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Just need someone to understand (LONG and vent-y)  

post #1 of 10
Thread Starter 
Am I the only one who feel like this is just too hard sometimes?

Dh and I have been fighting pretty much all weekend. I have conferences coming up next month -- a one day one where I'll be gone from 6am to 8pm, a 2 day that I can take the kids to, and a 5 day one that is a plane trip away. I'm also trying to work, go to grad school and oh, yeah, take care of dd, my house, the bills and everything else. Dd's got 4 appointments coming up in the next 2 weeks, and the ped thinks she needs to go back to the neurosurgeon because of something on her spine. I'm supposed to go to pain clinic and my own neurosurgeon next week.

We have no one to help, except my mom. My dad is happy to watch the kids for a couple of hours, but he can't do meds, won't change her morning diaper, and won't do toileting (so you know, basically no help at all). I've been looking for child care or PCA for months now, with nothing. And I'm supposed to leave for Atlanta in 3 weeks! Dh thinks I'm getting "all worked up" for nothing, despite the fact that he thinks it's a great idea for me to leave dd with some girl he used to work with that I've NEVER even met Plus, he's mad at me for even agreeing to go to this conference . . . except that I agreed when he was working third shift and childcare wasn't going to be an issue. Now he's in a new (better) job, but with no set schedule, which means childcare is a huge issue.

Since taking my job two years ago, I've backed out of at least 2 major conferences, missed another one due to illness, and not been able to stay overnight at our "mandatory" one due to dd's illness. Needless to say, they pretty much think I'm a flake, which makes me upset since in my LBJ (Life Before dd) I was really reliable and very conscientous. Now, I just feel like everyone has these huge EXPECTATIONS of me, and I'm totally burnt out. Work expects me to be able to do all these great national-level conferences -- which are great, except when, you know, my life interferes. And the school has it's own version of what I should be doing for dd. And the docs have their own agenda for what I should be doing. And, oh yeah, my other kids want me to be at their activities. And ds is struggling in school lately, and I haven't even had a minute to address that issue. And let's not even go down the financial road

When dd was really sick, back in the beginning, everyone understood that my time and energy was completely devoted to caring for her. No one expected me to join the PTO or sit in on the hospital board, or heck, even shower on a regular basis. Now, everyone thinks dd is "just great" and I should go back to supermom status. She's not "just great", she's still disabled and medically fragile, still requires lots of care and time for IEP's and meetings and appointments -- something that no one IRL seems to get.

Sorry for the vent.
post #2 of 10


No, you're not alone! We all reach our max once in a while, or at least think we do. When this happens to me, I finally explode in a fit of tears, then mope around for a day or so, then pick myself up and keep going because really, what else can I do??

I have a wonderful group of friends here, but none of them work and none of them have a special needs child. So while I enjoy their friendship, I feel like I don't get support because they don't understand what it's like to wear so many hats!!!

I'm right with you...I used to be different at work and at home, I used to be this super woman. Now I feel like there are times that I'm not pulling my weight at work or at home. But really, just managing Connor's health care could be my full time job!!! Plus I'm not sleeping (please someone tell me the sleep thing will get better!!).

So I let myself have my cry, I even let myself spend a day at home in my pajamas feeling sorry for myself. Then I just keep going.

THe day we got his diagnosis I was awake in the middle of the night realizing that this is going to be life-long, not just a "hump" he needs to get over and then will be "normal". It scared me, truly scared me for the first time. And I wondered "can I really do this?" But the answer was/is obvious: "yes I can, I AM, and I will."

You're an amazing woman!! You have a lot on your plate, yes, more than most other moms. It's okay to let some things slide (who cares if you pull your clothes out of the dryer to wear them, who cares if it's been a week since you mopped your floor). Focus on the things that really matter (working well enough to keep your job, paying bills, basic needs for you and your kids) then take care of the rest as you find extra bursts of energy.

Then come here to vent whenever!! We all do
post #3 of 10
Quote:
Originally Posted by snuggly mama View Post
Needless to say, they pretty much think I'm a flake, which makes me upset since in my LBJ (Life Before dd) I was really reliable and very conscientous. Now, I just feel like everyone has these huge EXPECTATIONS of me, and I'm totally burnt out.
Oh, mama, I relate to this in such a strong way it gave me shivers to read it. It's really, really hard.

I can commiserate. I am taking almost 40 people to New Orleans for Katrina recovery this coming week (for work), and I really ought to work on my one day off this week to get everything set for my absence, but my dd has two major appointments that are in two different areas of the state. I am so tired just thinking of trying to get ready for my absence at work, let alone at home. And my arthritis is flaring up so I am exhausted from that, and I know that the work we will be doing next week, and the fact that we are sleeping on the floor of an empty church, will just exaserbate it all.

I am so tired of people seeing me as incompetant or whatever because things are always dropping off my plate. I just can't seem to keep up.

And I am even more tired of feeling like I can't just be with my kids and do the things I need to do for them without feeling worried or guilty about work I am not doing. I want to be a PRESENT parent.

Anyway, just wanted to offer hugs and say, I think I really GET it.
post #4 of 10
I have a lot less going on as I resigned from work but I still feel like a flake with the responsibilities I do have because I'm just preoccupied and overwhelmed. I too wasn't like that before.
post #5 of 10
Thread Starter 
Thank you all. It helps to know I'm not the only one who feel like this.

I'm on vacation next week. Hopefully, I can have some fun with the kids, and also find some time to just be alone and think for awhile.
post #6 of 10
I'm sorry you're feeling so overwhelmed. I hope your week of vacation is rejuvenating and fun.
post #7 of 10
post #8 of 10

I can relate



Sincerely,
Debra
post #9 of 10
I can relate, too. (((HUGS))) I feel like friends IRL don't understand how it is to not only deal with a SN child, deal with (in our case) not having answers and a full diagnosis, and deal with the emotional aspect that comes with realizing other I feel like a lesser person/failure because there is way more on my plate than I ever anticipated. I'm sorry you are dealing with this.
post #10 of 10
I'm totally there with you too. I've had to be away a lot (at conferences also) lately and it all just feels so stupid. And dh, though he's nice about it, is pretty much over it.

I'm actually in a hospital room in another city from where I live, corresponding with my students in an "online" class since I couldn't get anyone to cover my classes this morning. I'm so worried that the administration is just going to be done with me and not continue my contract. Ugh.

I hope your vacation week is mucho fun!
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