; his ped. messed up and he should have had it at your son's age) so did understand and so I can't help with the nursing issue. Is his surgery scheduled early in the day? It is usually a really quick surgery for kids. Depending on the time of surgery you might ask if you can do the 3 am nursing. Breastmilk is sort of between food and a clear liquid in my understanding.
post #4 of 47
I have no personal experience, but my brother had an undescended testicle that was removed during a hernia repair when he was about 2 yo. He has two kids if that's at all a concern for you. Not nursing all night will be tough. I hope all goes well for you.
post #5 of 47
Hi - I missed this earlier also as I don't usually hang out in this forum. Ds2 is also scheduled for surgery for an undescended testicle next Monday. He's 17mos. Ped surgeon recommended the surgery at 12mos, but it got put off for various unimportant reasons. I'm not thrilled about my little guy having surgery, but I believe it is important to get it done.

Ds1 also had minor surgery around this age (different issue) and the nursing issue wasn't as bad as I was expecting. (Due to current pregnancy, ds2 is down to nursing only 1x/day so it won't be a problem for us.) Ds1 was nightweaned already, and since we had to get up practically in the middle of the night to check in to the hospital by 6am, the novelty of the new place was a great distraction from his early morning nursing session. Did you double-check about your 3a nursing session? I remember that for ds1 they told me nursing up to 4hrs before surgery was okay, but I was told no for ds2. I know how impossible it feels to tell a nursling no! Do you have an early am check-in at the hospital also?
post #6 of 47
I don't have any experience/advice. Just wanted to wish you good luck!
post #7 of 47
Thread Starter 
Thanks ladies. I was just going on what the nurse said at our first appointment. I will call the doc and anesthesiologist if need be. VBM, best of luck and let me know how it goes! My LO will also be circumsized at the same time. The urologist is head of the department and recommended it after examining him. Something about his forsekin being too tight and it might become problematic for him later on? I was sorta ambivalent about it at his birth b/c he was so small (under 5 pounds) and it didn't seem necessary, but if they have to do this other thing, and he is already knocked out, then I think it should be fine. I know that isn't super popular around here, but that is where I am at with it now after speaking to the urologist/surgeon.
post #8 of 47
My son was diagnosed at birth with undecended testicals. We went for an ultrasound, and the urologist said that he feels that because of their placement, they are actually retractile testicals, and we should wait until puberty to see if they descend. He says that this is way more common than truely undecended testicals....hope that helps!
post #9 of 47
I would ask about the circ. thing in the case against circumcision....his foreskin is suppose to be tight at that age...my son is 2 and just now starting to loosen, but still not retracting on its own and we do not under any circumstance foreceble retract....i think it is suppose to be tight for their protection....please please dont commit to this if you havent already planned a circ. for your son without extensive research...I also suggest calling Dr. Sears in california....(like all the Dr. Sears baby books)....where i live we dont have any decent peds that i know of, so i called him on several issues and found our conversations to be helpful and insightful....please let me know something....take care and best wishes to you and your son
post #10 of 47
I don't know about the nursing before surgery thing.

There are much more informed people over at the breastfeeding board.

You can post another one over there and there are much more informed mamas who will know the answer to this question.

Also do you go to LaLeche league meetings? It might be very helpful to get support from other nursing mommies during this time.

www.lalecheleague.org

About the circumcision thing. OMG!! That does not sound right at ALL!!

My son has the same thing with tightness. And according to all my research it's normal to be tight when babies are this young. And if they continue to be tight later on it will naturally loosen on it's own when they are a young boy. And if for some reason that does not happen and it's still tight when they turn into a teen or young man and need it loosened for sexual reasons there are very simple exercises they can to do loosen it in the shower every morning and it only takes a few weeks to get it loosened enough to be back to normal.

Seriously from everything I read circ is way too drastic a measure to take for this semi-normal thing. In fact many un-circ'd boys have this.

That urologist sounds like a typical snip at every opportunity guy to me. Or perhaps he simply does not really understand the situation.

