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Serious vax reaction:have u seen this before?

post #1 of 19
Thread Starter 
Monday the 21st my daughter, 11 months, never even had a cold before, breastfed baby, on a delayed/one shot at a time vax schedule, received the Prevnar brand pneumococcol vaccination. Tuesday morning she didn't wake up until her sister woke her at 7:00, about 2.5 hours after she normally wakes. This is unusual for her, but she does usually sleep a lot after her shots.

I was at school already. Dad called me to report that dd was lethargic. I called my mom, an ER nurse, who went right over with her thermometer, expecting to find a slight fever, give her some Tylenol, and get her back to sleep. Instead, by the time seh got there, dd was almost completely nonresponsive. She held her head all the way back and to the left. Her eyes were fixed and rolled up and back. She fell backwards when they tried to sit her on the floor. My mom rushed her to the ER. On the way out the door, dd was able to pull her hat off her head.

I got to the ER about 2 hours later--I go to school in another city. When I walked in the door, she didn't look at me or respond to my voice. She was slouched against my mom, head still back, eyes fixed. When I put my face in front of her eyes she whimpered and could follow me with her eyes. She couldn't move her body. I tried to nurse her right away. Her eyes told me she understood that she wanted to nurse but she could hardly move. I put my nipple in her mouth and eventually she was able to suck, but only weakly. Her arms and legs were rigid. Her hands were usually clenched.

They started in IV, took blood, did a spinal tap, 3 xrays and 2 CAT scans and she did not move at all, but she was able to cry strongly when she was really upset. Her cry was not her own at all. At one point she responded with a small, eery smile when I did a little chin chopper game with her. She actually smiled in anticipation even. She also knew when I was holding her and relaxed a little in my arms. 3-4 hours after I arrived she was no longer able to nurse but was most relaxed when I held her like she was nursing.

She was transferred to another hospital to see a pediatric neurologist. In the ER there they found that her IV had infiltrated and had a difficult time getting a new one in. They also tried to put a catheter in for 30-40 minutes before realizing that, like most babies her age, her labia were fused. She still couldn't really move but was irate and screaming. Not crying, screaming. She began to shake like she was having a seizure but she was still screaming so it wasn't a seizure. Then she began pusturing with her legs and arms, which is typically a sign of a serious seizure. She was still screaming so they don't know what caused it. She was as stiff as a board in my arms.

Once they had the IV in they gave her some Adavan--anti-anxiety medicine. She fell asleep and slept through another stick to administer the serum for an MRI, and then through the MRI itself. They couldn't rouse her but I'm not sure how hard they tried. They admitted her to ICU. About 4-5 hours after the Adavan, she rubbed her eyes--the first time she could move her limbs--sat up and whimpered groggily. I was behind her. I called her name and she turned her body towards me and held out her arms--the first time she had responded to sound. I nursed her and she nursed well until she fell asleep. She nursed in her sleep until 4am, when she woke up ready to play.

They transferred her to pediatrics within a few hours. She slept a lot and was very shaky. Her fine motor skills were clumsy and she was unsteady. She seemed drugged or drunk all day. She slept most of the day. She nursed almost nonstop. The next day she woke very alert and agile. She learned to go "nighty night" on the pillow, to blow kisses, and give real hugs. She was busy and active all day. Once they released her from ICU they probably stuck her about a dozen more times over the next two days to take blood and try to get IVs. She quickly learned the routine and knew to mistrust anyone with blue gloves.

She was in the hospital for 4 days and has been home for 4 days now. She is perfect and, other than being understandably cautious of new environments and people, she is back to her old self.

The pediatric intensivist's strategy was to do every single possible test he could think of. She had an EEG along with the MRI, CAT scans and xrays, and literally every single blood and urine level were tested. She had about 7 doctors and specialists following her case and the only thing they came up with was bilateral ear infections, which were almost cleared up after the first dose of antibiotics.

Of course, every test that came back negative made my mom and I think Autism. She looked like an Autistic person and she had just had her vax the day before. But now she is back to normal. The doctors did NOT want to write it up as a vax reaction! They fought it so hard and tuned me out every time I brought it up. In fact, the last two days she was there, he told me that he didn't expect to find anything wrong, that he was only doing the tests because he didn't want to blame the vax. Although the intesivist eventually reported it to the CDC and VARS, the other pediatrician actually told me (you won't believe this) that getting her the second Prevnar could prevent this from happening in the future. She said she had never seen this kind of reaction so she refused to believe that's what it was. The CDC was adamant that we do not give her the second dose, and in fact neither of my children will ever receive vaccinations again.

