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Tongue and Lip Tie FAQ - Page 5

post #81 of 151
Quote:
Originally Posted by MaryJaneLouise View Post
and some contact info on Dr. Coryllos, don't know how current:

Elizabeth Coryllos MD,MS,FAAP,IBCLC
8 Jaegger Drive
Glen Head NY 11545
United States
Phone: 516-759-4411
Fax: 516-759-4441
Email: pflardi@optonline.net
http://www.breastfeeding.com/directo...s/newyork.html
When I saw her less than 9 months ago, she was in Minneola at 516-671-6816.
post #82 of 151
Oh, gosh, guys. I am confused.

I ended up calling Dr. Punger (recommended in this thread) and making an appointment with her tomorrow to get it clipped in her office with no GA. So I now have to cancel one of these appointments. The nurse said Dr. P does 2-4 of these procedures a week, which sounds great. But the nurse also didn't really seem familiar with the idea of "posterior" tongue-tie, which is what we've been told DS has.

But...my mama instincts say not to go with the guy we saw today. The only thing bothering me is the issue of the potential scarring and/or an incomplete release, both of which he claimed were risks of an in-office clip.
post #83 of 151
http://twofloridadocs.com/tongue_tied.php

Here is a link to Dr. Punger's article on tongue tie, it describes how she does the procedure. It sounds like if something is too complicated she may refer it out to an ENT.

Dr. Punger did my DD's frenotomy and she was really great. I would recommend her to anyone having troubles with breastfeeding.
post #84 of 151
Quote:
Originally Posted by loraxc View Post
Oh, gosh, guys. I am confused.

I ended up calling Dr. Punger (recommended in this thread) and making an appointment with her tomorrow to get it clipped in her office with no GA. So I now have to cancel one of these appointments. The nurse said Dr. P does 2-4 of these procedures a week, which sounds great. But the nurse also didn't really seem familiar with the idea of "posterior" tongue-tie, which is what we've been told DS has.

But...my mama instincts say not to go with the guy we saw today. The only thing bothering me is the issue of the potential scarring and/or an incomplete release, both of which he claimed were risks of an in-office clip.
She's completely awesome! No worries she'll take good care of your DC. Also after she clips and baby has nursed without problems you can ask for them to put a little of the numbing stuff on it. She did it for mine DS2, but only after he nursed Too bad you arent going on Wednesday cause we'll be there getting DS1's clipped
post #85 of 151
Dr Coryllos told us that most people are only comfortable clipping type 1 or 2. She said often in cases of 3 or 4, people will go somewhere else first, and then find it wasn't clipped enough, and come to her.
post #86 of 151
Really quick:

DS was clipped today. Procedure went absolutely fine--so easy--he didn't even really cry. I can feel *some* difference but it is not dramatic yet. However, I think he needs to really retrain his suck. I was able to get him to suck my pinky some AND he could "latch" to the Gerber natural latch paci, which is a big change, so I feel hopeful.
post #87 of 151
Don't give up hope, I remember that DD had to get used to it too, and that it took a while for her to learn (tongue tie was clipped at one month, everything was better by 9 weeks) to stick that tongue out over her gums. Keep working with it, use your finger of the paci to massage that tongue out before he latches on.
post #88 of 151
Wow! I suspect possible tongue tie with my LO, and this is a great resource thread- thanks!

I do have a question- two of my baby's uncles had tongue tie (one was undiagnosed until it caused speech delays!) and I wondered how many others have seen this family link? I know it can be genetic...does this mean all my kids are likely to have tongue tie?
post #89 of 151
Quote:
Originally Posted by Gnatty View Post
Wow! I suspect possible tongue tie with my LO, and this is a great resource thread- thanks!

I do have a question- two of my baby's uncles had tongue tie (one was undiagnosed until it caused speech delays!) and I wondered how many others have seen this family link? I know it can be genetic...does this mean all my kids are likely to have tongue tie?
I'm tongue tied. Both of my DSs were (DS1 got clipped yesterday.) Its a very dominate trait in our family (only from my side that we know of.) I do believe it is genetic in nature.
post #90 of 151
Update--he's getting better! He is doing much more of a pulling, milking suck rather than a chompy one. We're not all the way there for sure, but I am feeling a difference for sure. I think maybe he's got better mouth action but his tngue is still not extending fully/always?
post #91 of 151
Quote:
Originally Posted by loraxc View Post
Update--he's getting better! He is doing much more of a pulling, milking suck rather than a chompy one. We're not all the way there for sure, but I am feeling a difference for sure. I think maybe he's got better mouth action but his tngue is still not extending fully/always?
Wow, that's so great to hear! We didn't have linear improvement when dd1 was clipped. It got worse after the anesthesia wore off, then got better and her latch varied. But bit by bit it made a huge difference.
post #92 of 151
Yeah, he has good sessions and bad ones. I am finding that getting him to suck the Gumdrop brand pacifier or the Gerber Natural Latch before a session helps him "remember" what to do. I can tell his tongue is getting stronger because he can suck both of those for much longer than he could before the clip. Never thought a pacifier could help a BFing relationship so much!
post #93 of 151
Quote:
Originally Posted by loraxc View Post
Yeah, he has good sessions and bad ones. I am finding that getting him to suck the Gumdrop brand pacifier or the Gerber Natural Latch before a session helps him "remember" what to do. I can tell his tongue is getting stronger because he can suck both of those for much longer than he could before the clip. Never thought a pacifier could help a BFing relationship so much!
It does improve!! DS2 is 4 weeks out from the procedure and minus a little soreness when he (or mommy!) lazy latches it's 100X better. My supply has also (for the most part) leveled out finally. I still have leaky days, but not everyday!
post #94 of 151
Quote:
Originally Posted by loraxc View Post
Yeah, he has good sessions and bad ones. I am finding that getting him to suck the Gumdrop brand pacifier or the Gerber Natural Latch before a session helps him "remember" what to do. I can tell his tongue is getting stronger because he can suck both of those for much longer than he could before the clip. Never thought a pacifier could help a BFing relationship so much!
Hope its still going well for you. We had an interesting experience in NY will update when i get a few more minutes to myself!
post #95 of 151
I figured I'd throw in my experience...my 2nd had major tongue tie and we had breastfeeding issues the entire time-namely, major major pain for me. For MONTHS it was agonizing. We saw probably 5 LCs and no one figured out the problem. It wasnt until we found our current ped that she noticed it and said it was so friggin obvious, she couldnt believe that no one had noticed. By then, I had weaned her (she spent 3 months yanking, biting, pulling away and I just couldnt take it anymore) but it was good to know. We made sure our next babe didnt have the same issue.

Anyway, she actually developed speech issues because of it, we had her evaluated by a speech therapist and she agreed it was due to the tongue tie. Again, it was very bad-the flap of skin that holds the tongue was all the way up to the tip, held it down very tightly, and she couldnt stick her tongue out past her lips, and it had the heartshape to it even then. As a seperate issue, she also had sleep apnea and huge tonsils, so in a way we got lucky-we had her tongue clipped while she was under general during her tonsilectomy. The surgery fixed both problems and now she's a normal 5 year old.

On a side note, at first, I could NOT find a doctor willing to do the clip with any sort of sedation or even lidocain or something similar. I put it off as long as I did because I refused to have my dd go through that at her age-she was already 2 by then and I didnt want her scared of the doctors or to go through the pain. So I was very careful to make sure my next one was ok right off the bat, and luckily she was
post #96 of 151
Just a little update for all of you. My two boys are doing wonderfully! Steven is now almost 20lbs at 4 mo! So he's definitely getting all he needs with a pain-free mommy! The clip hasn't stopped his spitting up, but because it doesnt make him uncomfortable I'm gonna work on eliminating foods to see if it helps instead of dealing with the dr. prescribing a bunch of medicine. Austin has turned into a completely new child. He speaks clearly (most of the time but hey he's only 2 ) and can actually say all the sounds of a word. He also loves sticking out his tongue now His teeth have also stopped turning in so hopefully they'll even out before his molars come in
post #97 of 151
I am feeling a little angry at the dermatologist who knew I had keratosis pilaris, which comes from vitamin A deficiency, and never told me the cause. Instead he prescribed me expensive pharmaceutical creams. If I had known about the vitamin A deficiency earlier, I would have done something about it before conceiving, and my baby might not have had tongue tie. Even though it has been clipped, he can expect a life time of teeth and jaw and sinus issues. Thank God he doesn't have some of the really horrible defects that vitamin A deficiency can cause!
post #98 of 151
Quote:
Originally Posted by Lady Lilya View Post
I am feeling a little angry at the dermatologist who knew I had keratosis pilaris, which comes from vitamin A deficiency, and never told me the cause. Instead he prescribed me expensive pharmaceutical creams. If I had known about the vitamin A deficiency earlier, I would have done something about it before conceiving, and my baby might not have had tongue tie. Even though it has been clipped, he can expect a life time of teeth and jaw and sinus issues. Thank God he doesn't have some of the really horrible defects that vitamin A deficiency can cause!
What does vitamin a deficiency have to do with being born tongue tied if you dont mind me asking? Ive never heard of that before!
post #99 of 151
These days it is one of the prevalent theories. I could have sworn someone mentioned earlier in this thread the link between vitamin A deficiency and tongue tie. Folate too, as some people need more than others.
post #100 of 151
Quote:
Originally Posted by Lady Lilya View Post
These days it is one of the prevalent theories. I could have sworn someone mentioned earlier in this thread the link between vitamin A deficiency and tongue tie. Folate too, as some people need more than others.
Thats really interesting...I'll have to look back
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