I would not circumcise him so quickly. And if this guy does not agree to put off the circ surgery, get a new DR!!

After reading everything about how much feeling they loose with circ I would NEVER EVER circ another baby. And understandably there are many women who deeply regret circ'ing their boy after learning about it.

Here's a thread about it :

http://www.mothering.com/discussions...d.php?t=112410

good luck with the testicle surgery! I hope everything goes okay!
post #11 of 47
My ds has one undescended testicle and he is 6 months old and we keep hoping the other one will come down so he doesn't have to get surgery. Could they palpate (sp?) his testicle in his groin, they haven't been able to feel my ds' yet i want to make sure he has two before they go fishing around for it.

please let us know how it goes, as i am fearing this impending surgery too.

good luck.
post #12 of 47
our experience: i noticed ds had only one teste early on. it didn't worry me very much, but enough that we went in for a wbv to get it looked at, around 5 mo. old. The PA couldn't palpate anything so we went for an US. they couldn't find anything so we were recommended for Children's to visit a specialist. The specialist told me that their protocal is the same no matter what an US says. Surgery, either exploratory or corrective. DS had the surgery at month 8/9 i think.
The no nursing after 1am worried me (bm is considered a clear liquid going in, but not if it comes back ouy and that is what the anesthesiologists are worried about -or so i was told) However it wasn't a big deal in the morning as we had to leave early to get there. THEN we had to wait and wait and wait, and ds got fussier and fussier because he wanted to nurse. poor guy.

He was super out of it on the way home because he was so drugged up. We gave him tylenol for the next 24 hours. As soon as the morphine wore off he was just fine.

He has 1 incision in his belly button and one along his inguinal fold. oh... he only has 1 teste, there was no 2nd to decend.
post #13 of 47
Quote:
Originally Posted by tbone_kneegrabber View Post
My ds has one undescended testicle and he is 6 months old and we keep hoping the other one will come down so he doesn't have to get surgery. Could they palpate (sp?) his testicle in his groin, they haven't been able to feel my ds' yet i want to make sure he has two before they go fishing around for it.

please let us know how it goes, as i am fearing this impending surgery too.

good luck.
Yes, absolutely....they should do an ultrasound and try to gently feel the testicals on both sides....after doing that theyshould gently try to move the testical into the scrotum....it doesnt seem to hurt (my son had this happen to him...)

Breastfeeding before surgery....i can tell you that my son had open heart surgery and he was exclusively breastfed....the doctors at Emory allowed, and reccommended that he breastfeed up to an hour before his surgery....hope that helps....please dont commit to surgery of any type until you have checked and asked about retractile testicals as opposed to undecended....
post #14 of 47
Hi Can't Wait - thanks for the good luck wishes, I'll be sure to let you know how it goes next Monday. And yes, to the other posters, we do know that he does have a testicle up there, but it's not making any progress downward.

