Mothering › Forums › Pregnancy and Birth › Fertility › Infertility › UPDATE-Bicorneate Uterus
New Posts  All Forums:Forum Nav:

UPDATE-Bicorneate Uterus  

post #1 of 24
Thread Starter 
Surgery #2 is done and I am painfully sore. It was not the news we had hoped for. Yes she was able to remove scar tissue and some more polyps but after moving them she got a clear picture of my uterus and it is bicorneate, very. I'm trying not to get too down because I am only going off of what she told DH after surgery but he said she mentioned miscarriages, premies, high risk pregnancy, another specialist, surgery on the uterus itself to reshape it... Of course everything was scrambled to him but he said she looked very depressed. So we meet with her again later this week to go over everything and see where to go from here.

Does anyone have any expereince with the bicorneate uterus? Or the surgery itself to reshape it? I want to do a little more research before we meet with her so I can ask questions.
post #2 of 24
Oh, Starr, I don't have any advice, but I couldn't read without posting a . I hope that your meeting with her goes well and that the situation is not as bleak as it seems now.
post #3 of 24
I don't really have any info, just wanted to commiserate.

I'm having surgery to remove a very large fibroid and hopefully reconstruct my uterus a bit in a few weeks. One of my fears is that they will discover a bicorneate uterus while in there. I've been examined like crazy, but the fibroid is so large (I look 3 months pregnant) its possible they won't see other issues until its out. My mom had a bicorneate uterus and so does my sister. For them it did not cause fertility problems, though it did necessitate c-sections because of very wierd positioning. Of course, after I'm sliced and diced I'll be looking at a c-section anyway if I ever do manage to get pregnant.
post #4 of 24
Thread Starter 
I was actually suprised that they found it. We have had numerous internal ultrasounds, an HSG, a saline ultrasound, laparoscopy.. and all the time they said the shape of the uterus showed up normal. So it was a huge blow. Before we couldn't get pregant and now I'm worried with all the scar tissue gone we will get pregnant only to have multiple miscarriages.
post #5 of 24
I am not usually on this thread as I am finished having children, but..I have a bicorneate uterus and endemitriosis...I have been really lucky, but c-sections for sure. I don't know if anyone else was exposed to the drug DES- but my mother was in utero and early research shows reproductive anomalies. It really depends on the shape of the cleft in the uterus.
post #6 of 24
Starr
I'm so sorry about your diagnosis. I have been in your shoes and know how confusing and scary it can be right now. I have a recently repaired uterine septum, which is another form of a mullerian anomaly.

There are several great places to find information on MAs. http://www.mulleriananomalies.blogspot.com/ has great pictures and descriptions of the different MAs and stories from women. There is also links to other women's blogs who have MAs. There is also a yahoo group on mullerian anomalies. I am a member, and there are many many women who have BUs who are on it. There are many who have had babies and there may be some who are pregnant right now. It's an amazing place because everyone there is going through what you are! I would highly recommend joining! If you don't know how to join, pm me and I can tell you how.

I know that this is a stressful time but I want you to know that there are people out there who are here to support you!
post #7 of 24
Hello Starr,

I have a bicornuate uterus too. It was diagnosed when I was pregnant and the doctor could not find the fetus, because it had attached in one of the hidden corners of my uterus. I had one early miscarriage (at about 7 weeks) during my first pregnancy, and carried my son (now 3.5) almost to term. I am not quite sure how drastic my case is- the doctors could never get a good enough look via ultrasound to tell me. My son was breech during my entire pregnancy and I was scheduled for a C-section, but in the last 2 weeks before he was born, he turned head-down and I ended up giving birth naturally. I was badly injured during the birth (bad tears, including an artery), and I am not sure if that has to do with the uterus or not. Since the c-section did not take place, the doctors were not able to get a closer look to let me know how far the septum went down.

A good friend of mind gave birth via c-section almost 2 years ago to her son, 12 weeks early. She had quite a bit of bleeding during the pregnancy, was admitted twice to the hospital, and an emergency c-section performed during which it was confirmed that she too had a bicorn. uterus.

