Dang it.

[newmothermary]

Devon is still having these upper body muscle spasms and she gets sleepy after cause it take a lot out of her.
They would last about 5 mins and she'd cry after each contraction. They almost always happen at night and always while laying down. Always no more than one episode per night. We feel so helpless at helping her.

We did the sleep eeg, we did the ph probe and the endoscopy, and nothing shows nothing.
Tomorrow we have an appoint. with yet another neuro for an emg (and nerve conduction) consult. She is a neuromuscular specialist.
We will bring our video clip and hopefully she can shed some light.

I did run across a forum online where there are people who have these spasms. Full functional adults who talk about their affliction. They compare these muscle spasms to a Charley Horse except all over and they'd hurt. Some said they'll get real sleepy after. Hmmm.

I am so tired of chasing.
Thanks for reading.

Mary:

[bdavis337]

I hope this new specialist can point you in a good direction.

[irangel]

I hope this new neuro can shed some light on what's going on or at least give you some ideas as to how you can help her through them.

[mamaverdi]

Mary

[angelamclamb]

Check into Craniosacral Therapy for her. HUGS TO YOU AND HER!

[newmothermary]

Hi angelamclamb,
We did CS for D when she was younger. We did it for a couple of mos. and I guess we came away with her nervous system a little more regulated. She used to startle a lot. She still startles but its mostly when she is tired and/or not feeling well.

Its an idea.
Thanks, Mary: