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Tongue and Lip Tie FAQ - Page 7

post #121 of 151
Dr Coryllos charged us $150 for a tongue tie and lip tie. We didn't end up submitting it to our insurance. Things were so hectic in that newborn phase, and then we ended up moving. I was wiped out. I wonder if the insurance would have paid it easily or put up a fight.

In answer to Lynn's question
Rosti was a frequent nurser. Even after his tongue tie was clipped, in the newborn stage he nursed very often. I don't know how much of that was due to residual sucking difficult left over from the tongue tie, and how much was just typical high needs stuff.
post #122 of 151
Dr. Wade Peers
801-530-0027
508 east south temple suite 114
Salt Lake City, UT

He performed the clipping on my 2 1/2 week dd with a type 4 (posterior) tt. He was hesitant since he'd never done such a young baby, but he was great and the difference has been amazing! Goodbye syringes!
post #123 of 151
This thread has been a G-d-send. I spent a few hours last night reading through it. I have a call into Dr. Palmer's office (he retired a few years ago, but the receptionist who answered the phone was super helpful and is checking with him for a referral).

Between thrush and her terrible lip and tongue tie, nursing is almost always painful. I look forward to updating with some good news soon!
post #124 of 151
Does anyone have a current number for Dr. Coryllos? I'm heading up to NY next week and wanted to try to schedule something while I was in the area.
post #125 of 151
In Central Florida, I recommend:
Dr. Kosko of CENTA
Dr. Ruiz of Central Florida Oral and Maxillofacial Surgery

I'd been to two oral motor therapists and another ENT, none of which saw my son's tie. Dr. Kosko actually took the time to really LOOK (papoosed him to the board, used a light and microscope as opposed to half-heartedly poking in his mouth with a tongue depressor) and found a small, tight tie in an odd place. He was hesitant to clip it, but did so when I said that breastfeeding was important to us. He said they do about one clip a week.

HOWEVER -- Dr. Kosko did not see the remaining posterior tongue tie, even in the follow-up appointment.

We saw Dr. Ruiz a few months later, and he saw the posterior tie. However, he won't clip in-office past 3 months. He works closely with speech and occupational therapists at Arnold Palmer Children's Hospital (they have a great therapist for breastfeeding issues, Keri, I believe).

I do NOT recommend Dr. Mokris of the Florida Otolaryngology Group. He said he didn't believe in posterior tongue tie, rarely even clipped anterior ties, and suggested I use a bottle.
post #126 of 151
Lastrid, I heard from my LLL leader that Dr. Coryllos recently stopped practicing.

I saw an ENT in NYC, Dr. Linda Dahl, to get my daughter's posterior tongue tie clipped. My LLL leader is recommending her to all moms with babies who need their tongue ties clipped. I really liked her--she knows about posterior tongue tie, respected me as the expert of my baby, and was gentle during the procedure.

Here's her contact info:
Linda D. Dahl, MD

186 East 76th Street
New York, NY 10021

(212) 920-3047
post #127 of 151
So I had dd just over two weeks ago. Shortly after I got home from
the hospital I noticed her lip tie:

http://www.flickr.com/photos/42060700@N08/4629841528/

I was having trouble with her latching and staying on the breast an ha planned to get her clipped. I made the appointment and went but wouldn't you know it the dr was on vacation and someone made the mistake of still booking the appointment. So I was sent home with nothin done. I have been able to finally get her latched on and we are feeding great. But my concern is that I've read about lip ties connected to speech problems and dental problems. That's what really worries me. I wasn't able to breast feed ds due to a bad latch and then nipple confusion. Out of curiousity I took a look at ds who is now 2 and I find he has the same lip tie! I guess it shouldn't be a surprise because it's genetic but I know more now than I did then. Ds doesn't have any speech problems, though he is just starting to talk, and his teeth are straight without gaps. I'm wondering if I'll luck out this time with dd and not have it cause any issues. So it comes down to clip or not? It's not urgent since we are bfing ok but I want to take care of this or make a decision before her teeth start coming in. Ds's teeth came in early and dd is showing signs that she will be the same. Any advice?
post #128 of 151
If it makes you feel any better, tongue and lip ties run in my family, yet none of us have any speech problems.