Anyway, I just wanted to say that although it is not as easy, it is not impossible to give birth with this condition! Good luck to you!
post #8 of 24
Thread Starter 
Thank you everyone. After reading some stories and looking online I don't feel quite as bleek about the situation. I go see my Dr. who did the surgery on Valentines Day to get her take on it. A few positives are that she did get a good look at my uterus, all the polyps and scar tissue is gone and anything is better than unexplained infertility IMO. So we are trying to not get too upset until we know more. I do wonder where she will send us, she mentioned she was going to refer us to someone who specializes in this area. So for now we are focusing on the positive, she said my follicles are great, fantastic even, DH has awesome sperm count and everything looked good on his end and best of all we both agree we are in this together, we aren't fighting and if anything we are closer than ever. I'll let you know how my appt goes. I do have pictures of my uterus, oddly enough, but am hoping she can translate the pictures into words as far as degrees.
post #9 of 24
Emily, you beat me to it

Starr, you might also want to check out the Ashermans Yahoo group.
post #10 of 24
Thread Starter 
So we saw the Dr. yesterday and its not as bad as what we thought. She is going to refer us to someone else who specializes in bicorneat uterus's just so he can explain and give us his thoughts, and as she said hopefully calm some of our fears. She said she didn't want me to finally get pregnant and be a nervous wreck the entire time waiting for the shoe to drop so hopefully he can reassure us of a few points.

From what she described a normal uterus is around 7-8cm, the main larger part of mine measures 6cm. She took this reading a number of different ways and always came up with 6-6.5cm. All the polyps are gone and my uterus is completely cleaned out. At this point, until we see the specialist, she is not comfortable going any route that would greatly increase the number of twins or multiple babies (like injections). She said the specialist would know more about the possibility of carrying twins and risks, also did I mention twins run heavily in both DH's and my family. So she is taking that into consideration as well.

My uterus is not completely split, she showed us great pictures from both the laparoscopy, D&C, and saline ultrasound and it is bicorneate but mildly. She said it was great that we had good photos showing from the outside, inside and the cavity shape and that will help the specialist get a better picture.

So at this point we decided to make an appt with the specialist who is a few months out and try on our own. She said we can always try Clomid or IUI's, but wanted to give me a month or two to regroup and completely heal from surgery.
post #11 of 24
Just wanted to add a tad more reassurance. My SIL has a septate uterus. They discovered it when she was very young and had a miscarriage. With her first daughter she tried for I believe only a few months (maybe 6). Her second was even less trying time than that, and her third who is "due" in June they didn't try for at all.

As far as I know her only miscarriage was the first one. She has normal pregnancies, other than that she was told she will never carry to term. Her two daughters were both born 35 weeks to the day (her water broke naturally), so they've revised the 'due date' for this one accordingly.

Babies were healthy and no complications afterwards. I am actually attending this birth as a doula, and am excited to learn more about the ondition
post #12 of 24
Quote:
Originally Posted by jeninejessica View Post
Just wanted to add a tad more reassurance. My SIL has a septate uterus. They discovered it when she was very young and had a miscarriage. With her first daughter she tried for I believe only a few months (maybe 6). Her second was even less trying time than that, and her third who is "due" in June they didn't try for at all.
Your SIL is very lucky Women with a uterine septum are more likely to have miscarriages and 2nd trimester losses. The challenge is that the septum does not have a good blood supply like the rest of the uterus. If the embryo implants on the septum, there is not enough blood supply to sustain the embryo as it grows.

Fortunately, a uterine septum is easily corrected surgically (provided you go to a doc who knows what he/she is doing) and pregnancy outcomes are greatly improved after surgery.

Lisa
post #13 of 24
Starr,

I had a bicornuate uterus. The division of my uterus was nearly complete and I had surgery to reconstruct it (called a Strassman procedure). I also had large fibroids that were removed at the same time.

Surgery to correct a bicornuate uterus is very rarely done. It is usually not recommended unless there have been multiple unexplained losses. And in your case, based on the information you've provided, surgery would not be indicated.

The good news is you're only mildly bicornuate. The pregnancy outcomes for mild bicornuate are very good. From my research the potential problems tend to revolve around positioning. Babies are more likely to be transverse or breech, and because of this it is more common for c-sections to be done.

