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x posted: inflammatory bowel disease and the SCD  

post #1 of 6
Thread Starter 
If you have inflammatory bowel disease...

did you/do you follow the Specific Carbohydrate Diet? If you do, would you comment on it, especially on how hard it was to follow it and whether you saw improvement in your condition? If you didn't, why didn't you? Do you follow some other diet you find helpful? If you were on the diet while nursing, did you find that you could maintain body weight and make enough milk? I have two nurslings and it's because of them I'm finally thinking of sucking it up and trying the SCD for a few months.

See, I'm on my fourth flare-up this year, and I'm getting fed up. I'm looking at a lifetime on Asacol and I don't like that idea. That's why I keep flaring up; I keep trying to wean myself from the meds, which is just stupid I know but I hate them so much especially with two nurslings to worry about.

Here are my worries:
1. DH won't follow it, and I don't think I want to limit my kids' food choices that much. So I'd be eating separate meals often. That means a lot of extra time on food preparation, and I'm already short on time.

2. It's likely to be a lot more expensive than how I eat now. Right now I eat a mostly vegetarian diet based mostly on rice and other grains, beans, and the produce I either grow myself or get from the CSA. I do eat eggs, meat, poultry, and fish sometimes, but not daily. I'm pretty strapped for cash and all the meat and stuff would be expensive. Honestly, I only pay $10 a month for the meds, and that's cheaper than ANY diet I could try. And probiotics, especially VSL#3, which I understand is the most effective, are WAY beyond my means.

3. I'm dairy-free until my son weans, which means no yoghurt and no cottage cheese, which seem to be staples on the SCD. He's casein-intolerant, and reacts badly to even small amounts of dairy in my diet.

I need to do something; I can see that clearly, that my current way of eating isn't working for my gut. But I just don't know if this is the diet for me, or if there are other ways of healing my gut that would work better for my lifestyle. I would love to hear whatever advice anybody has!
post #2 of 6
I don't have IBD, but I did do the SCD while nursing for about 2.5 months. It was difficult for the first couple of weeks until I figured out what foods/recipes I liked, and after that it was pretty easy. I lost a few pounds but that's it. And I did do it without dairy as my nursling was dairy intolerant.

As far as VSL3 goes...do you have insurance? If you do, it may cover it if your doctor will prescribe it for you. Otherwise, you can culture VSL3 into yogurt. I've successfully made coconut milk and rice milk "yogurt" with VSL3 as the starter. I've also cultured sugar water with it. I figure a bottle will last me a year or more this way. So if you can figure out a way to get one bottle of the capsules...I can walk you through culturing it in whatever medium you want to use.

HTH!
post #3 of 6
Quote:
Originally Posted by caedmyn View Post
As far as VSL3 goes...do you have insurance? If you do, it may cover it if your doctor will prescribe it for you. Otherwise, you can culture VSL3 into yogurt. I've successfully made coconut milk and rice milk "yogurt" with VSL3 as the starter. I've also cultured sugar water with it. I figure a bottle will last me a year or more this way. So if you can figure out a way to get one bottle of the capsules...I can walk you through culturing it in whatever medium you want to use.
Caedmyn, can you explain how you cultured VSL3 in coconut milk? My oldest DD is still on VSL3 because its the only thing that keeps her eczema at bay (and it cleared up her c. difficile infection and the blood in her stool), but I'd love to know how to culture it and make it last longer!

I've found the cheapest way for us to get VSL3 is to order it directly from the manufacturer because they ship for free. It was cheaper for us then even the pharmacies in my area that carry it.
post #4 of 6
It's basically the same process as making regular yogurt. I add about a tsp of maple syrup (any sweetener would work) per 2 c. of coconut milk, heat the coconut milk to 180 degrees, and then let it cool to 110 degrees before adding the VSL3. I use one capsule per 2 c. of coconut milk, or 1/4 c. of coconut milk yogurt from the previous batch. It'll only culture a couple of times using yogurt from the old batch, though, and then I need to use a capsule as a starter again. It doesn't have a yogurt consistency when it's done, but you can add gelatin or agar agar (I'm not sure on the amounts, sorry) to get it to gel.
post #5 of 6
Can I ask some more questions about culturing VSL3?

Why coconut milk? Is there something special about it beyond the usual TF stuff?
What are the instructions for culturing it in something else like sugar water?
post #6 of 6
Quote:
Originally Posted by whoMe View Post
Can I ask some more questions about culturing VSL3?

Why coconut milk? Is there something special about it beyond the usual TF stuff?
What are the instructions for culturing it in something else like sugar water?
Coconut has something in it, maybe lauric acid, that's supposed to be good for the gut.

I basically follow the same procedure for any non-dairy liquid (including sugar water) that I culture. I add about 1 tsp of sweetener per cup of liquid, heat it to 180 degrees, let cool to 110 degrees, and add powdered yogurt starter or probiotics. Then incubate it the same as you would for dairy yogurt.
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Mothering › Forums › Health › Nutrition and Good Eating › Traditional Foods › x posted: inflammatory bowel disease and the SCD