After he reported it as a vaccine reaction, he assured me that the Prevnar vaccine has NO common ingredients with other vaccinations and that it is perfectly safe to continue her on the vax schedule that we were on. In fact, he told me this twice and the pediatrician repeated it once. When I got home, the first article I came across was Dr. Sears' article about aluminum in vaccines--in ALL vaccines. According to this article, aluminum is linked to neurologic degeneration and that no one actually knows the safe dose--or if there is a safe dose, for that matter--for healthy, full term infants and children.

Now I am trying to find accounts of similar reactions to vaccines. Our baby bounced back and seems to be fully recovered but of course we are worried about lasting neurologic damage that may not appear until later. If you have experienced this or something similar, please share your story with me. My email is citymagnolia@yahoo.com. I am a journalism student but after this trauma I took this semester off to be with my family and to educate myself about vaccinations. I'm going to prepare a report for the doctors who followed my daughter's case, to present them with enough information that they are forced to see the seriousness of this issue and the dangers of their blind aceptance and faith in vaccinations.

Rebecca
citymagnolia@yahoo.com
post #2 of 19
I am so sorry about what you and your family just went through, but am happy she is doing better! I have never personally went through an experience like that but there is a really good website you can go to, www.thinktwice.com. There are alot of personal stories related to vaccine reactions there. Also a book I have read, "Immunizations:The people speak" by Neil Miller answers just about any question you could have about vaccinations and also has personal stories in it as well. Good luck!
post #3 of 19
Wow! You and your daughter have certainly been through a lot. We have not had anything like this happen, but I have read enough stories that it has helped convinced us to no longer allow our children to receive any vaxes either. I'm so glad that your daughter is doing better!
post #4 of 19
Oh, I cried reading your daughter's (and your family's) horrible ordeal.

I wish you much luck on your article and if I run into anyone who has seen serious side effects, I will have them contact you.

I wish you well on your path!!

Sending lots and lots and lots of hugs!!!
post #5 of 19
Quote:
The CDC was adamant that we do not give her the second dose, and in fact neither of my children will ever receive vaccinations again.
someone can correct me if I'm wrong - but I believe the CDC has a separate vaccine reaction database that is not open to the public the way that VAERS is...if the CDC is saying no to a second shot - you can bet that they have seen this reaction before.

Quote:
Although the intesivist eventually reported it to the CDC and VARS, the other pediatrician actually told me (you won't believe this) that getting her the second Prevnar could prevent this from happening in the future.
things like this make my blood boil...this ped should have her license revoked. saying that even after the CDC said no to a second shot.


I'm so sorry that you and your daughter had to go through this and that there was absolutely no validation that it wasn't some random coincidence...yeah right...
post #6 of 19
Do a search on VAERS and see what you can come up with -

http://www.medalerts.org/vaersdb/fin...0&SORTING=NONE



Interesting that her ped would run all those tests to prove that it was not the vaccine. How exactly did any of those tests serve that purpose?

And if it was not the vaccine, what exactly caused this episode? Certainly not an ear infection which generally clears up on it's own and for which abx
is no longer indicated.

I am so sorry for your dd. How many kids get a shot, die of SIDS and the doctors simply say they have no clue what caused it BUT IT WAS NOT THE VACCINE.

When is this madness going to stop? I hope that she recuperates completely and has no lasting side effects to the vaccine.

There is quite a bit of info about Prevnar in case you or your mom want to take a look at it at some later point -

http://www.mothering.com/discussions...play.php?f=114
post #7 of 19
I am so sorry for everything you and your family have been through That must have been extremely difficult and I am so glad your LO is ok now. That ped should be fired for pushing more vax on you after that!!! That is outrageous. I don’t vax and therefore have not had a vax reaction but I wish you the best in your research and good luck with school.
post #8 of 19
I am just so so sorry. I am so glad she seems like herself again. It's such hard and difficult waters to navigate with the "experts" giving unreliable and uncompassionate advice. Keep that babe close and remember she's been through a lot. Monitor and even keep notes of any issues she has going on, even in the coming months. And thank god she's okay. You are so lucky and blessed to have her back and she's lucky you are going to protect her.
post #9 of 19
Quote:
Originally Posted by 13Sandals View Post
.if the CDC is saying no to a second shot - you can bet that they have seen this reaction before.
:

So sorry you had to go through all that. Happy to hear you are discontinuing vaxes. I would also report that ped to the proper authorities. Saying you should still get the vax after all that is criminal. :
post #10 of 19
I had something similar happen...although it was several years ago (with my oldest son). He had a reaction to his first shots, so we delayed giving any more. When we resumed (at around 18 months) our doctor wanted to play "catch-up" so he was given several shots at once. He had a SEVERE reaction (as in floppy body, blue lips, rash, etc) When we arrived at the ER and called his doctor to come in (while the ER was getting him back on track with steroid IV's etc) we were told it was a "coincidence". We didn't know to report to VAERS (didn't know it existed) and it never showed up in his medical file as a vaccine issue. Apparently, officially I rescued my co-sleeping, breastfed son from SIDS. (Which I later found out doesn't even APPLY to children over 12 months). This was partially determined (I believe) because of his "quick recovery" after being given oxygen and steriod IV's.

When I informed my ped we would no longer be vaxxing she informed me that he could be harmed more from STOPPING in the middle of a series.

This adamant denial from EVERYONE regarding the possibilty that it could have been the vaccine was what started my questioning. I've never vaxed again.
post #11 of 19
Here's the insert for the vax that includes seizures reported during the trials and other information:

http://www.wyeth.com/content/ShowLabeling.asp?id=134

Some VAERS reports that were viewed:

http://www.*********/a/vaers.html

More info:

http://www.nvic.org/Diseases/pneumoccoal.htm

"Children in groups who got the pneumococcal vaccine suffered more seizures, irritability, high fevers and other reactions."

http://vaccineawakening.blogspot.com...g-doctors.html

"What is it we're all about here? Are we about saving lives or making money?" Livingston recalled the woman asked.

http://www.law.com/jsp/article.jsp?id=1139393115651

PREVNAR: POINT/COUNTERPOINT

http://www.jabs.org.uk/pages/A_Point_Counterpoint.doc

Fetal Calf Serum....just ewww

"First, the fetal calf serum purchased by the vaccine manufacturers purchase the serum from cows in North America and New Zealand where there have been no reports of mad cow disease. They do not purchase serum from England."

http://www.oah.state.mn.us/cases/hea...dr-effrem.html
post #12 of 19
Your story sounds eerily similar to what happened after my oldest dd got her first DTP. I got the same crap from the doctors. But I listened to them and continued vaxxing her. She had a very hard life and died at 8 years old (link in my sig). Thank goodness you are well-informed. Your dd is lucky you are her mama. If it were me, now, I would never ever let anyone near her again with any vaxes whatsoever.

The aluminum piece is huge, IMO. I believe that was the biggest cause of Marissa's problems from the beginning. DTP has one of the largest amounts of aluminum in it.
post #13 of 19
Wow, how scary! I'm so glad your little one recovered. And shame one doctors willing to risk her life rather than be open-minded that vaccines could have side effects. My sympathy to you and your family and kudos to your parents for being alert.
post #14 of 19
I am so, so sorry your family went through this. I cried reading your story. Very scary indeed.
post #15 of 19
wow.
kudos to you for writing this all down, and creating a report for the docs....I wish more parents (than obviously all of you here) stood up like this....
keep us posted?
post #16 of 19
Your story brings back a flood of emotions.Just always remember" NO you do not have my permission" is the most powerful word in our arsenal.


It would be nice to see what else the cdc has locked away.Freedom of information act maybe?
post #17 of 19
Quote:
Originally Posted by barefoot mama View Post
Your story sounds eerily similar to what happened after my oldest dd got her first DTP. I got the same crap from the doctors. But I listened to them and continued vaxxing her. She had a very hard life and died at 8 years old (link in my sig). Thank goodness you are well-informed. Your dd is lucky you are her mama. If it were me, now, I would never ever let anyone near her again with any vaxes whatsoever.

The aluminum piece is huge, IMO. I believe that was the biggest cause of Marissa's problems from the beginning. DTP has one of the largest amounts of aluminum in it.

I thought of you, Barefoot Mama when I saw the OP.

I'm so glad you came in here to post.

We did not vax our son (now 6)...but if we did and I had that experience I can tell you I would run 1000 miles in the other direction of a vax.

there are threads here with people's reactions... if I have time I'll find them. They are now up in archives I believe. Sad stories all of them.
post #18 of 19
you sound like a great mama.
and barefoot mama
post #19 of 19
Quote:
Originally Posted by Tracy View Post
I thought of you, Barefoot Mama when I saw the OP.
Me too!! It was the first thing that came to mind
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