There's a wonderful yahoo group that I would recommend (I'm pretty sure there are women on the list who have successful carried twins with a bicornuate uterus):

http://health.groups.yahoo.com/group...rianAnomalies/

I would say the greatest challenge with having a "special" uterus is finding a doc that really knows what they're talking about. There is an appalling amount of ignorance out there.

Good luck to you!

Lisa
post #14 of 24
I have what's called a Unicornate uterus, meaning the second horn (and fallopian tube) has never developed. I too was told about the risk of miscarriages, premies, etc.

My son was delivered by a c-section due to being footling breech at 39w5d. My daughter was born at 41w3d (she was frank breech). I was nursing my son throughout the whole pregnancy.

Breech is common for our conditions, unfortunately. But other that that, everything should be ok. With both pregnancies I has TONS of contractions, but as long as your cervix stays close, it’s nothing.
My RE told me that one of his patients carried triplets in one corn of her Bicorneate Uterus to 34 weeks!
post #15 of 24
Starr, my dear friend,

first of all -- i am sooooooooooooooooo glad the doctor was able to reassure you a little.

I am also glad you are meeting with a specilist. S/He will know more.

I also think it is a good idea to wait a month or two, or at least one cycle, before TTC agian -- I know it has to suck...... i went though a bunch of HVP / maybe cancer (one pap would say cancer, one would not, the dysplya level kept changing) ..... before TTC Theo, and it seemd like each appt was "wait another month then we will do X ..." so you'd loose two months, or three, before you could think about TTC again ...... it got sooooooooooo fustrating, like a cat toy always just out of reach "maybe after X..."...................................but you do want to be sure you are healed physically and emotionally from teh sugery.

Second ...... I am so sorry you are faceing this struggle. My heart goes out to you and you remain, as you have been, in my prays.

Aimee
post #16 of 24
I was 25 when I got pregnant and 26 when my son, Ryan, was born. My fiance of 6mo broke up with me 3wks before I found out I was pregnant (I found out pretty quickly). I told him about it and told him what was going to happen (like i would have to go on welfare and they would sue him for child support, not me etc). Then, I spent the rest of the pregnancy trying to get him to be involved.

With that said, I had a very stressful pregnancy (because of his daddy, and i couldn't take my prozac), and it turned out I had a bad case of depression. Most ppl gain an appetite with depression, I didn't. I actually lost my appetite. I had to force myself to eat at least one meal a day. I had a student doctor who wasn't ready (apparently) for a high risk pregnancy. I didn't know a had a high risk pregnancy at the time.

My pre-pregnancy weight was 128lbs (5'4-1/2" with some muscle). I gained weight slowly and looked 6mo pregnant in my 3rd trimester. I gained 12lbs max and plateau'd at 10lbs. Then, after Ryan was born I went instantly to 111lbs. So, I lost 17lbs from my heaviest (140lbs) to my lightest (111lbs). So, it was actually a 17lbs pregnancy. I wasn't plagued with morning sickness all the time. I would get it every few weeks and it would last a week (not enough to actually throw up). When it ended my tummy would get bigger. I'm thinking the increase in hormones (that allow the child to grow) would make me sick. But, towards the end, my pants started fitting me different. It turned out as my tummy got bigger the rest of me got smaller. He was taking my weight and making it his own. I did eat, I just couldn't eat as much as I should. Not one craving did I get, if I had maybe I would have eaten more.

Just a few days before I was due I felt very minor contractions at 9am. I thought I just had to use the restroom (that is how minor it was). I waited at home and continued to read the Lamaze book with my mother (which actually told the history of the technique) because the class was too expensive. I went into the hospital around 4pm because of some spotting. It's a good thing too because everytime I had a contraction, his heartrate would go from a normal 130bpm to a dangerous 65bpm. They gave me a chemical that would stop the contractions make sure it wasn't anything else. The bpms never went down during that time. But, they did when the drugs wore off and the drugs came back. So, they prepped me for surgery. This was about 5:30pm

Ryan was born by C-Section at 10:01pm. The said, they opened me up to find a nice heart shaped uterus with a 1cm septum and a boy was estimate pre-natal to be 6-6.5lbs, instead was 4lbs 14-1/2oz (1.5oz less than 5lbs).

