Originally Posted by LibbyLou
Our best friends just found out that they are both carriers for cystic fibrosis. They are planning on using IVF where the embryos are screened for the disease before they are implanted. I'm not sure what your financial situation is, but it is an option.
Having known very closely a set of sisters who both had the disease, this is the ONLY way I would consider having more natural children if both my husband and I were carriers. I, myself, couldn't consciously, knowingly, risk passing this disease on to my children. I'd say this is a very very personal decision, and you and your husband are the only ones who can make it. Knowing intimately the pain that the disease causes, both to the child and to the family, I wouldn't take the chance. At the very least I'd urge you to become more intimate with everything that the disease entails before making a decision.
I so understand the longing for more children, and am so so sorry that your family and son have to walk this path.
editing to add that I am a carrier, and it was TERRIFYING waiting to find out if dh was a carrier. At the time, ds was a toddler who was ALWAYS sick, couldn't get rid of anything in his chest/ears. That was even more terrifying to me, because of course I thought immediately that he must have cf.