Originally Posted by loraxc
Update: we saw a GREAT pediatric OT/infant feeding specialist today who confirmed that DS definitely has a type 3/4 (posterior) tongue tie. His suck is all messed up and he's compensating for his poor tongue action by mangling my poor nipples. She showed us some exercises we can do, but was in agreement that a physical fix is the way to go, saying it's bad enough that he will probably even have trouble eating solids. I now have the name and number of pediatric ENT in town who is interested in seeing him and potentially performing the release.
YAY!! And thank you MDC. I have to point out that two midwives, his ped and the LC (intially) ALL missed this, even though I specifically asked the ped to check his tongue. It's sort of shocking.
Hi. We were in the same situation, except we are in England which is even worse for diagnosing posterior tongue ties. My son had a very severe posterior tongue tie, it has been snipped TWICE by the most experienced surgeon in England, however it is still tied ( he does not even elevate it when he cries and he cannot even suck on a bottle ) So we are flying to NY on Monday to see Dr. Coryllos!!!
Incase anyone's wondering about whether to snip or not, here's some info I've researched through lots of chats with CWG and others....
Babies are formed with the tongue bonded to the floor of the mouth and it should gradually recede about 8 weeks gestation I believe. Anything left over is a remnant and that can cause the problems, so the frenula that's being snipped is something that shouldn't be there anyway. Its true that some babies manage fine, but many babies have to compensate by using excessive jaw movement or lip movement. Also it can cause speech problems, palate and dental problems. My baby is getting milk in his airways ( makes a growly wet sound after feeding ) because the back of the tongue can't elevate to seal off the soft palate , this can lead to aspiration, ear infections and all sorts of problems (good job he's still getting my milk )
Don't know if that helps anyone, its just I know how frustrating it can be when people try to paint you as a cruel mother jut because you are trying to get the best for your baby.
Hope your sons feeding improved after the snip. If in any doubt get it checked out asap ( I left mine for weeks thinking he would improve, because noone thought it possible that he could still be tied, now not sure if he'll ever get back to breast feeding )