They explained to be, in the recovery room that i had a uterus shaped like a cat's. They has a split uterus so that they can be pregnant on both sides, which keeps their tummy off the ground when they move around. (great analogy for me).

Ryan had to stay extra long under the lamp to warm up, then once again under the lamp to warm up again after his bath. He was all muscle, barely any body fat. I prepared for a natural birth, but inside I always knew I was going to get a c-section. I will encourage ppl have natural births if they can, because it is better, but I am SO glad I had a c-section. Especially, since I'm petite and he had a big head LOL!

He ate lots over the next 2mo and gained very little (he grew just fine). He would eat lots but gained less than he should for the amount of calories he was taking in. I was always taking him to the doctor because he either he couldn't breathe from allergies or he would cry for a long time. We switched him to Soy formula and that helped. He was 9lbs at 2mo. That is when his scrotum swelled to taut. I took him to the hospital where they did many tests on him then he and I got transfered to another hospital that specialized in pediatrics. They wanted to make sure that there wasn't any upper intestinal blockages, so they opened him up above the belly button and did quick exploratory surgery. He was fine there, but I agree with the "better safe than sorry method" then, they did a half a c-section to remove the hernia/hypercele (water filled intestinal wall that sometimes gets caught pre-natal). The surgery took 45min. He was in pediatric ICU for a like 2 days, then in regular Peds for two days. The surgeon said 5% chance of the other side doing that.

After he got home, he was smiling more because he was in less pain and cried less. But 2wks later, the other side swelled (not as badly) so we took him in. This time we went to the correct hospital this time and only waited like 90min at the most for this surgeon to come. They new exactly what to do this time. This is 5% boy! The operation took 15min, he skipped PICU and was able to have formula right afterward. Now, he has the other half of the c-section scar LOL! It nearly matches Mama's.

After this one he was in no pain at all and belly laughed all over the place. He eve gained 4lbs in one week: 9lbs to 12lbs! He was nearly dying and I didn't know it and nobody believed me when I said that there was something wrong with him that he was too thin and was sick!

I tried to take him off of soy but it didn't fill him up, we figured it was because the soy was heavier and made him feel fuller with less. That may be true but he ended up staying on it anyway, because he is lactose intolerant and is a very gassy little boy. During the day he is fine but at night it keeps him up with pain.

Now he is 22mo nearly 3ft tall and nearly 30lbs! (he turns 2, August 2008).

So, it wasn't just my lack good nutrition (I did eat plenty of dark green lettuce and such from my mother's salads, yay for folic acids), or the bi-cornuat uterus. He had other reasons, too.

I was told that it was a Bi-corneat Uterus, and the internet confirmed that at the time. But, after doing a search again nearly 2yrs later, I'm finding out that it is a Bi-cornuat uterus. I never even THOUGHT of doing the surgery that is talking about in this thread. I mean, it never even occurred to me. But, I wouldn't want to do it anyway, because I wouldn't want the scar tissue. Research told me that with this defect, it can take some women years to get pregnant (took me 4mo without trying), there are high risks of miscarriage (had a scare at 7wks with spotting), and that children are often born preterm (just days early). I wouldn't want to add scar tissue to the folds.

I did get advice in person from a woman who had three children with a bi-cornuat. She said, that having a natural birth can cause fatal hemorraging in the mother and death in the child to never let a doctor talk me into having a child naturally, always by a c-section. I agreed.

Ryan had such little space in there, that he head was dropped, his butt was on my left side and his feet was on my right side kicking me on the OUTSIDE of my ribs. He kicked in a way that said he didn't have much space to move, infact after he was born and out of the cold hospital, he wouldn't let us swaddle him, he wanted to spread out and enjoy the space! 1 week before he was born i knew he was coming because that is when he complained the most and that is when I FELT pregnant. I felt heavy even tho I wasn't.

He took up the "corn" of the uterus on my left. I would hope that if I got pregnant again, that the baby would settle in the "corn" on my right LOL to even things out.