I wanted to add in with the other voices that you may want to get a second opinion about whether circ'ing your ds is really necessary, and I'm not just trying to come down on circ. Here's my story about why sometimes I think the specialists can be a little overeager to solve problems with surgery - when ds1 had surgery on his scrotum, the ped specialist also suggested that we take care of his umbilical hernia at the same time. The surgeon literally sprang that suggestion on us as we were doing the intake for his scrotum (scrotal?) surgery and we were not prepared to decide on the spur of the moment, so we said no. He gave us the justification that ds1 would already be knocked out and it was better to do it all at once rather than put him through another surgery later. Afterward, I was beating myself up for not "just doing it" while he was already under anesthesia the way the surgeon suggested and really sorry we missed the opportunity. But guess what? Two years later and his hernia has healed itself fine (we were told that was a good possibility) with no need for another surgery. My point is only that it seems like your son is pretty young to surgically address an issue with his foreskin that might resolve itself just fine with time. After our experience with ds1, I tend to think about specialists, particularly surgeons, with that saying "When all you have is a hammer, everything begins to look like a nail." If your ds is not having problems with the foreskin right now, you can always have surgery later and you might be better off just waiting to see if nature takes care of it rather than taking a surgical option now just because it's convenient, you know? Again, not trying to dump anti-circ on you, just thoughts from another mama who's BTDT 2x worrying about surgery for my little ones too!
post #15 of 47
Thread Starter 
My babe does apparently have an undescended testicle.... well, technically the doc called it retractile, but retractile that is off track and can't just be dropped into position. He said if he could have done just that, that was his preference. As far as the circ goes, I was ambivalent about it at birth, but not so much now. In other words, wouldn't have done it then "just to do it," but now since he will already be under, I am not opposed to it. I know that is not a popular opinion around here, but I am at peace with it. As far as the breastfeeding goes, I spoke with the anesthesiology department today and was told I could nurse until 4 hours prior to surgery and then he can have water, apple juice or pedialyte for an hour after that. So, a big thank you to all of you who encouraged me to look further into that! I am feeling a bit better.
post #16 of 47
Yay for the nursing news! That should make things a touch easier for you, I hope.
post #17 of 47
Please, I BEG you, do more research on circumcision before this surgery! There is absolutely no reason to do this to your son, and I think if you had any idea what it truly entails you would not feel this way. Just because he's under does not mean it will not cause him pain; there will be weeks of the wound healing, plus months of his poor sensitive glans rubbing against diapers until it's finally calloused enough that it's not tender. Then there is the possibility of adhesions, meatal stenosis, skin bridges, too tight erections, painful intercourse. The complication rate is absolutely astounding. Please, visit the Case Against Circumcision board, do some reading, check out the Regretful Mothers thread, and think very very hard.
post #18 of 47
Quote:
Originally Posted by can't wait View Post
Thanks ladies. I was just going on what the nurse said at our first appointment. I will call the doc and anesthesiologist if need be. VBM, best of luck and let me know how it goes! My LO will also be circumsized at the same time. The urologist is head of the department and recommended it after examining him. Something about his forsekin being too tight and it might become problematic for him later on? I was sorta ambivalent about it at his birth b/c he was so small (under 5 pounds) and it didn't seem necessary, but if they have to do this other thing, and he is already knocked out, then I think it should be fine. I know that isn't super popular around here, but that is where I am at with it now after speaking to the urologist/surgeon.
The foreskin of a 1 year old is supposed to be tight. Boys usually don't retract until long after that. Any diagnosis of phimosis in a prepubescent boy is a blatant fraud. Phimosis only becomes a problem when a boy becomes sexually active and even then can be treated without circumcision.

You have to remember that American doctors are generally not comfortable with foreskins. They've been taught (wrongly) that they're only sources of disease and problems and to cut them off ASAP. Most likely, he's also circumcised himself and doesn't assign the foreskin any personal value. These factors (and maybe some financial gain) are most likely the source of his desire to cut your son.

As a male, my circumcision has been a source of conflict between my parents and me. I can forgive them since I was born long before the Internet and computers became common and doctors were the only source of information. You know better and you can bet your son will know better. Considering that you live in California, most of his friends will be intact and he'll be left wondering why his mother let the doctor cut his penis for no good reason.

Carefully consider why you are even contemplating letting that doctor cut your son's healthy penis. Why do you REALLY want it done? Why are you willing to risk putting a schism in the relationship between you and your son?
post #19 of 47
His foreskin should be tight and it's VERY unlikely it will cause him any problems down the road.
It's not a popular view because removing a healthy and functioning (please read about the functions of the foreskin) part of a child's body for cosmetic reasons is wrong. There is absolutely no reason to have your son's foreskin removed and I truly hope you will research and reconsider having it done to him.

I hope your son's surgery (and doesn't also involve an unnecessary one/circ) goes smoothly and he has a quick recovery.
post #20 of 47
Your son deserves to keep his foreskin. Please visit the Case Against Circumcision and do some research about what he would be losing. It's his penis and his sexual future.
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