But I do think i would have been better off if my tongue tie had been clipped when I was a baby. I think my mouth and jaw and sinuses would have developed closer to how they were meant to. ("meant to" meaning how my DNA blueprints intended for them to be)
post #129 of 151
I have two kids with tongue and lip ties (DS's tongue was clipped, DD's was not) and neither has any speech issues.
post #130 of 151
Our story and links to resources in the central Florida/Orlando region:

http://floridatonguetie.blogspot.com/
post #131 of 151
A bit of an old post... but has anyone found anyone in the MD/VA/PA area that is knowledable in posterior ties? I saw Dr. C in NY for DD's however she's no longer practicing. DS2's tongue has been clipped TWICE now and still is not free. He's 3 weeks old, my supply is compromised (which I know I can fix) and nursing is so painful between the thrush and the shallow latch, inability to maintain latch and the nipple flicking with his tongue. We're supplementing right now but I do NOT want to wait as long as I did with DD to get this fixed... As it is, I have to learn to love my pump again to get my supply up to normal so when we do get it taken care of, my supply is there.

help?
post #132 of 151
Dr. Coryllos is retired. I e-mailed with Catherine Genna about my 15-month-old son, and she agreed that his pics definitely show a lip tie, and a possible posterior tongue tie. She suggested we go to Dr. Linda Dahl in NYC. She said he definitely does have a posterior tongue tie, in addition to the lip tie. I really like her and would like to go with her, but we have no insurance coverage in NY state. My husband wants us to try to find an option in NJ or PA, where we do have coverage (well, at least some coverage). I tried to explain to him that not that many doctors know posterior tongue tie, much less have real experience with it. We're gone 15 *(#*! months without satisfactory explanations for all our nursing issues, and I want to JUST TAKE CARE OF IT ALREADY with someone who knows her stuff, and not waste time with people who don't know posterior tongue tie.

According to Dr. Dahl, there really aren't many (I would think she's mainly thinking of ENTs) who deal with posterior tongue tie, especially in toddlers. Does anyone know of a truly good doctor who knows posterior tongue ties in PA, especially in the Philadelphia area? If there isn't anyone, we will have a better shot at getting the insurance to cover this as in-network. But we need to know for sure that there isn't anyone else qualified so we can fight with them about it (as we'll inevitably have to).

So - PA tongue-tie experts, especially for toddlers?
post #133 of 151
Quote:
Originally Posted by Julybug View Post
Dr. Coryllos is retired. I e-mailed with Catherine Genna about my 15-month-old son, and she agreed that his pics definitely show a lip tie, and a possible posterior tongue tie. She suggested we go to Dr. Linda Dahl in NYC. She said he definitely does have a posterior tongue tie, in addition to the lip tie. I really like her and would like to go with her, but we have no insurance coverage in NY state. My husband wants us to try to find an option in NJ or PA, where we do have coverage (well, at least some coverage). I tried to explain to him that not that many doctors know posterior tongue tie, much less have real experience with it. We're gone 15 *(#*! months without satisfactory explanations for all our nursing issues, and I want to JUST TAKE CARE OF IT ALREADY with someone who knows her stuff, and not waste time with people who don't know posterior tongue tie.

According to Dr. Dahl, there really aren't many (I would think she's mainly thinking of ENTs) who deal with posterior tongue tie, especially in toddlers. Does anyone know of a truly good doctor who knows posterior tongue ties in PA, especially in the Philadelphia area? If there isn't anyone, we will have a better shot at getting the insurance to cover this as in-network. But we need to know for sure that there isn't anyone else qualified so we can fight with them about it (as we'll inevitably have to).

So - PA tongue-tie experts, especially for toddlers?
Have you checked around with your local MWs?? Many MWs do frenectomies- such a quick, easy procedure (I hate to call it that even, it's seriously so tiny). The being held down is the hardest part, the actual clip is nearly painless. It's around $75 for a MW to do it here in Houston.

We had a consult with a pediatric dentist who does lip tie clips but it is much more painful according to him, so we only did the tongue since that helped DS nurse better immediately and he began gaining weight. He also said they require anesthesia for that.
post #134 of 151
Shwarma, not posterior ones. There are only a handful of people in the country who will touch a type 3 or 4.

Julybug, Dr Coryllos charged us a flat $150 rather than bill to insurance. I probably could have submitted for reimbursement, but at that point we were so overwhelmed that I never bothered. Anyway, ask Dr Dahl how much it will cost. You might find that it is not much at all.
post #135 of 151
Quote:
Originally Posted by Lady Lilya View Post
Shwarma, not posterior ones. There are only a handful of people in the country who will touch a type 3 or 4.
Hmmm or maybe it's a regional thing? I had a breastfeeding educator catch DSs posterior tie and then give me two local choices (a pediatric dentist or an ENT) to do the procedure. Both of those providers are well known to be supportive of BFing and so maybe you could ask around at the LLL or LCs in the area? Houston is a medical meca so to speak so maybe that's what it is.
post #136 of 151
Do you have coverage in MD? If so, I can send you info on someone here who does posteriors in toddlers... He did my sons when he was 3...