I took until I was 18 weeks along to get medicaid and that is when I started getting sonagrams at every doctor's visit, which we could videotape with a VHS. They NEVER saw a septum, division, or anomaly anywhere. I'm thinking the other side just sat passively in a corner being unused. I even had a sonagram with the miscarriage scare and they didn't notice it there, either.. I do not believe the placenta was attached to the septum (one less complication), but they did say it was a bit low (in the 2nd trimester) but was sure that it would raise as the pregnancy continued. I think it did, or at least just enough to relieve any concern.

And no, I cannot imagine triples sharing a "corn" WOW! And Ryan thought he was cramp! I can imagine twins and each one having their own corn. LOL! And if I do get pregnant again, to the specialist I go!

I know it's long and long winded, but these posts inspired me to tell my story.
post #17 of 24
You wrote:
Quote:
I did get advice in person from a woman who had three children with a bi-cornuat. She said, that having a natural birth can cause fatal hemorraging in the mother and death in the child to never let a doctor talk me into having a child naturally, always by a c-section. I agreed.
Huh. I wonder what is the justification for that assertion. There are ALWAYS risks in childbirth, but the claim that women with MAs can only safely birth by cesarean is unsubstantiated.
post #18 of 24
Quote:
I did get advice in person from a woman who had three children with a bi-cornuat. She said, that having a natural birth can cause fatal hemorraging in the mother and death in the child to never let a doctor talk me into having a child naturally, always by a c-section. I agreed.
I agree with labortrials. I've never seen anything in the research that indicates a higher risk of hemorrhage with a bicornuate uterus. Women with a bicornaute uterus are completely capable of having a safe vaginal birth. The biggest reason women with a bicornuate uterus end up having a c-section is due to malposition. It's fairly common for a baby to be breech or transverse as a result of a uterine anomaly and because of this c-sections are more common.

Also, a bicornuate uterus typically does not increase the risk of miscarriage. A septate uterus is far more likely to increase the risk of miscarriage. A bicornuate uterus is more likely to increase the risk of pre-term labor, but this depends on the severity of the cleft (or indentation). A deeper cleft means the uterine cavity is divided more and the baby is more likely to outgrow it's space. A small cleft rarely causes problems other than malposition.
post #19 of 24
It is hard for me to do the research on MAs because there is very little information available to me about them. I got that information from my mother's ex- co-worker who had three children and a bi-corneat. I guess she didn't do her research.

I ordered the medical records for my stay at the hosp for Ryan's birth. It was said that the membrane was 1cm. Which, as far as I understand isn't considered much, however it was enough.

He out grew his space in tghe last few weeks very easily. I could feel it. His movements were very uncomfortable for me and I could feel almost all of them. If I was "slouching" on the sofa (enough that it looked like i was laying down), then everybody around me could see his movements, that is how exaggerated they were.

Even the doctors agreed that if he didn't get born by c-section that he wouldn't have survived by natural because he was being crushed/squeezed by the contractions. So, if I have another child, it will be by c-section. Aside from the fact that I still believe that vaginal is better, the only real thing I do not like about c-sections is that they are planned. I believe a child should come when they are ready, as it affects their well-being (and to a lesser extent) their personality by astrology. Ryan was less than a week early. That would be perfect if I had a planned c-section. Have the contractions early, then the child would have be to born when it is ready LOL!

I know, an emergency c-section isn't as safe as a planned one and there are pros and cons for both. But, those are things that I think about, sometimes.
post #20 of 24
Hi Starr,

I just wanted to chime in here too. I'm not sure of all of your issues, but I have a complete bicornuate uterus with possible septate cervix, and have a beautiful (almost) 3 yr old son here to show for it. It took us a year to concieve him, naturally. We are TTC#2 and after 2 years are looking into IUI's at this point to help move things along hopefully (before my age becomes another issues), but it CAN be done!! I second the mullerian anomalies group that someone posted for you, there are lots of very knowledgable women with all sorts of MA's who can give you better advice. Since there ISN'T a lot of research about MA's and preganancy outcomes/fertility issues, it's nice to have a large resource of women who have/are dealing with it first hand!

Good luck mama!
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: Infertility
This thread is locked  
Mothering › Forums › Pregnancy and Birth › Fertility › Infertility › UPDATE-Bicorneate Uterus