It took 3 separate visits to get my sons tongue tie fully clipped.... But it looks like it's finally done right and he's having all the signs of a free tongue... including it rolling lik ehe's going to swallow it and tons of drool. I'm hoping it's done right now!
post #137 of 151
Dr. Kotlow in Albany, NY (http://www.kiddsteeth.com/) did The Babe's tongue tie and upper lip tie at 5 days old. We were very lucky to have our homebirth MW diagnose the tt when The Babe was about 5 minutes old, and confirmed by Dr. Mike Morin 1 day later at her first ped visit.

Dr. Kotlow did not take our insurance, so it cost $450. This was a flat fee for the LASER surgery, all follow up visits, and any repeat procedures. He said her lip was the worst he had seen and the tongue tie was also very bad. She had to have both procedures repeated -- this is unusual for him. With each procedure there was a marked improvement in nursing.

This was THE BEST $450 I have EVER spent. I would be exclusively pumping now (and maybe divorced!) if she did not have the tt corrected. *The only negative thing about Dr. Kotlow, is that he said it wouldn't be the end of the world to give her some formula. At the same time we were going through our tt situation, his granddaughter was born with tt, he corrected it, so she was able to BF, but she was also supplemented with formula. He used this story to let me know it was "ok," in addition to point blank suggesting that I give her a few ounces of formula a day. Maybe it would have worked to supplement with formula, but that is a dangerous path to start down, especially since I was struggling to keep supply up with exclusive pumping. I was also POed at the subtle and not so subtle pro-supplementing advice I was getting.*

Dealing with a tongue tie is extremely difficult. Before the surgery I winced every time The Babe got near me because nursing was so so so painful. I also feel like I missed out on some initial bonding because when she was hungry I would have to sit there and pump while someone else held a screaming baby. (I could never get ahead in milk supply no matter how much I pumped.) It was devastating to have a crying baby, who you know is hungry, and not be able to take care of her -- instead I was hooked up to the pump. If I didn't have a lot of family help I don't know how we would have made it.

Thank you knowledgeable MWs and peds! And thank you Dr. Kotlow!
post #138 of 151

Phila ENTs

hi! I had emailed Catherine Genna (IBCLC who worked w/ dr. coryllos), she referred me to this website...there are 2 philly doc there! Good luck! I think we are going to try dr. dahl...glad to hear good things abt her!

http://www.lowmilksupply.org/frenotomy.shtml#PA
post #139 of 151

Phew! Mama2J, thank you so much for that link. There's at least one in MI. Yay! I was dreading a drive to NY...

post #140 of 151

I'm investigating the idea of a Class III or IV upper lip tie on my 2 week old daughter.  I seriously believe I would still be in tears daily if not for this thread!  The resources are amazing and I've already made two appointments: one with my local pediatric dentist (who didn't seem to be aware, but is at least interested enough to call me several times after making the first appointment--once to ask questions and the second time to up the appointment to first thing next week!--and one with a doc in Ann Arbor who was on the lowsupply article list for MI docs familiar with these conditions.

 

Now that I've started investigating and solving the difficulties for my youngest, I took a look at my oldest 6 and a half yr old DD, with whom I thought I failed at BF when her pedi gave up on us at 3 months and the stress led me to formula after much crying.  Guess who has a class IV upper lip tie for sure?!  Thank goodness she doesn't have speech problems (though a few sounds, like shhhhhh, caused problems through Kindergarten until we practiced a lot with her)!  My middle 4 and a half yr old DD was the easiest to BF and we did successfully for 9 months, until it was too much for me to handle with work.  I was so proud of myself with her...and her mouth is free of any ties.

 

Just goes to show we moms aren't losing our minds...those ties really can make a difference!  I don't think my DH still understands that it isn't me or my milk supply ("Honey, I can shoot it across the room.  It's not my supply.")  but I overheard him explaining the appointment to what I can only assume was his mother, so he must be coming around...

 

I just hope I'll be able to update in a few days with some news of success, and that this will be the end of the BF issue for our family (until the next baby, anyway)!

 

 

 

 

 

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